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Topic: I almost forgot how much fun this isn't (Read 234 times) |
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Frank
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I almost forgot how much fun this isn't
« on: Dec 5th, 2002, 8:17pm » |
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I have been mostly PF since the doctor gave me prenisone in October 2000... a half dozen attacks since then, but not really bad. Until the past two weeks. Had two last night (Kip 7 &  , and one the night before, and one a couple of nights before that, and again the night before.... and the night before that. Damn... I guess they're back for a while!
I went to see the doc today and got some Maxalt MLT (only four which sucks but they were free) and a Rx for O2. I'll pick that up tomorrow.
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| « Last Edit: Dec 5th, 2002, 8:19pm by Frank » |
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Ted
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Re: I almost forgot how much fun this isn't
« Reply #1 on: Dec 5th, 2002, 8:32pm » |
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Shit, Frank. I'm sorry to hear they're back. Going to get another scrip for the Prednisone too?
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domm
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Re: I almost forgot how much fun this isn't
« Reply #2 on: Dec 5th, 2002, 8:38pm » |
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Frank - sorry to hear they're back. Have you tried Verapamil as a prevent?
Hang in
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Frank
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Re: I almost forgot how much fun this isn't
« Reply #3 on: Dec 5th, 2002, 8:40pm » |
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Yep... been on 480mg verapamil daily for four years. It isn't enough at this time.
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Frank
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Re: I almost forgot how much fun this isn't
« Reply #4 on: Dec 5th, 2002, 9:00pm » |
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on Dec 5th, 2002, 8:32pm, Ted wrote:| Shit, Frank. I'm sorry to hear they're back. Going to get another scrip for the Prednisone too? |
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Not sure prednisone would help this close to the start of a cycle? Never tried it.
The first time I tried prednisone, it did not end the cycle. I quit takinhg it because after several days I felt like all my bones were broken. Major leg, ankle, wrist, elbow, finger, knee, back, neck, etc pain. I thought it was the prednisone... but wasn't sure.
Last time (which apparently broke the cycle) I went through the same major body aches and pains after a few days. I assumed it was caused by the prednisone and quit taking it before I was supposed to. But the clusters have been gone for two years...
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KingOfPain
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Re: I almost forgot how much fun this isn't
« Reply #5 on: Dec 5th, 2002, 11:33pm » |
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I see you got a script for oxygen. If you have never tried it, get ready for some relief. You should fill the script asap.
I tried prednisone, couldn't deal with the side effects.
Good luck, KingOfPain.
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
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Frank
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Re: I almost forgot how much fun this isn't
« Reply #6 on: Dec 6th, 2002, 3:40pm » |
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on Dec 5th, 2002, 11:33pm, KingOfPain wrote: I see you got a script for oxygen. If you have never tried it, get ready for some relief. You should fill the script asap.
I tried prednisone, couldn't deal with the side effects.
Good luck, KingOfPain. |
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Well I just got four tanks delivered... paid for by my insurance company. Now why did I have to pay for it during the last cycle, and the cycle before that ???
(Oh yeah... I changed insurance companies!)
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domm
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Re: I almost forgot how much fun this isn't
« Reply #7 on: Dec 6th, 2002, 3:55pm » |
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Frank - hope the O2 does the trick. I've read many say they had to use Lithium with the vera. I haven't had to, but I'm out of cycle now and just doing the verap maintenance thing.
Hope things go well for you man
hang in
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