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Topic: Worst Medications (Read 781 times) |
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unsolved1
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What was the worse medications you've taken for CH and why ?
I have 2...Topamax cause it gave me kidney stones twice and Keppra cause of the psychotic nightmares and relentless poundings !!
Unsolved
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Topical
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Re: Worst Medications
« Reply #1 on: Jul 12th, 2005, 8:11pm » |
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Lithium - cookoo / cookoo
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E-Double
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Re: Worst Medications
« Reply #2 on: Jul 12th, 2005, 8:11pm » |
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Dopeymax
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eyes_afire
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Re: Worst Medications
« Reply #3 on: Jul 12th, 2005, 8:35pm » |
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No doubt. Easy.
1. Paxil - the addiction was fucking horrible (physical dependence, whatever... call it what you wish), I can't believe I survived the withdrawl month.
2. Ultram - a useless waste... gave me a migraine to go with my CH. They call it a painkiller? LOL, right.
--- Steve
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broomhilda
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Re: Worst Medications
« Reply #4 on: Jul 12th, 2005, 8:50pm » |
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on Jul 12th, 2005, 8:11pm, E-Double wrote:
Ditto, I still can't find some of the brain cells I lost...
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Suck it up Princess...
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Chillrmn1
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Prednisone - Very uncomfortable physical withdrawals while tapering down and large increase in appetite.
Imitrex - Caused rebound headaches, seemed the rebounds intensity were increased, memory loss, background headaches, shakiness.
No problems with alternatives and O2  .
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kimmeesue
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Re: Worst Medications
« Reply #6 on: Jul 13th, 2005, 1:33am » |
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Lithium....horrendous tremors
Topamax...cognitive impairment
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burnt-toast
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Re: Worst Medications
« Reply #7 on: Jul 13th, 2005, 3:24am » |
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No question - Cafergot
Really altered the timing of my CH attacks.
Made my arms and legs fee toasty/numb - looked like they belonged to disfigured and well steamed lobster.
Tom
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sandie99
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Re: Worst Medications
« Reply #8 on: Jul 13th, 2005, 4:35am » |
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on Jul 12th, 2005, 8:11pm, E-Double wrote:
and
Indomethacin: 8h banging HA on the back of my head. Don't recommend it to anyone. 
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Gator
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Re: Worst Medications
« Reply #9 on: Jul 13th, 2005, 11:05am » |
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Don't even have to think about this one:
Topomax - Made me dumber than a bag of hammers, made the attacks worse.
Tegretol - Gave me a loud and nearly maddening ringing in my ears that has never completely gone away. Did nothing for the CH.
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BarbaraD
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Re: Worst Medications
« Reply #10 on: Jul 13th, 2005, 11:13am » |
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Lithium
Valporic Acid
Neurotin
Imitrex
topamax was my lifesaver (back on it now after a sabatical)
I just hate meds
Amitriptriptalye (or however you spell that one) Couldn't wake up for weeks..... Didn't help the pain = just couldn't stay awake - Space cadet school time.
Predisone -- still trying to get the weight off.... didn't help the pain either
Lots of blood pressure stuff -- almost killed me (low blood pressure to start with).
Don't know about the rest of you -- I'm tired of being a guinia Pig, but what the hell else can we be?????
Hugs BD
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Redd
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Re: Worst Medications
« Reply #11 on: Jul 13th, 2005, 11:14am » |
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Neurontin
Topomax
Relpax
Indo
Lexapro
Verapamil
Prednisone
If need be what will I try again? All of the above if I'm desperate enough. 
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hdbngr
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Re: Worst Medications
« Reply #12 on: Jul 13th, 2005, 4:46pm » |
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Topamax - Otherwise known as the dumb blonde pill. and gave birth to two kidney stones.
Reglan - Supposed to be for nausea and HA treatment but that stuff makes you feel even more lousy.
Paxil - a quick way to gain 20 pounds and it didn't help.
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cazman
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Re: Worst Medications
« Reply #13 on: Jul 13th, 2005, 6:07pm » |
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Amitriptriptalye was like throwing gas on a fire gave me a kip 9 for three hours thought i had gave myself a permanant freaking headache scared the shit out me.
aderall killed the headache but delivered a killer rebound ha and i couldnt eat on it no appitiete
herb made it worse wich was a bummer.
relpax was good for two weeks then it just stopped working at all waste of money there at $21 a pill.
neurontin worked good to keep them away but i developed hand tremors from prolonged use wich was a posted side effect.
vicodin and percs did nothing at all but cause rebounds that sucked i got a bottle of 100 with 4 refills and they are useless.
so now i just do alternative treatment wich cost near nothing and really work with no side effects
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Karla
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Re: Worst Medications
« Reply #14 on: Jul 13th, 2005, 7:25pm » |
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Valporic Acid (Depakote) , Tegretol, Dilantin allergic problems breathing and itching.
topamax made me very stupid
I just hate meds
Amitriptriptalye caused me to have seizures
Predisone -- weight gain
verapamil - caused irregular heart beat
thorazine - makes me crazy
morphine -makes me crazy and I hear myself breath!
I agree with Charlie!!!
Don't know about the rest of you -- I'm tired of being a guinia Pig!
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Karla
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BlueMeanie
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Re: Worst Medications
« Reply #15 on: Jul 13th, 2005, 7:42pm » |
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Stadol nasal spray. Knocked me out for hours and numbed whatever side I fell asleep on. Nasty stuff.
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AussieBrian
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Re: Worst Medications
« Reply #16 on: Jul 13th, 2005, 8:12pm » |
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Idiot bloody neuro had me on Cafergot up to 12 a week, then says he wants to try me on Deseril twice daily.
They're the same thing, of course, so I'm ODing something fearful.
Woke up one morning a week later with a sprained ankle. Odd, thinks I. Next morning I wake up with the other ankle sprained and a sprained knee as well.
Pharmacist was horrified when she realised what was happening and that was just on 10 years ago - the last time I took anything for CH.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Jimmy_B.
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Re: Worst Medications
« Reply #17 on: Jul 14th, 2005, 8:18am » |
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For me...and I know it's a lot of clusterheads savior...but Imitrex makes my chest tight and gets me nauseous.
Then Topamax
and finally Stadol either nasal spray or I.M.
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clarence
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Re: Worst Medications
« Reply #18 on: Jul 14th, 2005, 8:54am » |
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Prednisone - Wicked appetite increase. I would eat dinner, and then less than an hour later, go and eat a whole pizza. When I told my doctor that I "wanted" to eat a whole pizza, she said, "Well, you're not acting on that impulse are you? Because that would be bad." I said, "Um, no. Of course not.  I gained like 20-25 pounds last summer on 2 pred tapers.
Methysergide - After only a week I couldn't remember how to eject a CD from my computer. Told the doc, she was shocked, not sure if she believed me. I told her I wanted off.
Imitrex helps, but I think I get rebounds. And I also think that its effectiveness is decreasing for me.
Starting a garden.
Casey
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bnfreeman
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Re: Worst Medications
« Reply #19 on: Jul 14th, 2005, 9:39am » |
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Same here with Topomax, any nasal sprays cause me not to be able to breathe through my nose for a long time. Lexapro caused 20 lbs of weight gain. And a long list of stuff that just doesn't work for me.
BF
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JDH
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Re: Worst Medications
« Reply #20 on: Jul 14th, 2005, 1:40pm » |
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I'm with Blue and Jimmy on this one.
Stadol NS is the nastiest stuff I've ever tried. It messed me pretty bad and I STILL had the headache.
Never went back for a second time.
Jim
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kevinchristian77
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Re: Worst Medications
« Reply #21 on: Jul 14th, 2005, 2:53pm » |
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predisone, doc kept me on it for 4 months withdrawel sucked, 2 months worth of excurriating knee and ankle pain due to the dependency
Verpamil, gave me hiccups for hours.
And Ultram, i agree with eyes- a three hour migrane right after the CH
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clusterkat
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Re: Worst Medications
« Reply #22 on: Jul 14th, 2005, 4:58pm » |
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(((((wrinkles her nose)))))
[b][/b]ELIVAL-was a zombie in pain
topomax-was flakey in pain
imitrex-was nausea's in pain (killer rebounds)
What can't be cured must be endured.
Author: Robert Burton 1576-1640, British Clergyman, Scholar
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hurtinunit
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Re: Worst Medications
« Reply #23 on: Jul 14th, 2005, 5:19pm » |
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verapamil-blood pressure down to corpse levels
indomethacin- spent my days with head in toilet puking
ultram, percocet, fiorecet, vicodin gave me massive "regular throbbing headaches- migraine like,also lots of puking
depakote never tried
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firebrix
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Re: Worst Medications
« Reply #24 on: Jul 14th, 2005, 8:02pm » |
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Prednisone
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