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   If U have CH I have a ?
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jonny
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Re: If U have CH I have a ?
« Reply #100 on: Mar 18th, 2003, 7:01pm »
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Thank you, Karen
 
I try to pose questions that everyone can ring in on and provide info for for the masses.
 
......................................jonny
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sailpappy
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Re: If U have CH I have a ?
« Reply #101 on: Mar 19th, 2003, 11:55am »
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;D ;D Even though you say your pain is in the eye itself, well that can't be possible, no nerves inside the eye!
     Actually the pain is in the Ganglia nerve that runs from just above the eye back to the Hypothalmus along with the optic nerve connected to the back of the optic nerve cord running out of the rear of the eye socket and eye ball.
     My most severe pain is in a direct line starting above my right eye and gunning backward through my skull to the nerve package at the base of the neck, It feels like a white hot sword piercing through my head from just above the eye and coming out at the base of my skull where the tendons attach to the skullcap.
     I know I have Clusters, Pappy

« Last Edit: Mar 19th, 2003, 11:56am by sailpappy » IP Logged
sailpappy
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Re: If U have CH I have a ?
« Reply #102 on: Mar 19th, 2003, 12:02pm »
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;D ;D Oh Yeah!   When I have a cluster and I look in the Mirror this is what I see !!!!!! ;D ;D   Pappy
 
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jonny
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Re: If U have CH I have a ?
« Reply #103 on: Mar 19th, 2003, 4:13pm »
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Thanks for the input and information, Pappy.
 
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michaelc
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Re: If U have CH I have a ?
« Reply #104 on: Mar 19th, 2003, 5:14pm »
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Here is a description of my type pain to add to the pile - this is incredible after suffering alone with this for so long.
 
on the kip scale mine regularly hit 10 at peak cycle - i can tell becaue i am totally disabled and helpless, unable to even talk or look at anything and cringing in pain.
 
the types of pain are numerous - i will go in ascending order of intensity
 
dull warm pain behind the right eye, with small jabs
intense Pressure behind right eye - a very solid type of pain
sympathetic pain in my teeth, jaw and face
stiff neck, sore and with a knot that gets hard
intense diffuse pain on ENTIRE right side of brain, plus the eye pain  
AND pick-like jabs of pain across my whole head (so bad they make me physically jerk sometimes) that are kip 10 x 10 for brief spells. i go to a bathroom and clutch my head, shield my eyes and rock back and forth to kill the time.  
 
During the worst parts my scalp becomes sensitive and tender, and if i let any light reach my eyes it send an almost instant wave of pain. That's how i check to see if it's going away - i peek out and see if there is a jab.
 
I sometimes sweat and get cold feeling at the same time.
grrrr .. this sucks, 2 already today! k5 and k9.
michael
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catlind
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Re: If U have CH I have a ?
« Reply #105 on: Mar 19th, 2003, 6:34pm »
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Jonny,
 
I'd have to say that 7 out of 10 times start with the worst pain in the right temple, and the other 3 out of 10 are the right eye.  When it starts in the temple it's more of a pain that bores from the right temple out the right eye, but I try to stop the pain by using the heel of my palm pressed into the right temple while my fingers press on my right eye.  I know I know more info than you wanted Tongue
 
It always amazes me how when it hits in the eye first that I feel like I can reach behind my eyeball and pull the pain out - I hate this damn beast  Angry
 
Cat
« Last Edit: Mar 19th, 2003, 6:58pm by catlind » IP Logged

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Re: If U have CH I have a ?
« Reply #106 on: Mar 19th, 2003, 7:41pm »
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Here ya go Pappy:
 

 
Charlie
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