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Topic: Botox for Chronic CH (Read 557 times) |
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Bob_Johnson
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Botox for Chronic CH
« on: Nov 17th, 2007, 12:58pm » |
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J Headache Pain. 2007 Sep;8(4):236-241. Epub 2007 Sep 24.
Botulinum toxin type-A therapy in cluster headache: an open study.
Sostak P, Krause P, Förderreuther S, Reinisch V, Straube A.
Department of Neurology, Klinikum Großhadern, Ludwig-Maximilians University, Marchioninistr. 15, 81377, Munich, Germany, Petra.Sostak@med.uni-muenchen.de.
The objective of this open single-centre study was to evaluate the efficacy and tolerability of botulinum toxin type-A (BTX-A) as add-on in the prophylactic treatment of cluster headache (CH). Twelve male patients with episodic (n=3) or chronic (n=9) CH, unresponsive to common prophylactic medications, were treated with a cumulative dose of 50 International Units (IU) BTX-A according to a standardised injection scheme into the ipsilateral pericranial muscles. One patient with chronic CH experienced a total cessation of attacks and in 2 patients attack intensity and frequency improved. In another patient with chronic CH typical attacks were not influenced, but an ipsilateral continuous occipital headache significantly improved. Patients with episodic CH did not benefit from BTX-A treatment. Tolerability was excellent. THESE FINDINGS PROVIDE EVIDENCE THAT BTX-A MAY BE BENEFICIAL AS AN ADD-ON PROPHYLACTIC THERAPY FOR A LIMITED NUMBER OF PATIENTS WITH CHRONIC CH.
PMID: 17901920 [PubMed}
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Bob Johnson
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rolo65
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I tried it 3 times with just a little difference (not worth the cost if not covered by ins), it did make it a lot easier to keep my eye glasses resting on my forehead. 
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EDHASFORDS
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God loves you and so do I......
  
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Re: Botox for Chronic CH
« Reply #2 on: Dec 3rd, 2007, 4:38pm » |
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I have had 4 treatments and now I can honestly say,
(FOR ME) it does not work! 
At first I thought it did, now I know it was other meds I was taking at the time!
Back to the drawing boards.
Ed
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CALLIE BRO.
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Sean_C
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My numbers are probably wrong, but the reults show that...............
8% PF
16% better than before
75% nothing changed
I thought that was very cool 
Be nice if 8% of the chronics here became pf for even a little while.
Thanks Bob,
Sean.................................
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Guiseppi
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Re: Botox for Chronic CH
« Reply #4 on: Dec 3rd, 2007, 5:04pm » |
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8%.......sounds small till you realize how many peoples that would be on this board!!!!! 
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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BC_Battler
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Stay strong
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Re: Botox for Chronic CH
« Reply #5 on: Dec 14th, 2007, 3:38pm » |
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So true - for the 8% that it really does work for it will seem like an absolute God-send. 
The timing for this conversation is quite interesting - a friend mentioned botox to me the other day and I thought they were nuts. I had heard of it being used for other conditions but not for CH. Then I started to do some digging and sure enough it has worked for a few lucky folks out there, so it's at least worth a look if nothing else is working.
Cheers -
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Karla
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Re: Botox for Chronic CH
« Reply #6 on: Dec 16th, 2007, 6:16pm » |
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I have used it many times over the years. It did nothing for my chronic ch but did greatly reduce the number of migraines I was having!!
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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kcopelin
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good grief
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Re: Botox for Chronic CH
« Reply #7 on: Dec 16th, 2007, 9:06pm » |
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Alrighty, having attained the status of being "in my 50's", I'm noticing more "expression lines". Is this the same botox treatment that one would use to address the issue of "expression lines"?
Or must one just ingest the poison to affect the chronic clusters, which I join the 8% in having.
Kathy
(hoping that I could possibly kill two birds with one stone)
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Words count, chose carefully.
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HeadhurtinMama
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I'll be just peachy when it quits hurting!
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Re: Botox for Chronic CH
« Reply #8 on: Dec 17th, 2007, 6:32pm » |
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I'd sign up to try it out if they'd take care of the 11's between my eyebrows...
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Here comes the rain again
Falling from the stars
Drenched in my pain again
Becoming who we are
Wake me up when September ends
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