Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Apr 19th, 2024, 2:16pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « What I'm trying now »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   What I'm trying now
« Previous topic | Next topic »
Pages: 1 2 3 4  ...  10 Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: What I'm trying now  (Read 16279 times)
Sandy_C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Burn that bra!

   
Email

Gender: female
Posts: 2585
Re: What I'm trying now
« Reply #25 on: Jul 25th, 2005, 4:18pm »
Quote Quote Modify Modify

Go ahead Nani!  Be a thread hog!.  We love you and are so glad that this seems to be helping you.  Keep us posted.  Good luck! Smiley
IP Logged

Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
BobG
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 5747
Re: What I'm trying now
« Reply #26 on: Jul 25th, 2005, 6:09pm »
Quote Quote Modify Modify

Thread hog my ass!
Post how you're doing or I'll send someone to ...........
 
Never mind.
 
Hope this thread continues for 50 more pages of good news.
 Wink
IP Logged

Stay stressed. Never relax. Never sleep. Ever.
cjc68
New Board Newbie
USA 
*




The beast always looses in the end!

  christopherjc68  


Gender: male
Posts: 46
Re: What I'm trying now
« Reply #27 on: Jul 26th, 2005, 2:11am »
Quote Quote Modify Modify

Good for you Nana! Happy to hear it is working for you!
PFDN to you!
Chris
IP Logged
LeLimey
CH.com Alumnus
New Board Hall of Famer
Great_Britain 
*****



OUCH-US - Less "ME" and more "WE"

  lelimey  
WWW Email

Gender: female
Posts: 11720
Re: What I'm trying now
« Reply #28 on: Jul 26th, 2005, 10:46am »
Quote Quote Modify Modify

on Jul 25th, 2005, 6:09pm, BobG wrote:
Thread hog my ass....

 
Interesting.. was this invented in Vegas too Bob?!  Tongue
Seriously Nani.. you can't be a thread hog when giving info people desperately want to hear. Its only by people sharing experiences that we all learn so update, update, UPDATE!!!
IP Logged





The arsehole I'm divorcing needs to get a life and stop stalking mine

nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #29 on: Jul 26th, 2005, 10:58am »
Quote Quote Modify Modify

Well, OK...
if yer gonna twist my arm...LOL
 
Well, yesterday was not as good as the 4 previous days. I actually got a k-5 hit around noon, but it only lasted 8 minutes. I chose not to try and abort it, because I wanted to see how long it would last. I shadowed a little more, too and noticed that my head wasn't feeling as clear as before. I will see how it goes today, and will dose tonight if needed. I will use a slightly larger dose of the same treatment.  
I will say that 4 virtually PF days from one dose of "medicine" is a huge improvement for me. I am very optimistic that the doses will get further apart, and that at some point, I'll just be maintenance dosing.  
hugs and pf wishes to all, nani
IP Logged

Others may come and go, but MY power is MINE.
BobG
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 5747
Re: What I'm trying now
« Reply #30 on: Jul 26th, 2005, 2:38pm »
Quote Quote Modify Modify

on Jul 26th, 2005, 10:46am, LeLimey wrote:

 
Interesting.. was this invented in Vegas too Bob?!  Tongue

Not really. Many decades ago a guy named Bob Hope (you might remember him as Leslie) moved here from England and brought it with him. Caught on pretty good too. bag
 
Back to nani's topic.
IP Logged

Stay stressed. Never relax. Never sleep. Ever.
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #31 on: Jul 27th, 2005, 12:55am »
Quote Quote Modify Modify

Well, I dosed again tonight. I used a slightly larger dose and still didn't really feel different. I had mild shadows throughout (switching sides now and then) No real hits (yet) but had occasional "stabbing" pains in my skull and eyes (also switched sides now and then). I did notice that the stereo TV sounded like I was in the audience of The Daily Show.  
I'll keep ya posted.  Smiley
« Last Edit: Jul 27th, 2005, 12:55am by nani » IP Logged

Others may come and go, but MY power is MINE.
TxBasslady
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Bass fishin' is a h00t  It's the catchin' that sux

   
Email

Gender: female
Posts: 3201
Re: What I'm trying now
« Reply #32 on: Jul 27th, 2005, 3:08am »
Quote Quote Modify Modify

Nani,
 
Good luck!!    The shrooms will be my next choice, if the Kudzu quits working.
 
I did wake this a.m. with a K-6.    First hit I've had in many weeks.   Lasted about 30 minutes....hoping it was because I didn't take the zu at the right times yesterday...and am a bit deprived of sleep.
 
Keep us posted.
 
Jean
 
IP Logged

How lucky I am... to have known someone who was so hard to say goodbye too.

Take a kid fishin
www.takemefishin.org

I adopted a Vietnam POW/MIA from El Paso, Texas!
Sandy_C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Burn that bra!

   
Email

Gender: female
Posts: 2585
Re: What I'm trying now
« Reply #33 on: Jul 27th, 2005, 8:40am »
Quote Quote Modify Modify

Nani - you go girl!  Hang in there - hope it works great for you. hug hug hug
IP Logged

Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
rextangle
Guest

Email

Re: What I'm trying now
« Reply #34 on: Jul 27th, 2005, 12:39pm »
Quote Quote Modify Modify Remove Remove

Nani,
 
I hope this works for you, you deserve it!
 
Cheers
 
Rex Smiley
IP Logged
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #35 on: Jul 27th, 2005, 11:03pm »
Quote Quote Modify Modify

Thanks all!! Well, I didn't have ANY shadows today, but did get hit twice. Both were about a k4. The first one lasted all of about one minute, the second about 3 minutes.  Smiley  Both happened out in public, so I was grateful for their very short duration. My head has been rather "empty" otherwise.  Wink  
I'll keep you all posted. hugs, nani
IP Logged

Others may come and go, but MY power is MINE.
Sandy_C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Burn that bra!

   
Email

Gender: female
Posts: 2585
Re: What I'm trying now
« Reply #36 on: Jul 28th, 2005, 3:20pm »
Quote Quote Modify Modify

Empty?  Empty?  No, don't think so.  Probably just a little bit more en "lightened", could we say. Grin  Hang in there - we're all rooting for you. hug
IP Logged

Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #37 on: Jul 29th, 2005, 12:22am »
Quote Quote Modify Modify

Some easy shadows today. A five minute k4 hit.  Smiley  
Pluggin' away...  
hugs, nani
IP Logged

Others may come and go, but MY power is MINE.
Sandy_C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Burn that bra!

   
Email

Gender: female
Posts: 2585
Re: What I'm trying now
« Reply #38 on: Jul 30th, 2005, 10:08am »
Quote Quote Modify Modify

Keep it up Nani.  Good girl!
 
If this works for you, I'll be in touch when my next cycle starts to get your "recipe".
 
Hugs
 
Sandy
IP Logged

Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #39 on: Jul 30th, 2005, 10:57am »
Quote Quote Modify Modify

Thanks Sandy. I definitely recommend this treatment  
(although I still can't say I'm in remission - yet)
I'm still experiencing some shadows and had a k7 hit yesterday that lasted about 30 minutes. It may have lasted less time had I not "wimped out" LOL and tried Red Bull. What I found was that since Red Bull tastes nasty to me I can only handle a few swigs at a time. So, I'd take a few sips, the pain would subside...only to come back in about 5 minutes. I repeated that pattern until the Red Bull and the CH were gone. In total...about 30 mins. So really, for all I know I just made a 10 minute hit last 30 mins.  Undecided
During the PF times, my head still feels remarkably clear. At one point last night I told my husband that my head felt like it had never had a HA. Or at least what I imagine that feels like.  
I'm keeping track of the activity, and it should continue to get better. Should my normal activity return I will dose with HBWR seeds. Some have experienced some relief with psilocybin, but had to dose fairly often to maintain it. Once they tried HBWR seeds, it finally provided complete remission. That, of course, is what I'm aiming for.
 
Many thanks to all of you who have provided kind and encouraging words. They mean a lot to me.  Smiley
 
hugs and PF to all, nani
IP Logged

Others may come and go, but MY power is MINE.
Sandy_C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Burn that bra!

   
Email

Gender: female
Posts: 2585
Re: What I'm trying now
« Reply #40 on: Jul 30th, 2005, 12:30pm »
Quote Quote Modify Modify

Red Bull?  As in the beer Red Bull?  Or is this something entirely different?  Please splain, Lucy.
IP Logged

Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #41 on: Jul 30th, 2005, 12:53pm »
Quote Quote Modify Modify

Red Bull is actually one of those "designer" energy drinks, Sandy. (you aren't the only one who thought it was beer, LOL) It contains caffeine and taurine (which Flo says can/may be useful in aborting). It's carbonated (which makes it impossible for me to slam it down) and to me, at least, tastes like artifically citrus flavored vitamins. Yuck. Quite a few people have reported that slamming one down at the first sign of a hit can be effective. So far, I haven't sprouted any wings.  Wink  
hugs, nani
IP Logged

Others may come and go, but MY power is MINE.
Chillrmn1
Guest

Email

Re: What I'm trying now
« Reply #42 on: Jul 30th, 2005, 3:24pm »
Quote Quote Modify Modify Remove Remove

Hey Nani,
 
So happy for you you're getting relief and especially about your one comment to your husband "my head felt like it had never had a HA."
 
May Peace and Pain Free Time Be With You,
Bob
IP Logged
LeLimey
CH.com Alumnus
New Board Hall of Famer
Great_Britain 
*****



OUCH-US - Less "ME" and more "WE"

  lelimey  
WWW Email

Gender: female
Posts: 11720
Re: What I'm trying now
« Reply #43 on: Jul 30th, 2005, 3:35pm »
Quote Quote Modify Modify

Nani, just a thought but if the carbonation is the reason you can't drink it fast would opening it and leaving it in the fridge help? It would go flat and you might be able to chug it faster. Although it might make it taste even worse!!
IP Logged





The arsehole I'm divorcing needs to get a life and stop stalking mine

nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #44 on: Jul 30th, 2005, 4:03pm »
Quote Quote Modify Modify

Helen, you are bloody brilliant, luv!! I never thought of that.  ohjez
It often concerns me that the simplest concepts totally escape me.  Embarassed
Thanks sweetie...I'm going to pop one open right now.  Kiss   hugs, nani
IP Logged

Others may come and go, but MY power is MINE.
broomhilda
CH.com Alumnus
New Board Hall of Famer
Canada 
*****




Ride it!

    witchilda


Gender: female
Posts: 2533
Re: What I'm trying now
« Reply #45 on: Jul 30th, 2005, 8:58pm »
Quote Quote Modify Modify

Nani, glad this is working for you, may it continue to bring you pf time and fingers crossed for full time remission Grin
IP Logged

Suck it up Princess...

cjc68
New Board Newbie
USA 
*




The beast always looses in the end!

  christopherjc68  


Gender: male
Posts: 46
Re: What I'm trying now
« Reply #46 on: Jul 31st, 2005, 4:10am »
Quote Quote Modify Modify

Hello Nani! just to let you know, you can orded a non-carbonated red bull from over seas, comes in a bottle and yes, it is non carbonated! I also saw some on ebay the other day! I almost ordered a case!
Take Care Sweetie!
Chris
IP Logged
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #47 on: Jul 31st, 2005, 7:02pm »
Quote Quote Modify Modify

100% PF so far today... hehehe   Grin
 
I felt a 10 second "twinge" earlier... I've decided it was a death throe from the beast. I should be fine this evening and tonight... I am usually completely "clear" by 6 PM.
IP Logged

Others may come and go, but MY power is MINE.
vig
CH.com Alumnus
New Board Hall of Famer
USA 
*****




CHit Happens

    alongivsiuolluap
WWW Email

Gender: male
Posts: 4401
Re: What I'm trying now
« Reply #48 on: Jul 31st, 2005, 9:14pm »
Quote Quote Modify Modify

fan-friggin-tastic!!!
IP Logged


never, Never, NEVER quit. -Winston Churchill
JDH
CH.com Alumnus
New Board Hall of Famer
USA 
*****




We will get by, We will survive!

    simnjue2u
Email

Gender: male
Posts: 2453
Re: What I'm trying now
« Reply #49 on: Jul 31st, 2005, 10:06pm »
Quote Quote Modify Modify

another satisfied customer? could it be?
congratulations Nani, welcome back to the real world.
 
Jim
IP Logged

9-11-01, to remember is to honor.

It's not what you know, it's what you can prove.

ECH established 1985
Pages: 1 2 3 4  ...  10 Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss