Author |
Topic: Clustermasx Review (Read 10711 times) |
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
  
Gender: 
Posts: 6458
|
 |
Re: Clustermasx Review
« Reply #100 on: Dec 20th, 2005, 9:20pm » |
 Quote  Modify
|
Sorry she's suffering but glad she's got the power to now whip it!!
It rocks!
E
|
|
 IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
  
Gender:
Posts: 2217
|
|
Re: Clustermasx Review
« Reply #101 on: Dec 20th, 2005, 10:18pm » |
Quote Modify
|
on Dec 20th, 2005, 9:18pm, cazman wrote:| she had previously tried o2 with the setup i gave her and it didnt help her, today she called me nearly jumping thru the phone .her words " daddy daddy it worked 7 min and it stopped im so happy thankyou daddy " |
|
Ahhhhh, cazman.......it's moments like yours that _almost_ make it worthwhile hanging around this festering trailer park.
Best to your kid.
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
Sean_C
Guest
|
|
Re: Clustermasx Review
« Reply #102 on: Dec 20th, 2005, 11:56pm » |
Quote Modify
 Remove
|
on Dec 20th, 2005, 9:18pm, cazman wrote:| ill go anywhere and anytime to defend this mask you just name it and im there keep up the great work. |
|
I'll second that 
Sean...........................
|
|
IP Logged |
|
|
|
pam s
New Board Veteran
I feel ... special!
Gender: 
Posts: 109
|
|
Re: Clustermasx Review
« Reply #103 on: Dec 21st, 2005, 9:59pm » |
Quote Modify
|
on Dec 20th, 2005, 9:18pm, cazman wrote:| her words " daddy daddy it worked 7 min and it stopped im so happy thankyou daddy " i sit here and to be honest i have tears in my eyes. |
|
Me, too.  I know how much it hurts to see your child suffer. Thank God she is finding relief.
|
|
IP Logged |
Pam
Let's put the fun back in dysfunctional!
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: Clustermasx Review
« Reply #104 on: Jan 3rd, 2006, 9:37am » |
Quote Modify
|
While I dreaded the arriving need to make use of my Clustermasx I can tell you that this thing is freakin' amazing.
Simply stated:
ClusterMasx 4, Cluster Headaches 0
Today's analogy, for anyone that ice skates or plays hockey, using it versus the basic non-rebreather you get from the oxygen company is the difference between a really dull pair of ice skates and a nice freshly sharpened set of blades.
So huge kudos' to Ben and all that have helped spread the word on this set-up. Hopefully the community can figure out a way to allow peope to continue to acquire these things.
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
pattik
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2404
|
|
Re: Clustermasx Review
« Reply #105 on: Jan 3rd, 2006, 9:59am » |
Quote Modify
|
Thanks for your imput, Booms...I'm happy to not need mine yet, but I rest easier when I read posts like yours.
|
|
IP Logged |
The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
|
|
|
Melissa
Guest
|
I will second what SB said. The Clustermasx makes a huge difference in the amount of time it takes to kill an attack! It's much much shorter!
I will definately vouch for it!
mel
|
|
IP Logged |
|
|
|
zanychef
New Board Newbie
i'm busting with a masx cant really go wrong can i
Gender:
Posts: 46
|
|
Re: Clustermasx Review
« Reply #107 on: Jan 6th, 2006, 10:33am » |
Quote Modify
|
bump
|
|
IP Logged |
plenty of time to sleep now me headaches aint too bad
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Clustermasx Review
« Reply #108 on: Jan 6th, 2006, 11:40am » |
Quote Modify
|
I still can't believe that it works as quick as meds.
This thing is amazing!!!
Keep it bumped!!!
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
teajay5779
New Board Newbie
make them STOP, please!
Gender:
Posts: 16
|
|
Re: Clustermasx Review
« Reply #109 on: Jan 6th, 2006, 12:14pm » |
Quote Modify
|
got a clustermasx 2 days ago and it was the best investment I've ever made
|
|
IP Logged |
What people expect to happen is always different from what actually happens. From this comes great disappointment; this is the way the world works
|
|
|
snyder
New Board Veteran
Nothing can hurt me as much as my head.
Gender:
Posts: 143
|
|
Re: Clustermasx Review
« Reply #110 on: Jan 11th, 2006, 10:44pm » |
Quote Modify
|
I got my Clustermasx a couple of weeks ago. Haven't needed any other abortives since ... no Zomig, no ice, no hot towels, nothing. This thing works for me - big time!
Bill
|
|
IP Logged |
"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: Clustermasx Review
« Reply #111 on: Jan 12th, 2006, 4:19pm » |
Quote Modify
|
on Dec 20th, 2005, 9:18pm, cazman wrote:| today she called me nearly jumping thru the phone .her words " daddy daddy it worked 7 min and it stopped im so happy thankyou daddy " i sit here and to be honest i have tears in my eyes this time they are joyful tears i want to thank you from the bottom of my heart and with great joy for making this possible |
|
I have to think that if there had been one final wish Caz could have had, it would have been to be able to help his daughter in some way, fight cluster pain. I think it's obvious from this post, one of his last, that he, as a parent, felt some peace in knowing he was leaving his daughter with some significant help.
Thanks to all those that helped him find some help, and some peace of mind.
Go in peace eric,
Bobw
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
froggy
New Board Veteran
Don't rain on my parade
Gender:
Posts: 183
|
|
Re: Clustermasx Review
« Reply #112 on: Jan 15th, 2006, 10:30pm » |
Quote Modify
|
Hi, I'm trying to buy the correct oxygen set up for my husband. I've just ordered the clustermax, but need everything else. Any suggestions? Thanks Michelle Paul
|
|
IP Logged |
froggy
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Clustermasx Review
« Reply #113 on: Jan 15th, 2006, 10:39pm » |
Quote Modify
|
on Jan 15th, 2006, 10:30pm, michellepaul wrote:| Hi, I'm trying to buy the correct oxygen set up for my husband. I've just ordered the clustermax, but need everything else. Any suggestions? Thanks Michelle Paul |
|
You might want to start with a perscription from your doctor. It should state 10-15 lpm!!! and size of tanks.
I like the E for home ( I get several) and D for my cars
If not, post a thread asking about obtaining welder's tank and oxygen.
Good luck!!
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
froggy
New Board Veteran
Don't rain on my parade
Gender:
Posts: 183
|
|
Re: Clustermasx Review
« Reply #114 on: Jan 16th, 2006, 1:02am » |
Quote Modify
|
Thanks, I've got the prescription (it's for my husband - he gets the headaches) it says, Oxygen 1 LP/L -
Don't know what it means. It doesn't seem to say anything about tank size.
|
|
IP Logged |
froggy
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Clustermasx Review
« Reply #115 on: Jan 16th, 2006, 7:25am » |
Quote Modify
|
on Jan 16th, 2006, 1:02am, michellepaul wrote:Thanks, I've got the prescription (it's for my husband - he gets the headaches) it says, Oxygen 1 LP/L -
Don't know what it means. It doesn't seem to say anything about tank size. |
|
if it says 1, that is WAY to little.
HE needs a high flow regulator!!!
This means what I stated in prior post. 15 lpm (liters per minute)
If having trouble getting that from doctor, give him this:
http://www.chhelp.org/mhni.html
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
mczoom
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 10
|
|
Re: Clustermasx Review
« Reply #116 on: Jan 19th, 2006, 7:18pm » |
Quote Modify
|
I am very new to this as my husband was diagnosed with clusters and it took us a year to find where to get the o2 - we are planning to buy the portable cylinder with regulator and non-rebreathing mask (price $280).
It has a regulator that is like a knob you can position at the lpm you need.
One question - ...how do I know what kind of a regulator is on the unit and which one is better? Please help me understand the regulators.
Also, will the cluster mask you are describing fit with any regulator?
I will greatly appreciate your help. Olga
|
|
IP Logged |
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
Gender:
Posts: 2217
|
|
Re: Clustermasx Review
« Reply #117 on: Jan 19th, 2006, 8:03pm » |
Quote Modify
|
The Clustermasx will fit any O2 regulator. Unfortunately, there is a backorder on one of the parts. They should be available in a week or so. As soon as they become available, ORDER ONE.
There are only two types of regulators used for medical grade O2 - 540 and 870:
Smaller, portable tanks take an 870 regulator. Larger, heavier tanks take a 540. Make sure either type you get has a flow rate of 15 liters per minute or greater.
Additional info available on the Oxygen page.
Best to rent this stuff until you're familiar and comfortable with O2 equipment. I have to pay for all my O2 stuff.....no coverage......the initial investment is a tad dicey.
If you purchase ~one~ portable E tank (680 liters - 870 regulator), you'll be back at the refill center every 48 hours or so.
http://www.cramerdeckermedical.com/product.php?product_id=18
Code: MECYL
Price: $54.95
Suggest an MM tank (3500 liters - 540 regulator) at about $210 delivered.
http://www.cramerdeckermedical.com/product.php?product_id=20
Code: T540MM
Price: $184.95
|
| « Last Edit: Jan 19th, 2006, 8:05pm by Mr. Happy » |
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
Gender:
Posts: 2585
|
|
Re: Clustermasx Review
« Reply #118 on: Jan 19th, 2006, 8:11pm » |
Quote Modify
|
I've got my clustermasx and my Mr. Happy 540 right now, sitting on a shelf because I haven't needed it - yet - thank God.
I want to say I can't wait to use it, but, I don't want to HAVE to use it. Just knowing it's here, gives me the strength to face my next cycle.
Thanks
Sandy
|
|
IP Logged |
Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Clustermasx Review
« Reply #119 on: Jan 25th, 2006, 10:56pm » |
Quote Modify
|
I just committed a mortal sin........
I fucking stepped on mine and it broke!!!!!!
Gonna be a long night 
Back to
A) stuffing my nostril with the hose
B) Inhaling directly from the tank
C) using an old mask
D) Trying the mouth piece
Hmmmmmmmmm?
Off to by a few more!
Eric
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
Gender:
Posts: 2217
|
|
Re: Clustermasx Review
« Reply #120 on: Jan 25th, 2006, 11:24pm » |
Quote Modify
|
No worries, Mate! This is a no brainer, and done in a few minutes.
Fastest fix -
Think baggies. BIG baggies. One, two, three gallon baggies. The thinner and cheaper, the better. Zip lock, as well. Zip it shut. Cut a corner off of one of the opposing corners, big enough for the fitting. Tape the fukker in place. O2 tube goes in the Other opposing corner. Use LOTS of tape. Done.
Next fix -
Look for a better big bag locally. Oven roaster bags are great, but they crinkle like a bowl of Rice Crispies on steroids. On the bright side, the 24# turkey size holds a LOT of O2.
Last fix -
Gimme yer address. While moving all the Masx thru the underground network, I inadvertantly wound up with a few spare large bags ripped off from some unwitting recipiant. By sending you one, maybe a few of my soul sins can be shrived.
It's just a bag.
RJ
PS: Even the emergency inhaler worked wonders -
100% O2, all the time. That's the ticket...........
|
| « Last Edit: Jan 25th, 2006, 11:34pm by Mr. Happy » |
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
Richr8
New Board Hall of Famer
It's all about today...
Gender:
Posts: 1396
|
|
What has been your experience for..
« Reply #121 on: Jan 26th, 2006, 1:12am » |
Quote Modify
|
..delivery time? I ordered mine on th e12th. Nothing yet. I must admit, just increasing to 15LPM from the 8lpm recommended by my doc has helped quite a bit.
Rich
|
|
IP Logged |
pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
Gender:
Posts: 2217
|
|
Re: Clustermasx Review
« Reply #122 on: Jan 26th, 2006, 1:51am » |
Quote Modify
|
Backordered parts is the problem.
They should be available directly.
Victory or Death.
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Clustermasx Review
« Reply #123 on: Jan 26th, 2006, 3:12am » |
Quote Modify
|
Thanks Jones but it's not the bag but the tremendously comfortable gelatinous mask itself.
on Jan 25th, 2006, 10:56pm, E-Double wrote:I just committed a mortal sin........
I fucking stepped on mine and it broke!!!!!!
Gonna be a long night
Back to
A) stuffing my nostril with the hose
B) Inhaling directly from the tank
C) using an old mask
D) Trying the mouth piece
|
|
Well I fumbled around with the mouth piece.
was to clogged to jam to hose up my nose......
Old mask did jack this round.........
Ding Ding Ding.............Right from the tank.
I recommend inservices be held for this method.
Works quick but I still can't get used to it and don't recommend any rookie attempting without a watchful eye
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: Clustermasx Review
« Reply #124 on: Jan 26th, 2006, 1:00pm » |
Quote Modify
|
on Jan 26th, 2006, 1:51am, Mr. Happy wrote:Backordered parts is the problem.
They should be available directly.
Victory or Death.
RJ |
|
Now I know you've hit the big time. You sound like the service department at Best Buy.
Not only that, you're starting to speak with a British accent 
I keep being reminded of Sam Wainwright shouting to George Bailey....."plastics man, plastics"
The Bees Knees!!!
Bobw
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss