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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Starting To Get Worried!!
        
(Message started by: Filbert on Apr 1^st, 2004, 4:39pm)

Title: Starting To Get Worried!!
Post by Filbert on Apr 1^st, 2004, 4:39pm

Perhaps its just my impression but there seems to have been a number of posts recently where its been mentioned that close family members of some people posting on here have also got CH. Now I've got three kids [10,8 and 4 years] and of course can't even imagine how I would feel if one of them went on to develop this terrible condition. How worried should I be?

Thanks Filbert

Title: Re: Starting To Get Worried!!
Post by echo on Apr 1^st, 2004, 5:06pm

I've got four children.

One with the "M" type - Severe - Female
One with CH - light - eposidic - Male

Others are fine.

Ages 27 - 13

My father had them as well. (Didn't know what they were)

Title: Re: Starting To Get Worried!!
Post by FZfan on Apr 1^st, 2004, 6:50pm

My father had them and now I do. My dad was told years ago that they can run in the family, but I believe current research indicates this is not necessarily so.

I have two kids, son 27, daughter 23. Both do not have them at this time.

Regardless, I wouldn't worry too much. Even if the worst happens, they will get much better care right from the start thanks to you.

I'm sure someone more knowledgable than me will post something about the heredity factor, I'm pretty sure I read about it being rare, but I don't remember where I read that.

Title: Re: Starting To Get Worried!!
Post by HypnoticFreddy on Apr 1^st, 2004, 7:16pm

That is all very interesting to me because I have asked my family, and NO one in my immediate family has headaches of any kind.

I am the lucky one.

I know it has been discussed here in many threads, but I think it is strange that I have no family history of headaches.

-Freddy

Title: Re: Starting To Get Worried!!
Post by Thorns on Apr 1^st, 2004, 10:09pm

One of my dad's sisters has CH (my aunt). However, her twin sister does not. [smiley=huh.gif]

My doctors have also told me that it is not hereditary.

Thorns

Title: Re: Starting To Get Worried!!
Post by joesf on Apr 2^nd, 2004, 7:18pm

I am the only one in my family who gets them.

Title: Re: Starting To Get Worried!!
Post by Charlie on Apr 2^nd, 2004, 7:24pm

Not a trace in my family. Epilepsy yes, clusters, no.

Lucky us huh?

Charlie

Title: Re: Starting To Get Worried!!
Post by Lizzie2 on Apr 2^nd, 2004, 7:36pm

There was actually a study in the works on this at Jefferson...one family with something like 5 people in it with CH or something like that. I don't know where the study stands at this point!

Even though migraine is definately considered to be genetic, nobody else in my family history has ever suffered from them. However, my cousin also has a form of chronic daily headache, but she has been very well controlled with elavil, and nothing has worked for me.

I don't understand all genetic stuff sometimes! I might be a cystic fibrosis carrier, but I don't think it would stop me from bringing a child into this world. Ya just never know what could happen...

I wouldn't worry about it until you see some kind of sign though. And just think, your kids would be a little luckier than many because you are knowledgeable about CH, and they won't have to suffer for a long time without diagnosis or treatment. NOT saying that kids who get CH are lucky at all!! Just that if they did happen to get it, they've got you. :)

Hugz,
Lizzie :)

Title: Re: Starting To Get Worried!!
Post by Bob_Johnson on Apr 3^rd, 2004, 7:05am

"How worried?"--not at all; it will simply make your life unpleasant to "worry" about something that you cannot control and does not exist. Put your energy in taking care of yourself.

If the children develop clusters, it will likely been in their late teens or later. Then you can use the energy to help them.

Title: ..Re: Starting To Get Worried!!
Post by Filbert on Apr 3^rd, 2004, 11:51am

Thanks for the replies.Certainly none of my family have CH so i'll take your advice and worry about it when I have to.
Cheers Filbert

Title: Re: Starting To Get Worried!!
Post by Turts on Apr 6^th, 2004, 3:23am

Im the lucky one in the family.

No one else has any type of headache at all, but Im sure Ive given my parents a couple over the yrs.

As others have posted, worrying is a waste of energy. Better off to just except fate if it occurs and be well armed with knowledge and understanding.

Turts

Title: Re: Starting To Get Worried!!
Post by Glideman on Apr 8^th, 2004, 6:02am

My older brother gets them, we both started at 20 years old.His 24 year old son is clear this far, the reserch I have seen sites only a 7% chance that it will pass to your children. Keep the faith and keep praying for the cure.

Title: Re: Starting To Get Worried!!
Post by sandie99 on Apr 8^th, 2004, 7:05am

I'm the only one in my family who has headaches, lucky me... My doc told me that there has been research done about if CH runs in the family, but he told me that it is not likely.

PFDs,
sandie99

Title: Re: Starting To Get Worried!!
Post by Hai on Apr 9^th, 2004, 10:43am

I am the only one in my family who gets them (and I have a BIG one)

Hai