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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> occipital nerve stimulator - help please 
        
(Message started by: M8895 on Apr 7^th, 2004, 11:09pm)

Title: occipital nerve stimulator - help please
Post by M8895 on Apr 7^th, 2004, 11:09pm

i am Chronic and my neuro has suggested the installation of the occipital nerve stimulator. has anyone on this board had any experience with this? any information would be very helpful. I'm apprehensive and also at the end of my rope. thank you. connie

Title: Re: occipital nerve stimulator - help please
Post by sgarner on Apr 8^th, 2004, 12:55am

No but my doctor is talking about a gamma knife radiation surgery.

Title: Re: occipital nerve stimulator - help please
Post by M8895 on Apr 8^th, 2004, 5:35am

I'd talk to him about this option befor that one for sure.... Connie

Title: Re: occipital nerve stimulator - help please
Post by Tiannia on Apr 8^th, 2004, 1:13pm

Talk to unsolved. He had a temp one put in. Think it is out now. But send him a PM or Email. or do a search.

Title: Re: occipital nerve stimulator - help please
Post by notseinfeld on Apr 8^th, 2004, 11:58pm

I had the block a while back and it worked like some sand castles I built trying to hold back the tide. There was 0 appreciable difference in frequency of attack, duration, or severity.

In studies I've seen since then (they're around here somewhere) the results are pretty poor but it is used just in case it can help out on a long shot. Desperate times, desperate measures.

Also, a friend of mine and sometime frequenter to this site has the Gamma Knife to no avail as well. 40 thousand bucks and the beast gave it the middle finger. I think he's on his 6th month after having the radiation and still no difference.

Hate to be the bearer of bad news but it is the truth from my direct experience.

FWIW--the procedure for the block is not really too invasive and hurts about as much as a bee sting. Probably worth a try.

BOL,

nots

Title: Re: occipital nerve stimulator - help please
Post by M8895 on Apr 9^th, 2004, 6:02am

Thank you nots