Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2005 General Board Posts >> Vibes to Cat
        
(Message started by: Svenn on Apr 27^th, 2005, 11:13am)

Title: Vibes to Cat
Post by Svenn on Apr 27^th, 2005, 11:13am

COME ON FOLKS

Im sure Cat can need some best wishes and good luck vibes on her appointment to the neurollogist today.

A braintumor is a serious thing.

The bandwagon is filled and on the way Cat

Svenn

Title: Re: Vibes to Cat
Post by Charlie on Apr 27^th, 2005, 11:16am

I'll second that Svenn.

Everybody needs vibes when dealing with these characters anyway.

I'm thinking of you kid.

Charlie

Title: Re: Vibes to Cat
Post by Redd715 on Apr 27^th, 2005, 11:17am

I got truckloads for ya Cat!

Huge Vibes..and a couple of [smiley=hug.gif] to go with them.

Title: Re: Vibes to Cat
Post by PrettyH8Machine on Apr 27^th, 2005, 11:23am

Sending out Vibes, prayers and hugs Cat.

Carl D

Title: Re: Vibes to Cat
Post by totka2 on Apr 27^th, 2005, 11:25am

Vibes sent from Hungary ... [smiley=hug.gif]

Title: Re: Vibes to Cat
Post by ShariRae on Apr 27^th, 2005, 11:26am

Positive thoughts & vibes comin your way cat...
Shari

Title: Re: Vibes to Cat
Post by TxBasslady on Apr 27^th, 2005, 11:26am

Lots of love and vibes comin' your way, Cat.

Jean

Title: Re: Vibes to Cat
Post by broomhilda on Apr 27^th, 2005, 1:00pm

Thinking of you Cat, hugs and more on over from Canada [smiley=hug.gif]

Title: Re: Vibes to Cat
Post by sandie99 on Apr 27^th, 2005, 1:04pm

((((((((((Cat))))))))))
[smiley=hug.gif]
All the best for your appointment, Cat. :)

Wishes,
Sandie

p.s. if you want to talk about it, email me. My dad and my uncle both had brain tumour...

Title: Re: Vibes to Cat
Post by Linda_Howell on Apr 27^th, 2005, 1:12pm

"Pituitary tumor. NOT debilitating."

That's what she said and I am so angry that I'm 8 hours away and can't be there. (I'm getting hit almost every hour now)

Cat...I am thinking about you and wishing I was Cathi right now, who lives there and could help you out and sight-see with you and etc. etc. etc.

Damn!

Linda

Title: Re: Vibes to Cat
Post by Alien Space Babe on Apr 27^th, 2005, 1:18pm

hugs and vibes going out to you, Cat.....

Title: Re: Vibes to Cat
Post by ghost62 on Apr 27^th, 2005, 1:28pm

BIG VIBES and monster hugs

Title: Re: Vibes to Cat
Post by Gator on Apr 27^th, 2005, 1:30pm

Big vibes and best wishes, Cat!

Title: Re: Vibes to Cat
Post by Kim Y. on Apr 27^th, 2005, 1:45pm

[smiley=hug.gif]Sending all my vibes and hugs your way you need them more then I do.

Keeping you in my thouhgts and prayers Cat...

Kim

Title: Re: Vibes to Cat
Post by nancyc on Apr 27^th, 2005, 2:08pm

THis is news to me....Sis, my thoughts and prayers are with you....love you bunches, nancyc

Title: Re: Vibes to Cat
Post by catlind on Apr 27^th, 2005, 3:06pm

Thanks for all the well wishes and vibes folks. Linda, don't fret, I won't be going to Oregon after all. Despite what the specialist in Oregon has said (that this is a serious problem and needs the attention and workup of pituitary specialists) my GP and now my neuro have decided this is incidental and are refusing me the referral and the workup. Sooooo it's the end of the line I guess.

I've got my thumb out for the next hitchhiker in the galaxy, so long and thanks for all the fish.

Love you all, many of you are very special and dear to my heart.

Guess I'm not tough enough for these folks to be this stupid.

Cat

Title: Re: Vibes to Cat
Post by Jonny on Apr 27^th, 2005, 4:01pm

:-*

Title: Re: Vibes to Cat
Post by Ronny on Apr 27^th, 2005, 4:34pm

[smiley=worried.gif]

[smiley=hug.gif]

Title: Re: Vibes to Cat
Post by nani on Apr 27^th, 2005, 4:47pm

(((((CAT)))))

Sending lots of vibes and prayers for you, hun. Hang tough. hugs and love, nani [smiley=hug.gif]

Title: Re: Vibes to Cat
Post by maffumatt on Apr 27^th, 2005, 4:48pm

prayers heading your way

Title: Re: Vibes to Cat
Post by cootie on Apr 27^th, 2005, 4:59pm

OMG....so what are they goin to do or are you back searching for answers and go from there on the next step ?? I have heard where things like this have not effected peoples lives 'let go' but when messed with it spread. I don't know the details here so am of course talkin outa my ass. Hopein you can get thru this or around this SAFELY. Yer too cool to give up Pam

Title: Re: Vibes to Cat
Post by Cathi04 on Apr 27^th, 2005, 7:34pm

Hey, Cat......Keep looking under rocks......remember the amazing things that have happened when Clusterville gets working on a problem....get some rest, gather your strength....and I'll just betcha you'll be coming to Portland soon.............
Linda,when she does,we are taking her to those gin joints.......get ready to pack your bags again, girl!

[smiley=hug.gif]Cathi

Title: Re: Vibes to Cat
Post by Leesa on Apr 27^th, 2005, 8:34pm

DONE!!!! Going up for ya Cat!!!!
Love, Leesa

Title: Re: Vibes to Cat
Post by Sean_C on Apr 27^th, 2005, 8:50pm

Mega everything going your way Cat :-/

Sean.........................

Title: Re: Vibes to Cat
Post by Ree on Apr 27^th, 2005, 11:26pm

Prayers to our Lord in your name Cat... love to you. Be as strong as you are...... Ree

Title: Re: Vibes to Cat
Post by Lizzie2 on Apr 27^th, 2005, 11:30pm

on 04/27/05 at 15:06:58, catlind wrote:

Damn Cat.... I wish they would just listen to you and DO something!!! Despite the fact that it's true most pituitary tumors/masses/cysts/etc are usually harmless, it STILL could be part of the problem, given what you've told me on the other thread about all your symptoms. That pisses me off that they won't help you. :( I wish you could get a new doc...without having to go through the VA. :(

I'm not kidding when I say we have the most kick-ass neurosurgeon up here - as far as bedside manner goes. And I'm pretty sure he's an excellent neurosurgeon. Wish I could just smuggle you in to him.

My neuro told the NP to tell me that he's not even doing a dedicated sella study of the pituitary to determine if my pituitary mass is a cyst or a microadenoma (mine is 5mm)...he's just watching it for 3 more months, and I'm supposed to get a blood test for my prolactin levels.

Just out of blind curiosity, did they test prolactin levels??

Did you ever get an answer about the calcification???/

Hugz and vibes sis,
Lizzie

Title: Re: Vibes to Cat
Post by taraann on Apr 27^th, 2005, 11:42pm

http://www.geocities.com/shangrala_shangy/hugguy.gif

You'll be in my thoughts hun.

Title: Re: Vibes to Cat
Post by catlind on Apr 28^th, 2005, 6:31pm

Ok, it seems we may have actually found a way to work around the system by using the system.

Lizzie, the pituitary specialist at OHSU has already reviewed my imaging reports and files. His opinion is that there is definitely pituitary disease of some form going on, however he can't tell me what kind until they have a full and complete work up and assessment done - and it has to be done by a pituitary specialist as many of the 'regular' tests will not show certain kinds of pituitary disease.

The problem is that my GP CAN'T give me a new referral to OHSU because the local base hospital policy is that they will not pay for ANY out of area specialty appts. If my GP were to give a direct referral, the hospital commander would deny, regardless of what Tricare would or wouldn't allow.

We have been able to get Tricare to change an existing referral I have with a local specialist, to the doc at OHSU. OHSU is part of the tricare network, so they don't care about changing it. There is no way to get an appt with a provider outside of a) the tricare network and b) outside of the triwest region.

So, as soon as he gets the letter from Tricare listing him as the specialist, we can go ahead and book the appt, and then we will just have to figure out a way to pay to fly out there and stay there. That is going to be the hardest part, since it's possible I will need more than one trip out there. We've talked about it, and we will probably end up selling the house and lots of other things (anyone wanna buy some children? only slightly used...) in order to pay for this.

That may seem crazy to people, but there is a very real possibility this could result in death if it isn't resolved. It nearly cost my life last year when I had the intestinal paralysis - we now know that and many other things (possibly even the cardiac issues) are a direct cause of the pituitary disease. So, to save my life, in more ways than one because I don't choose to hang around without quality of life, I suppose it's worth selling the house and losing much of what we've worked for. It's not much good having a house and an education etc. when I could end up not being around to enjoy it.

Sooooooooooo if all of you work your Clusterville miracle magic, then maybe, just maybe we can get this appt to go through.

Thanks everyone for the support, you have no idea how grateful I am to have everyones vibes, prayers and support.

Cat

Title: Re: Vibes to Cat
Post by E-Double on Apr 28^th, 2005, 6:37pm

Tons of hugs Cat!!!

Best of luck,

E

Title: Re: Vibes to Cat
Post by Svenn on Apr 29^th, 2005, 4:37pm

you got it Cat

sending vibes as long as it takes

Svenn&Bente

Title: Re: Vibes to Cat
Post by Kim Y. on Apr 29^th, 2005, 4:55pm

Keeping you in my Prayers Cat...

Sending vibes your way. [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Kim

Title: Re: Vibes to Cat
Post by Woobie on Apr 29^th, 2005, 5:06pm

Oh Cat!!!!!!!! :-* :-*

It will work out - I just know it!
Cluster vibes really work - I've seen it!

Sending you some vibes.. cuz I expect you to be at DavCon 06! ;;D

HUGS! [smiley=hug.gif]
tina

Title: Re: Vibes to Cat
Post by Mastifflvr28 on Apr 30^th, 2005, 12:06am

Biggest HUGE vibes going up to you Cat.
Please take care of yourself and hopefully
cluster vibes will be another miracle!
Love ya,
Mast

Title: Re: Vibes to Cat
Post by Ruth on Apr 30^th, 2005, 10:21am

Hi there,
I sure hope you get to come out here and get the help you need, sounds like a big mess and my prayers are with you. Let me no if there is anything I can do to help.

Ruth