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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> another newbie
        
(Message started by: jeremy on May 11^th, 2004, 1:24pm)

Title: another newbie
Post by jeremy on May 11^th, 2004, 1:24pm

Hello there fellow sufferers,

My story:

I'm 47, my first cluster was about 25 years ago. They were very bad originally, mis-diagnosis, etc. My father ( a Dr. ) was a regular migraine sufferer in his youth so I spent years going down the wrong avenue. I actually found out what my problem was years ago myself. My father had given me a book to read by the brilliant Oliver Sacks who funnily enough had written a book on migraine. In the book, he had a short chapter titled ' migraneous uralgia' ( sp?) which perfectly described my cluster headaches. To this day it is one of the best descriptions I have read, complete with gory details.

Anyway, it didn't really help as I still wasn't being given the right treatments for me. I remember sansert, beta-blockers, all kinds of things that made little or no difference.

Over the years I've had clusters on and off, I even had a seven year remission which was terrific. The worst was in 1985 when I had a year of one or two a day with no effective treatment - pure hell - if there is anything I could say to people who are currently in a similar state to what I was in back then, I have nothing but huge respect for their strength and suffering.

I'm back in a cluster now. I guess I'm one of the lucky ones because when I discovered Imitrex three clusters ago, I couldn't believe it. For me it is almost a miracle. I almost weep with delight when I feel the pain back-off from maximum to nothing in one minute flat, despite the depression that follows.

Just thought I'd stop lurking and say hello.

Canucks in '05.

Title: Re: another newbie
Post by Margi on May 11^th, 2004, 3:22pm

Hi Jeremy and welcome.

Have you looked into oxygen therapy? It's also been a Godsend for many.

C'mon over and visit us at O.U.C.H. Canada - we started our website in January of this year and have a number of Canadian clusterheads there now. We have a message board like this one and, uh, we've also got a hockey pool on the go!! http://clusterheadaches.ca

GO FLAMES GO!! Canucks in '05, indeed! ::)

Title: Re: another newbie
Post by Gator on May 18^th, 2004, 2:06pm

Well, just don't stand around out there looking in the windows, wipe your feet and come on in.

Welcome to the website.

Gator