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        New Message Board Archives >> 2006-2007 Getting to Know Ya Posts >> new in here
        
(Message started by: Hurtssobad on Jun 26^th, 2006, 5:34am)

Title: new in here
Post by Hurtssobad on Jun 26^th, 2006, 5:34am

I am a 36 year old male, who has had what the doctor says is cluster headaches. I've had it for 3 months now. I can't even count the amout of drugs they have tried on me. (has anyone tried botox)?

Title: Re: new in here
Post by Bob_Johnson on Jun 26^th, 2006, 6:09am

Medical reports indicate that Botox helps few folks with Cluster.

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)

http://www.brightok.net/~mnjday/chtherapy.pdf

Title: Re: new in here
Post by Hurtssobad on Jun 26^th, 2006, 6:13am

thanks!

Title: Re: new in here
Post by LeLimey on Jun 26^th, 2006, 7:03am

Hi Hurts
I'm sorry you're suffering, if you can please list what you've tried and dosages and lets see if we can't help you along a bit :)
Have you ever tried Oxygen?
Welcome to your new home from home!
Helen

Title: Re: new in here
Post by Richr8 on Jun 28^th, 2006, 12:31am

Hi hurts. Welcome! When you get on to the Oxygen, make sure yu get a non-rebreather mask like this one:

http://homepages.nildram.co.uk/~tritech2/clusterx/index.html

..It will greatly increase the effectiveness of the O2. As far as what we take, we are all different, but it's all covered in the link provided by Bob. My personal cocktail si 480mg of Verapamil as a preventive, Prednisone tapers to break the cycle, loads of O2 as an abortive. Of course, you will have to help your Doc decide what works best for you when you go in loaded with information. We find that most docs have a lot to learn about CH and don't mind sharing info..

Nice to meet you and I hope to hear more about you soon.

Title: Re: new in here
Post by Jasmyn on Jun 28^th, 2006, 4:23am

Welcome here Hurt.
On the left hand side you will find some good information. Read as much as you can here and compare it to what you have tried already. Be armed with knowledge the next time you go and see your doc.

Ask away, this place and people have years of collective knowledge and it's a great place for support.