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        Cluster Headache Help and Support >> Cluster Headache Specific >> Meds Question
        
(Message started by: hotprestwich on Jan 23^rd, 2008, 1:16pm)

Title: Meds Question
Post by hotprestwich on Jan 23^rd, 2008, 1:16pm

One thing im wondering is when people are out of cycle
do they keep on taking preventitive meds??
wondering if there is a need to, i know its different for everybody, but i myself have never taken any meds apart from the 02 and coffee, i managed a 4 year remission, this cycle started 2 days before christmas,
and now seems to be tapering down, id hate to jinx it but i managed to sleep alll the way through last night, first time this cycle, the night before woke up a 3am with slight headache 02 kicked its ass within minutes, but up untill then i was getting 3-4 a night,
could this mean my cycle is nearing the end? its been 3 and a half weeks, and 10 days ago i was getting hit high on the kip scale, now there pretty low, anyone else experienced this? i know it morphs into different things,
i guess ill find out tonight, although my last cycle the beast only came every other night and thankfuly gave me days off here and there, thats not the case this cycle, my questions are a bit jumbled up and im sorry for that, im learning to try and not think about it when im pain free, thats a hard step but i gotta enjoy every pf moment.
pf wishes to everyone
Dave

Title: Re: Meds Question
Post by thomas on Jan 23^rd, 2008, 1:41pm

on 01/23/08 at 13:16:36, hotprestwich wrote:

One thing im wondering is when people are out of cycle
do they keep on taking preventitive meds??

No. No way, uh-hu, nada. Except for melatonin which I do use to help me sleep.

Title: Re: Meds Question
Post by hotprestwich on Jan 23^rd, 2008, 1:44pm

Thanks, i was just curious,

Title: Re: Meds Question
Post by chewy on Jan 23^rd, 2008, 1:47pm

on 01/23/08 at 13:41:36, thomas wrote:

No. No way, uh-hu, nada. Except for melatonin which I do use to help me sleep.

Ditto

Title: Re: Meds Question
Post by Ghost on Jan 23^rd, 2008, 2:28pm

Keep you wits and pray the beast goes elsewhere. good advise here and plenty of support too! stick around if it goes and help others if you can it would be appreciated.

Mike

Title: Re: Meds Question
Post by hotprestwich on Jan 23^rd, 2008, 2:32pm

I will hang around and offer support for all,
hopefully one day we will find somthing that kills the beast and not just kicks its ass [smiley=headbanger.gif]

Title: Re: Meds Question
Post by Guiseppi on Jan 23^rd, 2008, 3:58pm

I will hang around and offer support for all,

And that sir, is what makes this the beautiful place that it is! ;)

Guiseppi

Title: Re: Meds Question
Post by sandie99 on Jan 24^th, 2008, 8:41am

Well, it's been a while since I've been on meds, but the last time I took that route I stayed on meds a month after my last hit. I was chronic, so I didn't want to take any chances. But after that month, I slowly tapered meds away.

Sanna

Title: Re: Meds Question
Post by Guiseppi on Jan 24^th, 2008, 10:46am

I will add one thing though.... ;;D

While not specifically a "preventative med" per se, year round I follow this regimen. Daily Magnesium/calcium supplement and a daily Vitamin B-2 supplement. (The B-2 makes you pee really bright orange...don't let it spook you!) It was suggested by my neuro several years ago. Since starting this routine I feel I've reduced the number of cycles and the intensity. Several on the board have posted similar results, inexpensive so certainly worth a shot.

Guiseppi

Title: Re: Meds Question
Post by hotprestwich on Jan 24^th, 2008, 11:17am

Hey thanks for the suppliment advise,
never tried it but will give it ago, beast hasnt left yet just gave me a day off he was back last night, with a mild one, but this morning whack still shadowing from 6am this morning coffee isnt doing anything the 02 aint doing anything arghhhhh feeling frustrated [smiley=huh.gif]

Title: Re: Meds Question
Post by Bob_Johnson on Jan 24^th, 2008, 11:29am

For people who have frequent activer periods some docs keep them on Verapamil 100% of the time. Most folks come off after a few weeks after their last attack.

Title: Re: Meds Question
Post by tony-PA on Jan 28^th, 2008, 4:11pm

when im in remission I don't take anything, try not thinking of the beast, and make up with the missed and dreamed wodka :P
also a friend of mine keeps taking 120mg p/d out of cycle. but in my opinion this strategy may not let you feel the small signals of a coming cluster.

Title: Re: Meds Question
Post by brewcrew on Jan 28^th, 2008, 4:25pm

on 01/24/08 at 10:46:59, Guiseppi wrote:

(The B-2 makes you pee really bright orange...don't let it spook you!)

Note to self: Don't let Guiseppi use the head at our house.

Title: Re: Meds Question
Post by Guiseppi on Jan 28^th, 2008, 4:53pm

[smiley=smartass.gif]

I used to say it made your pee look like Tang....but that shows my age since a whole genereation of kids have no idea what Tang is!!!!

Guiseppi