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        Cluster Headache Help and Support >> Getting to Know Ya >> old newbie
        
(Message started by: snusan on Jan 15^th, 2008, 2:18pm)

Title: old newbie
Post by snusan on Jan 15^th, 2008, 2:18pm

hello to all ...haven't been here for a while...some remember me as the nose or 'nasus'...the attacks are back for the winter ...looking for help with ssi and dsi appeal I have pending...any tips or magic words maybe to help?

Title: Re: old newbie
Post by jace77 on Jan 15^th, 2008, 3:45pm

we too are old newbies, joined in 2000 and forgot the log on since we haven't been around for a year or two. As for SSI, you have to use words that are factual rather than subjective. Sorry to say, pain is subjective, however depression from the pain can be real and factual, which may be the course you need to take. http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm
this is the list all the conditions that they will approve for. They typically only see things in black and white, no areas of gray, so choose words wisely, replace phrase that start off with "I feel" with a statement. ex: It feels like a hot poker is stabbing me in the eye ~ I am unable to focus/see out of the eye due to the vessels/nerves constricting. Hope this helps

Title: Re: old newbie
Post by imfareware on Jan 15^th, 2008, 6:47pm

Hang in there! Its almost spring!

Title: Re: old newbie
Post by Jonny on Jan 15^th, 2008, 7:02pm

Sue, is that you?

I never forget a nose! ;)

Title: Re: old newbie
Post by snusan on Jan 15^th, 2008, 7:23pm

Thank you guys for your replies. Yes Jonny it is me. Jace your advice is well taken. I plan to get a lawyer to represent me when my hearing is set. I really don't want to go through another appeal and all the waiting that comes with it. I will hang in there imfareware. I do rather the cycles in the cold weather however because heat triggers big time for me.