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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> clustermasx
        
(Message started by: mrs mac on Feb 6^th, 2006, 2:02pm)

Title: clustermasx
Post by mrs mac on Feb 6^th, 2006, 2:02pm

hey guys, just wanted to share this with you all!!

Andy has had one of Ben's masks for a while, but didn't think it was for him!!!

i eventually persuaded (nagged ;) ;;D) him to try it again with the mouth piece!!

he did so on Saturday and aborted 5 attacks successfully with them, and in half the time of the "standard" masks!!!

i am so glad that he gave it another go, and hopefully it will continue to help him

cheers

mrs mac xxxxxx

Title: Re: clustermasx
Post by seasonalboomer on Feb 6^th, 2006, 2:12pm

on 02/06/06 at 14:02:16, mrs mac wrote:

this is important to note for those who have tried oxygen in the past with spotty success. ClusterMasx "ain't your momma's oxygen mask". The O2 delivery with the ClusterMasx is worth reconsideration of O2 for you folks.

scott

Title: Re: clustermasx
Post by Margi on Feb 6^th, 2006, 2:18pm

and it looks like Ben is able to fill some orders again, too! I got email from him last week that he is back at the helm.

Title: Yes, he shipped..
Post by Richr8 on Feb 6^th, 2006, 2:28pm

... mine!

Title: I must add, in his e-mail
Post by Richr8 on Feb 6^th, 2006, 2:31pm

...to me he did say he ws going to be able to fill, "some" orders. You should probably check with Ben at Clustermask if you have an order pending or have yet to order.

Sorry

Rich

Title: Re: clustermasx
Post by Margi on Feb 6^th, 2006, 2:50pm

oh, sorry! I must have misintrepreted the mail then. Ben, I apologize if I've jumped the gun here.

Title: Re: clustermasx
Post by Dragnlance on Feb 7^th, 2006, 11:03pm

Please explain the Clustermasx. I am one of those that had variable success with O2. I am interested in finding other options.
Thanks

Title: Re: clustermasx
Post by Mr. Happy on Feb 8^th, 2006, 12:16am

The Clustermasx (http://clustermasx.com) is an IMPROVED Non-Rebreather Mask, nothing more yet Everything more. All NRB's share 3 things: a bag, a diaphragm flow connector, and a face mask. The size of the bag is variable, and up to end user discretion. The diaphragm flow valve (or Tee Valve #1953 on the Cmasx), is constructed with better diaphragms, not the flimsy things found in a $2 NRB mask. The actual face mask is an EMT style resuscitation mask. It has an air filled reservoir that allows for form fitting to the face, no leakage.
Technique is everything with O2 therapy. When used properly, the Clustermasx (http://clustermasx.com) eliminates many of the end user errors that cause failure of O2 therapy.
Currently unavailable in the UK. Some assembly required.

Clustermasx. (http://clustermasx.com) Get on the list.
RJ

Amend: To date, the Cmasx is not an approved, certified NHS/FDA approved product. That's coming shortly. It's still under Rube Goldberg classification. Till then, it's an idea from a CHead that wanted to make a difference, and help fellow CHeads huff O2 with positive results. There is no corporation, no profit seeking margins, no underlying agendas........just a really good idea by one man that gave a damn. I had the same idea several years ago, but apparently, old Benji Boy is a whole fucking lot smarter than me.
Oi......

Title: Re: clustermasx
Post by Dragnlance on Feb 8^th, 2006, 10:27am

Thank you!! that is the info I was looking for!

Title: Received my mask
Post by Richr8 on Feb 8^th, 2006, 11:38am

I finally received my mask and I have one question about the mouth piece. I am assuming at this point that while using the mouth piece, you place it in your mouth during inhalation and remove for exhalation. The face mask is not used. Correct?

Sorry, a little confused looking at it. If the mouthpiece is so effective, then why both?

Is this a hijack? Sorry.

Title: Re: Received my mask
Post by Mr. Happy on Feb 9^th, 2006, 1:12am

on 02/08/06 at 11:38:31, Richr8 wrote:

I am assuming at this point that while using the mouth piece, you place it in your mouth during inhalation and remove for exhalation. The face mask is not used. Correct?

You have chosen..........Well.
Personally, I don't get the mouthpiece thing......the mask was impressive enough, unless one's face was no longer bilaterally symmetrical due to genetic defect, accident, or psychosis. Claustrophobia factor not included.
The mouthpiece will work, but put a clothes pin on your nose, because you're going to cheat.

100% O2, all the time.
RJ

Title: Re: clustermasx
Post by Melissa on Feb 9^th, 2006, 10:20am

I use the mouthpiece because my nose is in a ton of pain when I'm getting hit. I also don't need to remove the mouthpiece on exhalation because I can breathe out right through the mouthpiece due to the rubber thingy preventing outside air getting in when I inhale again.

I don't need no stinkin clothespin either. :P ;)

Title: Re: clustermasx
Post by Jenny G on Feb 11^th, 2006, 1:11pm

I just ordered mine yesterday. How long does it usually take to get to the USA from there?

Title: Ben put mine in the mail...
Post by Richr8 on Feb 12^th, 2006, 9:17am

...on Jan 28th, and I received it on February 6th. I live in Tucson, AZ. I know a fellow sufferer that lives in the NE whose mask was shipped on the same day that received his on the 2nd.

Good luck with yours!

Title: Re: clustermasx
Post by gardengal on Feb 24^th, 2006, 6:58pm

can you really use welding oxygen? My dad has a pulse oxygen set up. I don't think that will work, will it?

Title: Re: clustermasx
Post by pubgirl on Feb 24^th, 2006, 9:26pm

on 02/09/06 at 10:20:11, Melissa wrote:

I'm with you Melissa. Tried both and prefer the mouthpiece, also like biting it and groaning, reminds me of childbirth ;;D

Wendy

Title: Re: clustermasx
Post by SteveY on Mar 3^rd, 2006, 3:26pm

on 02/24/06 at 21:26:43, pubgirl wrote:

I'm with you Melissa. Tried both and prefer the mouthpiece, also like biting it and groaning, reminds me of childbirth ;;D

Wendy

Wuss

Childbirth, minor pain that :D

Steve

Title: Re: clustermasx
Post by Ghost on Mar 3^rd, 2006, 3:38pm

on 02/24/06 at 21:26:43, pubgirl wrote:

I'm with you Melissa. Tried both and prefer the mouthpiece, also like biting it and groaning, reminds me of childbirth ;;D

Wendy

:o ;) [smiley=laugh.gif]

Sorry Guys I couldn't resist!

Title: Re: clustermasx
Post by pattik on Apr 6^th, 2006, 6:52am

BIG BUMP!

I'm smiling here...just used my clustermasx and one of Mr. Happy's supercharged regs for the very first time. I had the beast marching out the door in 6 minutes flat. I still can hardly believe it. Huge thanks to Ben and Randy.

;;D Patti

Title: Re: clustermasx
Post by Melissa on Apr 6^th, 2006, 8:46am

on 04/06/06 at 06:52:27, pattik wrote:

Isn't it awesome??? That is so great!!! ;;D

Title: Re: clustermasx
Post by Richr8 on Apr 6^th, 2006, 9:49am

I have only had shadows since I received my clustermask (CM) since miy cycle was wrapping up at that time. The good news is that the CM has knocked down ALL of my shadows within 15 minutes. Prior to receiving the CM, using O2 and my old rebreather mask on the shadows was a crap shoot at best.

I am almost looking forward to my next cycle to try it out on the big boys. NOT! ;;D

Rich