Author |
Topic: I am so low that the curb is up! (Read 1605 times) |
|
NancyMcFree
Guest
|
 |
Re: I am so low that the curb is up!
« Reply #25 on: Aug 12th, 2002, 11:50am » |
 Quote  Modify
 Remove
|
You know big guys do cry .... maybe if you could explain that to your son he would feel better. Keep trying to find a medicine that works for you .... and in the meantime know that your son loves you. He just doesn't love the disease you have ... but heck we don't love it either !!!!!!!!!! Take care ..... praying for PFDAN for you so you can sit with your son and really enjoy life !!!!!
|
|
 IP Logged |
|
|
|
markdavid
New Board Veteran
I love YaBB 1G - SP1!
Gender: 
Posts: 105
|
|
Re: I am so low that the curb is up!
« Reply #26 on: Aug 12th, 2002, 2:05pm » |
Quote Modify
|
My offeron the oxygen still stands , no catch ...... up untill a month ago a could find nothing that worked and I know how bad it can get... That offer is good for any body any where , I'm sure their are plenty of people on this site who would do the same for any one else who'd ask.
PFDAN's
markdavid
|
|
IP Logged |
Mark Hoebener
|
|
|
jonny
Guest
|
|
Re: I am so low that the curb is up!
« Reply #27 on: Aug 12th, 2002, 2:56pm » |
Quote Modify
Remove
|
You got that right, Mark.
Most people here will bend over backwards for another CH'er or anyone in general.
Your a good dude offering what you have.
..............jonny
|
|
IP Logged |
|
|
|
Scotty_Dog
New Board Newbie
Say, what is that strange feeling in my ARRRGGG!!!
Gender:
Posts: 48
|
|
Re: I am so low that the curb is up!
« Reply #28 on: Aug 13th, 2002, 6:07am » |
Quote Modify
|
;D hanks markdavid, I apreciate the offer, but I am going to hang tough and wait to see the Neuro first to make sure it is safe for me with my high blood presure and other medical conditions.
The last two days have been a real bare to deal with, but my wife has taken our son to her parents to stay for a few days to give me some space and let me sleep whenever I get a few minutes peace from the beast.
I am trying to keep a brigth outlook on life, and last night i got about 2 hours of sleep, so I am feeling much better, (if you could call it that)
Thanks so much to all of you and I pray for PFDAN for all of you too.
Sincerely,
Scotty_Dog 
|
|
IP Logged |
Doc says,
"the pain is all in your head"
|
|
|
markdavid
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 105
|
|
Re: I am so low that the curb is up!
« Reply #29 on: Aug 13th, 2002, 8:50am » |
Quote Modify
|
HANG IN THERE , I'll be thinking of ya
I hope the beast gives ya a fucking break
PFDAN's 
|
|
IP Logged |
Mark Hoebener
|
|
|
Mistory
Guest
|
|
Re: I am so low that the curb is up!
« Reply #30 on: Aug 13th, 2002, 9:04am » |
Quote Modify
Remove
|
I am new here, too; I came on thinking I would get some good, solid information on this subject; I didn't expect to find myself crying! I can't believe the outpouring of concern I have witnessed in such a short time!
I wish I could add something more helpful; my own kids have watched me suffer migraines, and like some of the others here, I let them "help," which seemed to comfort them. Now they are teenagers, and my headaches have entered a whole new phase; I was surprised to discover my nearly grown kids are scared to death! Their fears are more sophisticated now; they are convinced I have a tumor or something more mysterious but just as fatal. Perhaps worse, my 16 year old is afraid this is hereditary.
I at least learned from this site that cluster headaches generally are not, a happy fact I will pass on to her as soon as she wakes up.
My only real suggestion, therefore, is to keep reading, and maybe someone out there will have the right answer for you.
|
|
IP Logged |
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: I am so low that the curb is up!
« Reply #31 on: Aug 13th, 2002, 10:00am » |
Quote Modify
|
Newer studies are showing somewhat of a heredity factor in cluster headaches. I believe the last article I saw said that a decendant of a clusterhead is 7 times more likey to get CH than the general population.
I think I have it filed away in my "things I need to add to the OUCH Library" folder at home. I'll see if I can find it tonight.
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
Scotty_Dog
New Board Newbie
Say, what is that strange feeling in my ARRRGGG!!!
Gender:
Posts: 48
|
 |
Re: I am so low that the curb is up!
« Reply #32 on: Aug 15th, 2002, 11:44pm » |
Quote Modify
|
Thanks again to all of you. I went to a Nuero who is scared to death to treat me, (HaHA). She is young and is afaid to try and treat me with high blood presure on top of the CH. She is from the old thinking school that says that headache should not be treated with pain killers and they never perscribe them!
I found that kind of funny, and after I explained that, "if I break your arm and grind the raw broken bones together for about an hour or 2, all you can take is over the counter meds for it, and about an hour later I do it again, and again, and again....She perscribed me 60 Tylox to get me through till my appointment with the CH doc I found through a fellow Cher here on this site.
Seams that sometimes you just have to make the pain real for them. (She also called them CLuster Migrains, ARRGG!) I informed her about the reality of what they are so maybe the next CHer she sees will get a far hearing.
And to think she makes about $140K for her ability and knowledge?????
Hanging tough and I am going to make it through thanks to all of you guys and gals.
May we all have PFDAN soon.
God Bless
The Scotty_Dog
|
|
IP Logged |
Doc says,
"the pain is all in your head"
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: I am so low that the curb is up!
« Reply #33 on: Aug 16th, 2002, 12:02am » |
Quote Modify
|
I'm not sure I understand something here. Why would you want pain killers when there are so many other options? Even with high blood pressure you could still have used O2, at the very least. And that aborts the pain rather then masking it. And with high blood pressure it probably would be better for you then the oxycodone you got her to prescribe for you.
|
|
IP Logged |
|
|
|
gammavh
Guest
|
|
Re: I am so low that the curb is up!
« Reply #34 on: Aug 16th, 2002, 12:53am » |
Quote Modify
Remove
|
Hi Ted:
What about if you can't get oxygen? I sure can't get it here in the UK. Surely taking pain meds until you can see a CH doctor is better than nothing at all?
Just a thought.
gam
|
|
IP Logged |
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: I am so low that the curb is up!
« Reply #35 on: Aug 16th, 2002, 6:42am » |
Quote Modify
|
Hi Gam. I was talking about this one case in particular and not everyone. But, unless triptans and the like don't work for people I still wouldn't understand why someone would rather take something that masks the pain instead of something that aborts it.
|
|
IP Logged |
|
|
|
gammavh
Guest
|
|
Re: I am so low that the curb is up!
« Reply #36 on: Aug 16th, 2002, 6:53am » |
Quote Modify
Remove
|
Hi again Ted:
I understood that you were talking about Scotty, but I wasn't sure if he had O2 available to him or not. That's what I meant by taking pain meds. Bless his heart I do hope he gets to see his CH doctor soon.
My new family doc won't even consider O2 until all other drugs have failed to prevent it. sighhh He just took me off Sodium Valporate and put me on Sanomigran. But told me it could take up to a month to work!!!
Thank goodness for Zoimig even if they will only give me six at a time and in the cycle I'm in that'll last me a whole three days. And I can only take 2 in a 24 hour period. So the rest of the time I take any pain meds hanging around the house. There are times like this morning I could pray that I could try O2.
Even when I lived in the USA I couldn't get my insurance company to approve the O2 because it wasn't a proven help/cure for CH's. Go figure.
gam
|
|
IP Logged |
|
|
|
catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
 
Gender: 
Posts: 3433
|
|
Re: I am so low that the curb is up!
« Reply #37 on: Aug 16th, 2002, 9:18am » |
Quote Modify
|
Ted,
I have extremely low blood pressure and heart palpitations, and the triptans are contraindicated in anyone who has issues with b/p or the heart. They tried them on me with me in the ER and was there 3 hours waiting for things to settle down and it didn't help the headache LOL. As a result, the think it may have triggered a heart attack of sorts or pericarditis (I waited a week with the chest pain before I went to the doc *bonk self*.) Scotty sounds alot like me in that I can't take any of the 'normal' CH meds because of that. I take Tylox to help me get through the attack without killing someone hehe. Now that I have my O2 tank the narcotics are just there to help if the O2 can't eliminate a kip 8-10.
Once you see the CH doc Scotty get the O2!!!!!!!! That seems to be the thing that works best for the most people.
Cat
p.s. Ted I'm not trying to say you don't know what you are talking about or anything, I know from your many posts you are knowledgeable just wanted to relate the info from my own experience.
|
|
IP Logged |
A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: I am so low that the curb is up!
« Reply #38 on: Aug 16th, 2002, 9:35am » |
Quote Modify
|
Hey Cat. Yeah, that's why I just mentioned the O2 for him since he has high blood pressure. As you just mentioned yourself it's your first line of defense.
Oh, and thanks for saying those nice things about me. I guess Lincoln was right. You can fool some...
|
|
IP Logged |
|
|
|
catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
Gender:
Posts: 3433
|
|
Re: I am so low that the curb is up!
« Reply #39 on: Aug 16th, 2002, 9:39am » |
Quote Modify
|
Ted, anyone who uses the jet and tower for their pic post is knowledgeable in my books Lest we forget.
Besides, I'ma blonde canadian cat transplanted to the US, and oh yeah , something about a blithering or blundering idiot in there somewhere too! LOL
Cat
|
|
IP Logged |
A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss