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(Message started by: firebrix on Dec 18th, 2002, 6:37am)

Title: general anaesthesia as trigger
Post by firebrix on Dec 18th, 2002, 6:37am
Hi guys
We made it back ok. Mopar is cool, but when he awoke from the general anaesthetic, he was in the middle of a Kip 10 attack. The anaesthetist discussed this with us after she saw the extent of Mopar's pain. It actually freaked the staff of the private hospital right out and they immediately gave him his Imitrex injector and 10mg IV Morphine, which immediately relieved the prob. Well, within ten minutes.
She said that it was accepted that anaesthetics cause dilation of blood vessels - especially in the brain,which could induce cluster attack and that a local would've been a better option. Wish they'd told us before! But better late than never - at least we can tell you guys.
The staff were quite gobsmakt. Had never seen a CH attack before and were ever so willing to suggest meds like carbamazapine (been there, done that) Epilim (same) and other migraine meds. However when we explained, ( well armed by info from this site) they were keen to listen, which is all good. One of the theatre nurses asked for the URL of this site - and said her brother in law suffered from CH!
Small world
but I'd hate to have to paint it. LOL ;D
Mopar is comfortable. He won't be typing much for a while but he's so slow anyway I can't bear to watch and will interfere! Only when he wants me to tho'.
Thought this might be of interest to any who are contemplating minor surgery. M a y b e .....it would be better to opt for the more distressing but less- inclined -to-trigger- HA option - local, than opt for the more appealing "knock me out and I won't feel a thing" option. My humble opinion only.
In his case anyway, general seemed to be a definite trigger - he's had 4 attacks at 2 hourly intervals since he recovered. All rippers, but Imitrex over-ruled. Whew!
Thanx guys for welcoming him.
Thanx for the kind words ( blushing here)
PFDAN to you all
firebrix and Mopar

Title: Re: general anaesthesia as trigger
Post by Karla on Dec 18th, 2002, 8:12am
Any kind of anaesthesia has never bothered my head.  I have always gone under very cautious and explained ch etc and had them prepared to jump when I came to but never needed any assistance.  Sorry to hear Mopar got slammed.  At least it is behind him now.

Title: Re: general anaesthesia as trigger
Post by OneEyeBlind on Dec 18th, 2002, 10:11am
Glad to here all went well (except for the cluster attacks I mean).  I'll keep in mind the clusters should I ever have to be put under.  Hoping for a speedy recovery, Mopar !!!

Title: Re: general anaesthesia as trigger
Post by Hound_Dogg on Dec 18th, 2002, 12:50pm
I guess it stands to reason, since we normally get hit an hour after sleep, that anethesia would set one off. The big question would be...was he in cycle? or did the anethesia set off a completely new cycle?

I've only had one surgery and that was heavy sedation, not General Anethesia. The difference is they have to intubate you for General Anethesia.

Jim

Title: Re: general anaesthesia as trigger
Post by Margi on Dec 18th, 2002, 2:16pm
Boy, the beast is a strange one, huh?  Elaine, and a few others here, have had general anaesthetic and have reported the exact opposite result....it's actually put them into a short remission, as a side effect.

I'm sorry Mopar was the unlucky one to prove this theory wrong, Firebrix - that must have been terrifying to wake up like that...for both of you.  Thank God you were armed with info and did a little on the spot cluster education.  I love to hear that stuff!!  Good job, gal :)

Best of luck in the coming days, you two - it's not going to be easy for either one of you.  So much for party manners and the sweet mystery of romance, when one spouse has to assist the other one in the loo, huh?    
Give him lots of cheese, sweetie.  ;)

Keep us posted - we're here if you need a shoulder.



Title: Re: general anaesthesia as trigger
Post by firebrix on Dec 19th, 2002, 1:21am
Margi - we're cracking up here! You gave us a good laugh, and we're stocking up on cheese here! We've been together for 24 years so there are few secrets between us - He has a  great butt!!
BUT......................
Thank goodness for showers!

Hound_dogg - Mopar's chronic!!!! Nuff said.

We too had hoped that the general anaesthetic might have had a positive effect but ..........
too many butts in this post! ;D :o
Thanks for all your support. It really helped.
Love you guys
firebrix

Title: Re: general anaesthesia as trigger
Post by Hound_Dogg on Dec 19th, 2002, 7:26am
I'm sorry...I guess being episodic myself...I always see Cluster sufferers as being Episodic...I couldn't, in my worst nightmare, imagine having this damn pain almost every day. I have Thoracic Outlet Syndrome...(Which kinda feels like you have a couple of Broken Ribs, for the rest of your life)...I've also Fractured my neck, which hasn't healed right and both were the result of a motorist.   But I'll tell you this...none of that compares with the pain from a Cluster H/A and I thank God every day that I do not have that pain every day.

Best of Luck Firebrix and Mopar..You too are class acts.

Jim

Title: Re: general anaesthesia as trigger
Post by Mr.Happy on Dec 19th, 2002, 8:12am
It never ceases to amaze me.........time after time.........how many folks here already suffer from enough stuff to bring the mightiest of mortals to their knees. Disks, fractures, carpel, cancer, hepatitis, epilepsy, high stool......you get the idea.
And what does everybody complain about?
CH's............
You'd think the medico's would start getting a clue.

Naaahhhhhhhhhhhh.

"Pain"ting the picture,
RJ

http://drfeller.com/clustology/clchurch.jpg

Title: Re: general anaesthesia as trigger
Post by Charlie on Dec 20th, 2002, 2:29am
I agree Randy but for some reason, Ch isn't thought of as a real disease. I was well treated because I had epilepsy. They love us because they like to test us every year. I battle my current neurologist all the time because I know better. Lots of EEGs aren't necessary for epileptics. My old doctor said I could have all I wanted but that it really didn't add anything to my care.  This was the doctor who showed me the circulatory technique. He was a character.

Charlie

Title: Re: general anaesthesia as trigger
Post by sueellen83 on Dec 21st, 2002, 9:40am
Firebrix,

  Sorry to hear Mopar had to deal with the beast and surgery too.

   I have had general anesthetic several times and it trigger a cluster cycle every time.  The last time I had surgery my Dr. started me on preventitives 2 weeks prior to the surgery and it seemed to work.  No Ch cycle after the anesthetic.

Title: Re: general anaesthesia as trigger
Post by Svenn on Dec 21st, 2002, 9:54am
When i woke up at the ER after my heartattack i got hit once.
Just wondering what they gave me.
The wall on the other side of the room had some pink elephants moving    ;D ;D

As for cluster it seems like the only "red thread" is the pain.

No wondering why the neuroes just say "we think or it might"when the first written case of cluster is back in 1306 and the first diagnose was back in the 40-50.The human brain is a complex thing it seems.Almost everything else they can give us spairparts in plastic   :)


Svenn

Title: Re: general anaesthesia as trigger
Post by kim on Dec 21st, 2002, 6:27pm
Hey Fibrix,

Had numerous surgeries in my lifetime and they ALWAYS set off a cycle (i'm episodic).  Over the years I learned to be wary of surgery............within a day or so, I'm askin the nurses for the coffee..........dunno why.  It just always has worked out that way for me.  

The fear of clusters wormed it's way into my child birthing (always a c-section involving surgery and anasthesia.....) I became fearful of custers following the birth of each kid....and it happened EACH (3) TIME...............

when was a kid had accidents and had surgery.  Always a cycle followed.....

this question has come up tons and there's tons of feedback both here and in archives.  

PFDAN:)

Title: Re: general anaesthesia as trigger
Post by Jackie on Dec 21st, 2002, 6:45pm
Firebrix,

Glad to hear that Mopar made it through the actual surgery well.....sorry about the attack though... :(

Anaesthesia has been been a problem for Blake.  He's had two surgeries and did OK....CH wise. One of them was "butt" surgery....he's now a perfect a*shole.... ;D
(just kidding, dear.... couldn't resist... ;))

You two take care of each other and Happy Holidays :D

Jacks 8)


Title: Re: general anaesthesia as trigger
Post by firebrix on Dec 22nd, 2002, 7:50pm
Thank you to you all for replying. I wish I'd asked this question BEFORE the surgery!
C'est la vie I guess.
We're looking after eachother as usual!
Mopar was disappointed HE didn't see any pink elephants!! Happy Birthday again Svenn!
Kim I feel SO sorry that you had >double the pain in childbirth! But I bet they're still worth the effort!
Thanx Hounddogg! You're pretty classy yourself!
Jackie - you crack (!!) ed me up!
Thank you to you all
firebrix



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