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(Message started by: netniet on Dec 29th, 2002, 5:23am)

Title: One lucky family ???
Post by netniet on Dec 29th, 2002, 5:23am
I have a question for all of you.

Is anyone familiar with along family history of clusterh.

It seems my family thing  :-/,
cause my great grandmother, grandfather, father and last but not least I :(.
Allso some uncles, cousins etc. (all from father side of the family) suffer from clusterh.

I never heard this before and cluster isn't now as a family happening.
So I was wondering are we the lucky ones ???


Title: Re: One lucky family ???
Post by Brassbear on Dec 29th, 2002, 5:35am
Ninet: From everything I've been able to find CH is not supposed to be hereditary. However, my father has both migraines and CH just like I do. As far as I know, that's all for my "blood kin".

Just found out a couple of days ago that my daughter in law is also a clusterhead.


Title: Re: One lucky family ???
Post by Bob P on Dec 29th, 2002, 8:22am
The articles I've read say CH is 10 to 20 times more frequent in relatives of a clusterhead than in the general public.

I hope you guys have filled out the Heredity Survey on the OUCH Surveys page.

Title: Re: One lucky family ???
Post by suzy617 on Dec 29th, 2002, 9:09am
Hi Netniet, There is nobody else in my family that has ever had CH so I guess I was picked to be the lucky one. :(


Title: Re: One lucky family ???
Post by Drk^Angel on Dec 30th, 2002, 4:15pm
I believe the IHS is supporting the idea that approx 7% of clusterheads carry a dominate gene contributing to their disease.  The final draft of the IHS proposed revision of the diagnostic guidelines contained the information, but I haven't seen the new official guidelines yet to be sure that it was kept.  Last I read, they were planning to publish the new guidelines in January.

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