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Topic: CLusters with Migraine and Constant Headache (Read 1193 times) |
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Brassbear
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Re: CLusters with Migraine and Constant Headache
« Reply #25 on: Jan 4th, 2003, 6:08am » |
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0557, Can't tell you much about meds and treatments for CH yet. I was just diagnosed last month. So far the only med I have is Imitrex and it does help me.
I also have migraines, I've been dealing with those since 1970. So far, I've not been hit with them at the same time as the CH. Thankfully.
Listen to these people, they know what they are talking about and they have been tremendously helpful to me!
Welcome aboard.
Hey jonny... no side effects...effects...effects? ;D
Michael
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cluster0557
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Migraines are bad. Clusters are Hell, I have both
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Re: CLusters with Migraine and Constant Headache
« Reply #26 on: Jan 13th, 2003, 10:07am » |
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It has been a few days now since I fired my last Neorologist.
In an effort to control my CH he prescribed 75mg of Indocin 4 times daily. What a nighmare. 4 x the normal doseage Either I get beat to death by the cluster or get my gastro system torn apart by the Indocin. Great therapy.
I decided to seek help from either the Diamond Headache Clinic or the Robbins Headache Clinic both of which are within 50 mile of where I live. I'll know more in a couple of days which one I can get into the soonest.
My Message to all is don't trust your doc for everthing. Research using this and many other sources of info to become more informed and less dependent on the let's try this attitude to see if it by chance works.
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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JohnM
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Re: CLusters with Migraine and Constant Headache
« Reply #27 on: Jan 13th, 2003, 2:22pm » |
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I agree on not trusting the doctors, even the so called headache specialists. Most want you out of the office after the alloted 10 minutes on some new or different drug therapy to stop you whining. Most have no idea of what the problem is. To them is is after all "just a headache". Lose weight, give up smoking, give up booze, de-stress, etc, etc is the best advice they ever give.
I suffer from all types of headaches, mostly when I am in cluster, I will get migraines, Ch and tension headaches one after the other. Imigran seems to fix them all with about 12-24 hours relief between doses when in cluster.
I tend to be prone to headaches all year round, but ususally an aspirin will fix the "normal" ones.
I think I broke my last cycle in March-May with a detoxification diet. I have been more or less headache free ever since. I have just about given up wheat products since then and feel they may have been contributing to my condition.
J
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bob900
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Re: CLusters with Migraine and Constant Headache
« Reply #28 on: Jan 14th, 2003, 9:23pm » |
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Hi My Name is Bob and I also suffer from Cluster Headaches and Migrainges. I can't find any Dr. who has any ideas besides anti-depressants which makes Mine worst  I think if they suffered fromthe same problems as We do they would'nt think that were looking for drugs for thr hell of it! I bang My Head on the wall to try to knock myself out it really SUCKS!!! Do You have any luck with any Meds. besides anti-depressants.Thank You for Your Time Bob.
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Mad as hell at Dr's. For not understanding!
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bob900
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Re: CLusters with Migraine and Constant Headache
« Reply #29 on: Jan 14th, 2003, 9:42pm » |
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I hear U it's the pits! You have to experience them Yourself too uderstand Dr's. SUCK when it comes to treating this problem if they had them they would not subscribe these Drugs that make U a Zombie and Your just a Zombie now in hell. Bob.
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Mad as hell at Dr's. For not understanding!
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cluster0557
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Migraines are bad. Clusters are Hell, I have both
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Re: CLusters with Migraine and Constant Headache
« Reply #30 on: Jan 14th, 2003, 11:42pm » |
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What is helping me now as preventative is Verapamil 240 mg SR three times daily.
I also went on 75mg to 100mg of Pamelor every night.
Pamelor is also antideprresant but is only one that has not cause me to go into zombie mode.
It has not killed the devil but has gotten me out of slam my head mode most of the time.
Imitrex Injections help in slam head mode for most of my attacks but tonight it did not dent it.
I have a shot called Numbital that knocks me out in this case. Getting one ready now.
I am breaking down and going to Diamond Head Clinic in Chicago in two weeks. Supposedly one of the best places to get help.
I'll update once I see them.
Good luck
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| « Last Edit: Jan 14th, 2003, 11:50pm by cluster0557 » |
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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fubar
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Re: CLusters with Migraine and Constant Headache
« Reply #31 on: Jan 14th, 2003, 11:50pm » |
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Numbitol... doesn't that come in .45 and .44? I hear those are one-use-only though, with terrible side effects.
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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cluster0557
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Migraines are bad. Clusters are Hell, I have both
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Re: CLusters with Migraine and Constant Headache
« Reply #32 on: Jan 15th, 2003, 12:31am » |
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oops wrong drug name.  They are actually 20mg Nubain IM0.
Beats the hell out of going to the er for demerol shot. 
It knocks down the pain and does not have rebound of stronger demerol and other stuff.
I Only use when Imitrex flops.
Can't drive or work for 4 hours once a shot is taken but can't do either anyway when CH in full cycle.
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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JohnM
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Detox believer
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Re: CLusters with Migraine and Constant Headache
« Reply #33 on: Jan 15th, 2003, 1:19am » |
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Imigan (Imitrex in USA) Injection works for me EVERY TIME. Are you doing the shot correctly? I always shoot into my right leg on the top right hand side just below the bum and get relief in about 10 minutes without fail.
As for anti-depressants I reckon steer well away from them. Rather get some support from family freinds or here when you get desperate. Any doctor who prescribes them for ch needs fuckin up!
Pain killers are also a waste of time. They make you even worse with the rebound headaches on top of the ch and migraine.
Try and totally radically change you diet when in cluster. Eat very light, lots of fruit and veg, drink stacks of water, steer away from booze, fags, coffee (I know some of you think coffee helps), sweets and wheat products. If you begin to lose weight it is a good sign you are doing the right thing and getting rid of headache causing toxins. I believe this helps to break the cluster cycle. Take it or leave it, but it worked for me last time.
J
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