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Topic: Ok, Now lets talk CH.COM...... (Read 1752 times) |
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M.R.
CH.com Alumnus
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Re: Ok, Now lets talk CH.COM......
« Reply #50 on: Dec 13th, 2003, 2:21pm » |
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I'll even throw my 2 cents in (being a lurker and all)
Were you diagnosed? Yes, after about 2 years of hell from ''sinus infections from smoking''
Did you have a Neuro? No
Did you have meds? Yes, but never enough...Verp. 480 a day, Imitrex, and O2 ( not counting the other ones to break cycles)
Did you think you were alone in this pain? Didn't know....never would of guessed that there were so many
You get where im going with this.................................................................... ..
Part two:
How has CH.COM helped you, by this I mean:
Got meds? Yes...can talk to my Doc with knowledge now
Got a Doc? Yes, and a damn good one. He is the one who told me what this was.
Again, you know where im going with this.................................................................... .
Part three: (Easy)
How did you find CH.COM? Dogpile.com ( a good search site, the best I've seen anyway)
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BstnEagles
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Re: Ok, Now lets talk CH.COM......
« Reply #51 on: Dec 13th, 2003, 2:36pm » |
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What I want to know is where were you before you found CH.COM, by this I mean:
Were you diagnosed? yes although I had previously diagnosed myself after having ch dismissed as stress by a GP
Did you have a Neuro? I havea doctor who studies these ehadaches, but he is not a neurologist.
Did you have meds? Yes, Imitrex and Verapamil
Did you think you were alone in this pain? Yes, had never met anyone with the condition
You get where im going with this.................................................................... ..
Part two:
How has CH.COM helped you, by this I mean: Very Suppportive and great advice
Got meds? Already had them.
Got a Doc? ""
Again, you know where im going with this.................................................................... .
Part three: (Easy)
How did you find CH.COM? Google search.
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Prense
CH.com Alumnus
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Kerry is an idiot!
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Re: Ok, Now lets talk CH.COM......
« Reply #52 on: Dec 14th, 2003, 12:10am » |
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About 4500 more members to go (at least)...
B U M P !
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amen
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I love YaBB 1G - SP1!
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Re: Ok, Now lets talk CH.COM......
« Reply #53 on: Dec 14th, 2003, 10:32pm » |
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Diagnosed?..............yes
Neuro?.....................No, still don't yet
Meds?......................None that worked at the time, better now.
Alone?.....................No, my dad gets these too.
How has CH.com helped?........Information, and support(until I posted a stupid thread) and got Jonny all riled up  I've noticed it doesn't take much.
Got meds?.........yes
Got doc?............yes
How did I find?........came home from the docs and typed in Cluster headaches(whamo...here i am, a lowly lurker most of the time  )
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fubar
CH.com Alumnus
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Re: Ok, Now lets talk CH.COM......
« Reply #54 on: Dec 14th, 2003, 11:20pm » |
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Before CH.com
Were you diagnosed?
Yes. I had been diagnosed by my general practice doctor over 11 years ago after suffering for at least 4 years solid.
Did you have a Neuro?
Yes. He had been putting me through all the usual suspects with no real success. The problem was I had to wait for a new cycle every time to try a new drug that wouldn't work. So the process of finding out that almost nothing worked at all was very long. It wasn't until this cycle, which turned into almost 3 years of hell, I was on Verapamil, and also finally relented and tried Lithium. That combo worked better than anything else to that point.
Did you think you were alone in this pain?
I thought I was probably insane, since nobody understood what I was saying about this 'icepick headache' as I called it. It came with no warning, instant hell, and left just as quickly. People who see it happen aren't usually convinced you're not faking because you go from one extreme to the other so quickly.
After CH.com
How has CH.COM helped you?
I've learned that others know and understand this pain which I could not explain to anybody. I'd always felt that some others, including my wife, were thinking I was just being dramatic. This site helped me educate those that wanted to learn about it. It's a place that feels like family, complete with all of the beautiful ugliness that a family can have, and I'd feel lost if it disappeared. I found out about OXYGEN here and that probably saved my life and sanity. I also was eventually persuaded to try the cluster buster method, and I broke out of being chronic for almost 3 years. I am now pain free, and I have CH to thank for it.
Part three:
How did you find CH.COM?
Google, the second most important web site in the world behind www.clusterheadaches.com.
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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AlienSpaceBabe
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Re: Ok, Now lets talk CH.COM......
« Reply #55 on: Dec 14th, 2003, 11:26pm » |
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Were you diagnosed? yes
Did you have a Neuro? nope
Did you have meds? meds that didn't work....
Did you think you were alone in this pain? of course. i was told it was all in my head... that nothing could hurt this much so i must be faking.
Part two:
Got meds? yuppers. got VERAP!!
Got a Doc? yuppers. good one, too.
and....
found new friends.
found out i can be the "real" me and still be accepted.
found out that, despite how much i hurt sometimes, there are others that have much more pain much more often.
found out about oxygen.
tried imitrex injections because several people suggested.
discovered that fungus CAN work.
found people who understand me.
discovered that there's at least one person in the world EXACTLY like me (Mrs. Rumplestiltskin).
discovered that I am stronger than I think I am.
discovered that everyone here is stronger then they think they are.
Part three: (Easy)
How did you find CH.COM? father saw something on good morning america in 2001. called me and told me he thought it was what i had.
Lizzie
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jonny
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Re: Ok, Now lets talk CH.COM......
« Reply #56 on: Dec 15th, 2003, 12:35pm » |
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on Dec 14th, 2003, 10:32pm, amen wrote:| How has CH.com helped?........Information, and support(until I posted a stupid thread) and got Jonny all riled up I've noticed it doesn't take much. |
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Dont mind me, I bark loud but never bite....LOL 
............................jonny
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Big Dan
CH.com Alumnus
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SMASH BRAIN!
 
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Re: Ok, Now lets talk CH.COM......
« Reply #57 on: Dec 15th, 2003, 1:03pm » |
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What I want to know is where were you before you found CH.COM, by this I mean:
Were you diagnosed? Yes.
Did you have a Neuro? Yes
Did you have meds? Yes... not very effective though...
Did you think you were alone in this pain? By all means.
Part two:
How has CH.COM helped you, by this I mean:
Got meds? Better ones... and O2...
Got a Doc? Better one... thanks to Echo...
Part three:
How did you find CH.COM? Google... couldn't find any informtion elsewhere... but got lucky skimming through umpteen pages of horseshit....
-Big Dan
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Not going anywhere for a while?...
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: Ok, Now lets talk CH.COM......
« Reply #58 on: Dec 15th, 2003, 2:18pm » |
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on Dec 15th, 2003, 1:03pm, Big_Dan wrote:
How has CH.COM helped you, by this I mean:
Got meds? Better ones... and O2...
Got a Doc? Better one... thanks to Echo...
-Big Dan
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Thanks Dan, You have no idea how big my smile was when I read this. Glad to know Dr Z has been able to help you out, just as he has for me.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Mikey
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Rock till ya Drop and DON'T mess with the FAM!!!!!
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Re: Ok, Now lets talk CH.COM......
« Reply #59 on: Dec 15th, 2003, 3:09pm » |
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What I want to know is where were you before you found CH.COM, by this I mean:
Were you diagnosed? Yes. I didn't even know that there was a headache called Cluster when i was diagnosed with them.
Did you have a Neuro? Yes, he was the one that diagnosed me.
Did you have meds? Yes, but not the appropriate ones yet, until i got educated here, and i think that was around the end of 99'.
Did you think you were alone in this pain? Yes, i pretty much did, because the neuro said how rare it was to have.
Part two:
How has CH.COM helped you, by this I mean:
Got meds? Yes, finally got help here in the right direction.
Got a Doc? Yes.
Part three: (Easy)
How did you find CH.COM? Right after i was diagnosed, i got online to find anything i could about CH,....Then low and behold, this became my Home and Family!!
Thank you for your time
You are so very welcome Jonny!!!!!!!! 
Mikey,
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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miCHel
New Board Veteran
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Posts: 184
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Re: Ok, Now lets talk CH.COM......
« Reply #60 on: Dec 15th, 2003, 5:07pm » |
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OK my turn...
Were you diagnosed? Yes
Did you have a Neuro? No (saw one who diagnosed me and then retired...)
Did you have meds? Yes... but no preventative and no abortive that worked. So it's more like a "No"
Did you think you were alone in this pain? You bet! I have had this for twenty years and still have never met another CHers face to face...
You get where im going with this.................................................................... ..
Part two:
How has CH.COM helped you, by this I mean:
Got meds? Oh Yeah! That medical info became my bible (tried some stuff that finally helped!)
Got a Doc? Somebody on this site suggested a good medical center right here in Montreal. For the first time, I was treated by someone who had a clue (and in record time, too)
Again, you know where im going with this.................................................................... .
Part three: (Easy)
How did you find CH.COM? My girlfriend found this site for me... when I was in the middle of a very bad cycle. It was like coming out of a coma. I felt like a castaway stranded on a desert island for twenty years who gets picked up on a cruise ship filled with former castaways... or something like that!
Anyway, this site and all the people here were a great gift!
Cool thread Jonny!
miCHel
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Good one Scotty! Now beam down my clothes...
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