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Topic: Clusters in women (Read 410 times) |
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notaman
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Clusters in women
« on: Dec 11th, 2003, 7:17pm » |
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I've been misdiagnosed for over 8 years from multiple doctors and a Neurologist because I am not a middle aged man and can't possibly be having clusters. When I found this site I couldn't believe that other people were feeling the same way I am. Being scared to sleep, aging 10 years in a week, crying and screaming and driving to the ER. Even the ER docs never help. I'm in my 8th annual winter cluster, and still am not making any headway on getting a diagnosis! Every doctor I've seen is perplexed and can't understand why my headaches don't fit the normal migraine. Because they aren't migraines!! But if one more person tells me to take a pain pill on onset and take a nap, I may kill them. My response is always "I WAS ASLEEP, I can't go back to sleep!! I get my headaches in my sleep, same time of night, every winter, only in the winter!" HELP!
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Little Deb
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Please SPAY and NEUTER all dogs, cats and idiots!
 
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Re: Clusters in women
« Reply #1 on: Dec 11th, 2003, 7:33pm » |
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Girlfriend, you have hit the jackpot! Cause we all understand!
I am in Raleigh,NC and have found a great neuro if you want to drive here. And, we are having a clusterhead get together at my house Jan. 31st. Come meet some real clusterheads!
Email or instant message me anytime.
Welcome.
Debbie Hart
25 years of CH
.........and ALL WOMAN!!!
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Adopt a shelter pet!
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BlueMeanie
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Notaman.
Sorry to hear you are another victim to this terrible condition. Just wanted to say don't be upset because of the woman thing. Guys have just as hard of a time dealing with the medical profession. It seems nobody but the ones who actually suffer from CH's understand it. Welcome to Clusterville.
PF vibes comming your way !!
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Paigelle
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I understand completely! My CH cycle starts in November. I hate the month of November, if I could just erase it off the calendar I would be happy. Good luck finding a doc. Read everything you find here and print information to take to your next appointment.
We also understand the fear of going to sleep. I hate that worse than anything. You just sit there in bed, dreading what is going to happen.
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CHmess
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This web-site is one of the best medicines out there!!!
My favorite is when people say "well if it wasn't the last thing you think about before you go to sleep then maybe you wouldn't have them every night"
Like, don't you think if we could "wish" them away, we WOULD!!!! 
This coming from people who have never even had a freeze headache..... lucky bums!
Hang in there!!!!
Sending more PF vibes....
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Charlie
CH.com Alumnus
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Happy to be here
   
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Re: Clusters in women
« Reply #5 on: Dec 12th, 2003, 1:51am » |
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Welcome and you're not at all alone. All of us have gone through the sleep is our enemy stage. Stick around. You'll find an awful lot of good ideas here.
Here's mine:
http://www.netsync.net/users/charlies/
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sherryberry
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Living and Loving it!
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Re: Clusters in women
« Reply #6 on: Dec 12th, 2003, 1:58am » |
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I've had them for about 31 years... hopefully yours will do what mine did... after a while they will start spacing out more.
I went from twice a year to once a year to now, once every two years... and if I don't get hit this February or thereabouts, I can up that a little!!
Sorry you qualify! 
But you found the best place in the world!!
Sherry
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Linda_Howell
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Re: Clusters in women
« Reply #7 on: Dec 12th, 2003, 2:32am » |
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Don't you know?
Women don't get Cluster Headaches.
Cough cough, choke choke.
LindaH Chronic for 17 years now.
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Paigelle
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Nope us girls don't get CH. A Dr told me once that it was all due to my menstrual cycle. That is funny, because if that is true, then I only have that once a year in November.
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Clusters in women
« Reply #9 on: Dec 12th, 2003, 9:29am » |
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notaman,
join the club! I just met a new neurologist yesterday and he was absolutely sure that I can't possibly have CH! And it turned out that I know more about CH than he does!
Welcome aboard and I'm glad you found us!!! 
Best wishes & PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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thomas
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Welcome aboard. If you have them in your sleep - melatonin is worth a try - I hope your cycle ends soon. 
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Bob P
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Shut up Bob!
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Re: Clusters in women
« Reply #11 on: Dec 12th, 2003, 10:27am » |
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Well, you know.
Thanks Linda.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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