Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Dec 15th, 2019, 2:44am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Stupid question from a newbie »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2003 Posts
(Moderator: DJ)
   Stupid question from a newbie
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Stupid question from a newbie  (Read 523 times)
Lemonface
Guest

Email

Stupid question from a newbie
« on: Dec 19th, 2003, 2:27pm »
Quote Quote Modify Modify Remove Remove

Hi there ... this is my first post but I have been reading much of this site for the last two days.  
 
I know this is going to sound like a naive question but here goes ... how many headaches/how long does one generally have to suffer before a diagnosis of CH can actually officially be made?
 
I see how long and how horribly most of you have suffered. Here is my story in as brief a nutshell as I can make it ...  
 
I have only (blessedly) had two headaches along these lines, one this past Sunday and one this past Tuesday. They came at the exact same time and struck identically. They both met virtually every criteria that is listed as to description of the pain, from the onslaught (talk about zero to 60!) to the intensity to the watering eye and icy nose, to the feeling of being restless to the point of thrashing just to get it out of me, etc.  
 
I am a woman in my 40s with a history of migraines, though not to the extent that many suffer from them -- generally 4-6 a year, I would say in the range of about 5-7 on a pain scale. This was no migraine, and I knew that from the first five minutes. OK, the first two minutes. And they scared the crap out of me. I was really afraid I might be having an aneurysm or something. And both were damn close to a 9 on my pain scale (I save 10 for my punctured third degree burn on my ankle, eye surgery gone wrong, and maybe childbirth)
 
Anyway, I went to the "book" and as soon as I read what it had to say about CH the light went on, because I couldn't have written a better description of what I'd gone through. However, do two such headaches mean CH??? I don't want to call my doctor and sound like an alarmist ... but OTOH I am now living in fear of this happening again. I don't need to tell anyone reading this how nearly unbearable it was.  
 
I should add that about a year ago I was diagnosed with carotidynia on that same side and wonder if there could be any connection? That lasted about a month and I have been symptom-free since then. But since one of the medical reports on here talked about the carotid artery being potentially tied into CH I wondered if there might be a connection.  
 
Some nutshell, huh? Smiley
 
Anyway, thanks for any advice ... and sorry to sound like a whiny baby after just two headaches.
IP Logged
Mikey
New Board Hall of Famer
USA 
*****




Rock till ya Drop and DON'T mess with the FAM!!!!!

    MGuitarM
WWW Email

Gender: male
Posts: 585
Re: Stupid question from a newbie
« Reply #1 on: Dec 19th, 2003, 2:52pm »
Quote Quote Modify Modify

Welcome to the site Lemon.  AS far as how long it takes to get a diagnosis, it has taken some of us many years to get a currect diagnosis.  Many ladies who have CH, have compaired the pain to being worse than childbirth, i guess they are saying a KIP ten is worse. As far as just having the two headaches, it's possible for a Neuro to come to the diagnosis of CH from just the two, but unlikely.  They ussually watch a HA for a while before they make a firm diagnosis.  That's been the case with most of us anyway.  
 
Believe me, if you have CH, you will be calling your Doctor or somebody, because the pain is more than most of us can stand at times, but we have to.  
 
Cluster headaches are the worst headaches known to man, and any Doctor that knows anything about them will tell you that.  My very first CH sent me to the hospital, i thought i was dying, just like yourself, i thought i was having a stroke or an aneurism.
It took me two years to get a proper diagnosis, and some others here have taken decades to get a proper diagnosis.
 
My best advice to you is to read as much as you can, by pushing the buttons to the left, and asking as many questions as you like.  The thing is to get yourself educated, and to get an educated Neuro (if possible where you live) in cluster headaches.  If you can't find one that is very educated in them, then print out pages from here as info to take with you to your Neuro visit.
 
Hope this helps ya, and i HOPE that it turns out that you don't have CH!!!!!!
 
Mikey,  Grin
IP Logged

I love to ROCK very HARD!!!

CHRONIC and going crazy!! Want to come too?

Hope for PFDAN, peace and safety to you all!!
Tiannia
New Board Hall of Famer
USA 
*****




Life does not apologies......

  Tiannia_L  
Email

Gender: female
Posts: 3241
Re: Stupid question from a newbie
« Reply #2 on: Dec 19th, 2003, 3:07pm »
Quote Quote Modify Modify

Lemon, welcome and sorry that you had to find us.  I understand about thinking that you where crazy, scared that they would hit againa nd semi afraid to call your doc cause you did not want to sound like a nut job.  I think I still sound like a nut job, I still argue with my doc and I really dont care.  When I am getting hit I dont care what they call it as long as we can figure out a way to make it stop.  
 
So call your doc. Talk to him.  Keep a journal about when the hit the time, the feeling the pain level everything.  The shadows... swelling, anything that comes to mind.  This will help. It is tedious but it will help.  
 
Ask any questions you want.  The worse you will get is. "You are really stretching for that one" type comments.  Cheesy Shocked Roll Eyes Tongue
 
Tiannia
IP Logged


The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
Tara Ann
CH.com Alumnus
New Board Hall of Famer
USA 
*****




It's always darkest before the dawn.

  tara_ann_77  
WWW Email

Gender: female
Posts: 2459
Re: Stupid question from a newbie
« Reply #3 on: Dec 19th, 2003, 3:10pm »
Quote Quote Modify Modify

Hi Lemon,  sorry to hear bout your pain.  Mikey pretty much said it all.  I just wanted to add that NO question is stupid IMO, so ask anything you need to ask, and make an appt with  your doc.
IP Logged

http://www.myspace.com/taraann77
ave
New Board Hall of Famer
Netherlands 
*****



She is beside herself; her favourite position

   


Gender: female
Posts: 655
Re: Stupid question from a newbie
« Reply #4 on: Dec 19th, 2003, 3:58pm »
Quote Quote Modify Modify

Don't ask how long you have to have these headaches or how bad they have to be BEFORE you get the right diagnosis.
 
Better ask, how long before doctors will have enough  knowledge to make an intelligent diagnosis...
 
Oh dear, that long?
IP Logged

There is a break in reality. Do not adjust your mind.
172Driver
New Board Newbie
USA 
*



Hang On!  It's one helluva ride!!!

   
Email

Gender: male
Posts: 15
Re: Stupid question from a newbie
« Reply #5 on: Dec 19th, 2003, 3:59pm »
Quote Quote Modify Modify

Hey Lemon,
 
It would be hard for anyone to come to any firm conclusions after 2 headaches but you are kicking ass in terms of handling the situation.  It is very important to get tested though.  Try and find a Dr. (neuro) that specializes in headaches.  They know what they are looking for instead of some ER doc that hasn't heard of CH since med school and then only as some bizarre footnote in the Headaches chapter of the book.
 
Hang in there.  You are ahead of the game so far!
 
Greg
IP Logged
Charlie
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Happy to be here

135447360 135447360   mondocharlie   mondocharlie
Email

Gender: male
Posts: 14968
Re: Stupid question from a newbie
« Reply #6 on: Dec 19th, 2003, 4:01pm »
Quote Quote Modify Modify

Welcome to the madhouse.
 
The pain you describe sounds typical. They will wake you out of a sound sleep too. Isn't that special?  Sad
 
Mine began with one or two over a few weeks and then went to several a day (4-6.....usually 4) and went away for months until the next cycle. I thought I was having a stroke or had a tumor. I was already seeing a neurologist so I had an advantage. Normally you have to pound doctors over the head until they admit you actually might know what you have......not always though.
 
I suggest sticking around and telling us more. Let us know how you make out with your doctors.
 
Charlie
IP Logged

There is nothing more satisfying than being shot at without result---Winston Churchill
cathy
CH.com Alumnus
New Board Hall of Famer
United_Kingdom 
*****



Not all those that wander are lost......

  cathy_lucas47   cybersis1965
Email

Gender: female
Posts: 2267
Re: Stupid question from a newbie
« Reply #7 on: Dec 19th, 2003, 4:29pm »
Quote Quote Modify Modify

on Dec 19th, 2003, 2:27pm, Lemonface wrote:
And both were damn close to a 9 on my pain scale  
 
(I save 10 for my punctured third degree burn on my ankle, eye surgery gone wrong, and maybe childbirth)
 
 

 
Welcome to the board, I hope it's not CH but if it turns out to be then I hate to tell you this, but your punctured third degree burn, eye surgery and childbirth will seem like a walk in the park!
 
Cathy  
IP Logged

My own tears would mean nothing to me, if I could stop you from just shedding one....

Prense
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Kerry is an idiot!

   
Email

Gender: male
Posts: 1607
Re: Stupid question from a newbie
« Reply #8 on: Dec 19th, 2003, 7:33pm »
Quote Quote Modify Modify

It's been discussed here several times..."the worst headache in your life?"  Get it checked out!  It could be something very serious.  Beyond that, if it is CH, you will get more attacks...sooner than later.  It shouldn't take you long to document a trend well enough for a proper diagnosis.
 
Hoping it isn't CH...
 
Chris
IP Logged

Where does the white go in a snowman when the snow melts?
TxBasslady
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Bass fishin' is a h00t  It's the catchin' that sux

   
Email

Gender: female
Posts: 3201
Re: Stupid question from a newbie
« Reply #9 on: Dec 20th, 2003, 2:06am »
Quote Quote Modify Modify

Smiley
Welcome to the board, Lemon.
 
Lots of good info here and the best support anywhere.
 
Hope you find what you need.  Keep posting and let us know what's going on     Wink
 
Pf vibes,
 
Jean
IP Logged

How lucky I am... to have known someone who was so hard to say goodbye too.

Take a kid fishin
www.takemefishin.org

I adopted a Vietnam POW/MIA from El Paso, Texas!
Callico
New Board Hall of Famer
USA 
*****



Proud Dad of a US Marine!

   
Email

Gender: male
Posts: 1395
Re: Stupid question from a newbie
« Reply #10 on: Dec 20th, 2003, 2:13am »
Quote Quote Modify Modify

If you think that was a stupid question, then you haven't read the archives yet! Grin laugh
 
I'm with the others above.  Get it checked out promptly and thouroughly ASAP.  The only way most are diagnosed withCH is when everything else is ruled out.
 
Hoping you have something else, but welcoming you to this madhouse anyway.
Jerry
IP Logged

"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
USA 
*****




The BEAST rises again, and again, and again, and .

   
Email

Gender: male
Posts: 3181
Re: Stupid question from a newbie
« Reply #11 on: Dec 20th, 2003, 2:16am »
Quote Quote Modify Modify

Hi, Lemon!  Welcome aboard!
 
It is critical that you see a doctor about your "new" headache!  You may have a tumor or something else!  Cluster headaches do not kill you, but other things can.  You need to get a CAT scan and MRI to rule out anything else.  The CAT scan and MRI do not prove you have CH, but it proves that something else is NOT causing this pain.  Please get it checked out!
 
As Mikey said, my first CH caused my wife to call an ambulance and send me to the hospital.  When I got to the emergency room, they freaked out and had me life flighted (my only helicopter ride, and I was too far out of it to remember it!  DAMN!!) to the regional teaching hospital.
 
on Dec 19th, 2003, 2:27pm, Lemonface wrote:
I save 10 for my punctured third degree burn on my ankle, eye surgery gone wrong, and maybe childbirth

 
As Cathy said (darn, I can't believe I am agreeing with that Brit bimbo!  heehee!) once you have a CH KIP10, you will think those others were minor discomforts!
 
Again, welcome aboard, but PLEASE get it checked out!
 
Chuck
IP Logged

"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
Mac
New Board Old Timer
Canada 
****






   
WWW Email

Gender: male
Posts: 303
Re: Stupid question from a newbie
« Reply #12 on: Dec 20th, 2003, 4:16am »
Quote Quote Modify Modify

There is no such thing as a stupid question regarding what might be a cluster.We all have questions that are unanswered.  
For me it took three and a half years and six or seven docs to finally be diagnosed as a chronic clusterer. I'm one of the lucky ones.  Get checked out by a neuro and keep a close watch on when (if) you get any more.It's called cluster because you get several in a short period.If it turns out that you are  this is the place to be for lots of support. If your not a clusterhead thank your lucky stars.
IP Logged

"We hang the petty thieves and appoint the great ones to public office". - Aesop
portfolio http://www.artwanted.com/McDonall
http://www.clusterheadaches.ca
Lemonface
Guest

Email

Re: Stupid question from a newbie
« Reply #13 on: Dec 20th, 2003, 9:33am »
Quote Quote Modify Modify Remove Remove

Thanks, everyone! I really appreciate the responses and hugely admire the support system you all have built up with each other, about your CHs and pain and also the rest of your lives! We should all be so lucky so have such a group of friends as the one here ...  
 
So far so good on not having had anymore headaches since Tuesday and I figure that's a good sign. I did make notes about the two I had and am going to keep that list handy in case I have to add to it. One more and the next call on my list is to my doctor (who, by the way, is really open minded and looks at all possibilities -- he's not the type to poo-poo anything, which I 've heard a lot of doctors do).  
 
We like to joke, whenever there is something weirdly wrong with me, that it must be from my Lyme (four years ago) ... I assume there is no history of association of CHs coming out of a patient with a history of Lyme?
 
BTW, I did have a brain MRI a little over a year ago ... it was clear except for one thick hazy spot -- but that's the spot where I've had four concussions (three at the time, one more back in November), so we assumed that was what it was from. My doctor still has the films ... would there be something you'd look for specifically for CHs for are MRIs simply to rule out other possibilities?  
 
My mom died of a brain tumor so I'm pretty aware of the symptoms, both early and late (she had it for probably 10 years without it being diagnosed ... I guesstimate this because she had a CAT scan after significant symptoms and they misread it, so she didn't have another one until seven years after that! At which point you can imagine it was pretty much inoperable even though slow-growing).  
 
Anyway, I also hope I don't end up hanging out here, though if I do I couldn't ask for a more knowledgable and supportive group of sufferers. Am hoping it was just weird and horrible and temporary (and yeah, I would say they were the worst two headaches of my life but so much shorter than my migraines ... also, though this probably doesn't go by the book, in both cases I took a codeine-based painkiller out of desperation -- I have a herniated disk and keep them on hand in case of emergency -- and that definitely helped temper it after about 15 minutes ... BUT I would never want to have to resort to that a few times a week)
IP Logged
mikeyd
New Board Veteran
Canada 
***





8616152 8616152   mikeyd32  
Email

Gender: male
Posts: 102
Re: Stupid question from a newbie
« Reply #14 on: Dec 20th, 2003, 11:51am »
Quote Quote Modify Modify

heh heh, tylenol does not temper these monsters. Neither does opiods like morphene. I hope you don't have CH, but if U do, welcome to the club. Oxygen is the best weapon against these ones so if you are dying from a CH(or think you are), head for an oxygen mask and that should help. It works for many of us here.
Happy holidays and good luck!
Mikeyd
IP Logged

Waging war with the beast is tiresome & painful but never boring ;-D
Ree
New Board Hall of Famer
USA 
*****




2008's my year to shine~SUN IS OUT!!!YAY

64720087 64720087   Reespirit   Ree16Angel
WWW Email

Gender: female
Posts: 5236
Re: Stupid question from a newbie
« Reply #15 on: Dec 20th, 2003, 12:48pm »
Quote Quote Modify Modify

HI there.... Lemon head... 5 easy steps  ... first of all no questions are stupid here.......... Second welcome... sounds like you may be starting your first cluster cycle... third...keep track it is the best way to figure it out and im sure someone else said it but did you take the quiz on the left...fourth... Find a good Neuro one that might take into consideration that you could have Clusters...  fifth...pray that you don't... Peace  ree
IP Logged

Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
Patrick_A
New Board Hall of Famer
USA 
*****



If i could get my hands on that wascally Wabbit

   
Email

Gender: male
Posts: 843
Re: Stupid question from a newbie
« Reply #16 on: Dec 20th, 2003, 1:50pm »
Quote Quote Modify Modify

on Dec 19th, 2003, 2:52pm, Mikey wrote:
Welcome to the site Lemon.  AS far as how long it takes to get a diagnosis, it has taken some of us many years to get a currect diagnosis.  Many ladies who have CH, have compaired the pain to being worse than childbirth, i guess they are saying a KIP ten is worse. As far as just having the two headaches, it's possible for a Neuro to come to the diagnosis of CH from just the two, but unlikely.  They ussually watch a HA for a while before they make a firm diagnosis.  That's been the case with most of us anyway.  
 
Believe me, if you have CH, you will be calling your Doctor or somebody, because the pain is more than most of us can stand at times, but we have to.  
 
Cluster headaches are the worst headaches known to man, and any Doctor that knows anything about them will tell you that.  My very first CH sent me to the hospital, i thought i was dying, just like yourself, i thought i was having a stroke or an aneurism.
It took me two years to get a proper diagnosis, and some others here have taken decades to get a proper diagnosis.
 
My best advice to you is to read as much as you can, by pushing the buttons to the left, and asking as many questions as you like.  The thing is to get yourself educated, and to get an educated Neuro (if possible where you live) in cluster headaches.  If you can't find one that is very educated in them, then print out pages from here as info to take with you to your Neuro visit.
 
Hope this helps ya, and i HOPE that it turns out that you don't have CH!!!!!!
 
Mikey,  Grin

 
Damn Mikey, Concise and to the point bro. I couldnt have said it better myself!
 
Patrick  Grin
IP Logged

Do you think that when they asked George Washington for his ID, that he just whipped out a One Dollar Bill?
Belle
New Board Veteran
Canada 
***



Kiss Me You Fool!

   
Email

Gender: female
Posts: 146
Re: Stupid question from a newbie
« Reply #17 on: Dec 20th, 2003, 5:38pm »
Quote Quote Modify Modify

Id have to agree with ya too Cathy.  I've had two kids and Id go through labour all the time if it meant it would kick these chs.  Hope you can get some mental and physical relief Lemon.
 
Belle
 Roll Eyes
IP Logged

Take the time to stop and smell the roses!
Prense
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Kerry is an idiot!

   
Email

Gender: male
Posts: 1607
Re: Stupid question from a newbie
« Reply #18 on: Dec 20th, 2003, 8:06pm »
Quote Quote Modify Modify

on Dec 20th, 2003, 9:33am, Lemonface wrote:
BTW, I did have a brain MRI a little over a year ago ...

 
I would suggest another MRI because of the development of your "new" headpain attacks.
IP Logged

Where does the white go in a snowman when the snow melts?
Lori
New Board Hall of Famer
USA 
*****





   
Email

Gender: female
Posts: 526
Re: Stupid question from a newbie
« Reply #19 on: Dec 21st, 2003, 1:06am »
Quote Quote Modify Modify

Well, everyone else gave great advice so not much to add except..you need to get to a doc to rule out anything else serious such as tumors, etc. Especially since your mom had one and you had a fuzzy spot a year ago on your mri. Not trying to scare you, but be sure you do this for your own safety! If it turns out to be CH, you are surely in the right place. Please let us know what you find out from the doctor appt.
IP Logged

Blessings and PFDAN,
Lori

Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss