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Topic: Clusters a symptom ! (Read 2049 times) |
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Elaine
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Quote:| You certainly won't hear anything me me questioning your headaches. There was no question what kind of headaches I had either. Do I believe CH can be a symptom of some other, underlying condition... youbetcha! |
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DJ wrote the above. I agree with this statement and have often wondered about it. I think it has been for me and DJ and a few others here.
Any thoughts on this?
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Charlie
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Re: Clusters a symptom !
« Reply #1 on: Dec 26th, 2003, 6:59am » |
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I can't deny the possibity and certainly it's often aggravated by lifestyles. Dealing with this horror can make us try some things that may aggravate other conditions.
It's just so much damn fun. 
Charlie
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Mac
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Re: Clusters a symptom !
« Reply #2 on: Dec 26th, 2003, 1:49pm » |
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I was finally diagnosed has a chronic in March of this year. When I was giving my symptoms to the headache specialist he asked me what I did for a living.Then he asked me a couple of personality questions, nodded his head knowingly and diagnosed clusters. I never thought about it at the time but since then I have been curious about those "personality questions" 
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Tiannia
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Re: Clusters a symptom !
« Reply #3 on: Dec 26th, 2003, 2:35pm » |
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on Dec 26th, 2003, 1:49pm, Mac wrote:| I never thought about it at the time but since then I have been curious about those "personality questions" |
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ok I have to ask. What kind of "personality questions?" 
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Mac
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Re: Clusters a symptom !
« Reply #4 on: Dec 26th, 2003, 3:29pm » |
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Well Tiannia he seemed to elude to an A type personality. I didn't think of myself that way but he took into account what I did (musician for one) for a living. I'm not saying that this is an "artist thing" but maybe (I've eluded to this in other threads) a state of mind clusterheads get into. It does seem to have some connection with sleep and REM-at least in triggering attacks in most. What's REM but a state of mind? When I'm drawing I tend to get more shadows and feel more susceptible to clusters.When I'm playing music the adrenelin is pumping and I don't have that feeling of imminent doom. When were finished playing for the evening and I let down is when I'm more susceptible to an attack. I don't know if this makes any sense to you - I'm no sure if it does to me. 
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jonny
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Underlying condition = Personality
Huh?
...............................jonny
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BobG
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Re: Clusters a symptom !
« Reply #6 on: Dec 26th, 2003, 4:22pm » |
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Mac, Yep, makes since to me. Look at my tag line.
It has to do with stress and the lack of stress.
Sounds like when you're drawing you are relaxed. Bad thing. It'll bring on a headache.
When you're playing music and the adrenelin is pumping you are under stress and no headache. Good thing.
AFTER playing the music you relax and get a headache.
Please stay stressed.
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BobG
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Re: Clusters a symptom !
« Reply #7 on: Dec 26th, 2003, 4:32pm » |
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Tiannia, "personality questions"............
I've been watching this board and the folks here for a while now. Here's what I see............
Type A personnalities........
always busy in some way. We may be at work or on vacation but we are always on the go or thinking about being or doing something. We don't sit still for very long.
We seem to have addictive personalities.........
we seem to easily get addicted to something. Not necessarily something bad. Some may be addicted to their music. Some addicted to drugs or booze. Some are addicted to this web site. Some are addicted to TV, fast food and ciggaretts. Deoesn't make us good or bad, just makes us an addicted group.
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CJohnson
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Re: Clusters a symptom !
« Reply #8 on: Dec 26th, 2003, 4:39pm » |
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Cortisol = stress hormone.
Prednisone = man-made cortisol
Take prednisone = headaches stop (sometimes)
Stop taking prednisone = headaches come back (sometimes)
Vigorous exercise = immediate rise in cortisol (sometimes aborts headache)
After resting a while = cortisol goes way down (sometimes triggers headache)
PFDANs
-Curtis
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jonny
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Seems to moi'....that if presonality traits had ANYTHING to do with CH there would be a lot more clusterheads on this planet.
In MHO its got nothing to do with what you eat, smoke, drink, sleep or whatever!
Its in your head and thats that!!!!!
....................................jonny
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don
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Re: Clusters a symptom !
« Reply #10 on: Dec 26th, 2003, 5:00pm » |
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Not all Type As will have CH but
most Chrs will be Type A.
Not a cause, just a very common characteristic.
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| « Last Edit: Dec 26th, 2003, 5:01pm by don » |
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Tiannia
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Re: Clusters a symptom !
« Reply #11 on: Dec 26th, 2003, 5:01pm » |
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Personally - I cant see this as being personality based. About the only thing that it proves is that there might be a corrilation between stress (ie internalized pressure) and CH'es. There are people on this site that do not fit that personality profile, but they are the ones that dont rock the boat while the rest of us will purposly knock it over just to prove we can. The addiction is a different matter and I can see this a little bit more, but then again you are looking at people who are extremly strong willed. Like Bob said havng an addictive personality does not mean that you are an addict but it does mean that there is an obsession inus that when we find what we like that is all we do.
I do agree with the sleep or lack of it being a trigger of sort. The less sleep I get the more hits I take during the day. It is a given, and from talking with others, it seems to be similar with them.
Tia
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BobG
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Re: Clusters a symptom !
« Reply #12 on: Dec 26th, 2003, 5:06pm » |
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on Dec 26th, 2003, 5:01pm, Tiannia wrote:
I do agree with the sleep or lack of it being a trigger of sort. Tia |
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It's a damned if you do-damned if you don't situation.
The pain comes on during sleep and you become afraid to sleep. Then you don't get enough sleep, become overtired and the pain starts anyway.
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| « Last Edit: Dec 26th, 2003, 5:08pm by BobG » |
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Callico
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Re: Clusters a symptom !
« Reply #13 on: Dec 27th, 2003, 12:44am » |
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I think I have to agree with Tiannia somewhat in that it is the type A personalities who get heavily involved in what they are doing, i.e. this board. There are a lot of not type A people here and they are the ones who get criticized for lurking.
I think DJ may be on to something though that CH may be symptomatic of something deeper. I know that when I am undergoing the heavy attacks I also have other physical symptoms that may or may not be CH caused. Cause and effect are very difficult to determine though. Do I lose sleep because of clusters or do I get clusters due to lack of sleep, etc.
Bob, you are right on the money about stress.
jc
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Cerberus
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Re: Clusters a symptom !
« Reply #14 on: Dec 27th, 2003, 7:17pm » |
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In Keeping with the CH tradition that NOTHING is typical about CH.
I must at this point state that "I am definately NOT a type A personality." I love to procrastinate, I'd rather sleep more often than leave the house 90% of the time. Let alone do something. 
However, I AM an artist by nature and when I do get excited or anxious about something I can't let it go until either I've acted on it or its simply too late to do anything about it.
Here's an interesting point...........Stress I would almost definately say is a factor, 9-11 Boston came home a week later and BAM the worst cycle of my memory, this year no travel and no real significant stress factor, more mild of a cycle (course the proper meds helped that cause, as opposed to 2001). And I totally skipped the "Spring Fling" this past year, (really really hoping it'll happen that way again.)
Ramon
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Elaine
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Re: Clusters a symptom !
« Reply #15 on: Dec 27th, 2003, 9:39pm » |
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I think all but Jonny missed what I was saying.
Could clusters be a sympton instead of a illness all by its self?
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BobG
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Re: Clusters a symptom !
« Reply #16 on: Dec 28th, 2003, 1:25pm » |
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Yes Elaine, I also believe Clusters could be a symptom of something else. Just what I don’t know. We’ve all had CAT and MRI’s of our heads and the only thing found was emptiness.
Not to change the subject, again, but on the personality/lifestyle topic, from the OUCH site
Quote:Cluster headache and lifestyle: remarks on a population of 374 male patients.
Manzoni GC
Headache Centre, University of Parma, Italy.
To investigate the relation between cluster headache (CH) and lifestyle, some lifestyle factors were considered in a population of 374 CH male patients consecutively referred to the same headache center, including 306 with episodic CH, 22 with chronic CH unremitting from onset, 20 with chronic CH evolved from episodic, and 26 with CH periodicity undetermined CH patients had jobs involving greater responsibilities and were more frequently self-employed than controls. In addition, their past medical histories often reported head injury, either with loss of consciousness (13.4%) or without loss of consciousness (23.5% of cases). As regards nonessential consumption habits, both cigarette-smoking and coffee and alcohol intake were more frequently reported in CH patients than in the general population, with a higher prevalence in chronic CH as opposed to episodic CH sufferers. In particular, smokers accounted for 78.9% of episodic CH patients and 87.8% of chronic CH patients--12.9% of episodic CH patients and 19.6% of chronic CH patients smoked over 30 cigarettes a day. Alcohol abuse was reported in 16.2% of episodic and 26.8% of chronic CH patients, while coffee abuse was reported in 6.9% of episodic and in 36.6% of chronic CH patients. Rather than pointing to a single lifestyle factor directly implicated in CH onset, my review suggests a common trend among CH patients to overindulge in certain living habits.
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jonny
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Re: Clusters a symptom !
« Reply #17 on: Dec 28th, 2003, 1:59pm » |
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Grab a thousand people that dont have CH off the street and i'll bet you get the same results, or very close to.
.................................jonny 
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BobG
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Re: Clusters a symptom !
« Reply #18 on: Dec 28th, 2003, 2:05pm » |
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The study was done in Italy. Maybe those folks are just weird.
All I know is that it was copy/pasted from the OUCH site and we all know that if it wasn't true then it can't be put there. 
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jonny
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Re: Clusters a symptom !
« Reply #19 on: Dec 28th, 2003, 2:07pm » |
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HEY!!!!...Im Italian you bastard.....LMMFAO
..........................jonny
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BlueMeanie
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Re: Clusters a symptom !
« Reply #20 on: Dec 28th, 2003, 2:42pm » |
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on Dec 28th, 2003, 1:59pm, jonny wrote:| Grab a thousand people that dont have CH off the street and i'll bet you get the same results, or very close to...............jonny |
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Gotta agree with jonny. Just hard headed I guess. I can't see how the surveys help when there are millions like us elsewhere.
Interesting when you think of it. DJ is on to something about the cause & effect. What is a CH ? We'll probably never know.
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Carl_D
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Re: Clusters a symptom !
« Reply #21 on: Dec 28th, 2003, 9:56pm » |
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on Dec 26th, 2003, 6:17am, Elaine wrote:
DJ wrote the above. I agree with this statement and have often wondered about it. I think it has been for me and DJ and a few others here.
Any thoughts on this? |
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I've been saying this since when...1999? 2000?
I have also often pondered that maybe the head is merely suffering a symptom of something uderlying - possibly in the heart; since it is responsible for pumping blood. Maybe from a blockage somewhere between the heart and head. Who knows? DEFINITELY not the Doc's, that's for sure!
Carl D
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Ree
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Re: Clusters a symptom !
« Reply #22 on: Dec 29th, 2003, 9:54am » |
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I think you all have little microscopic Gremlins of some sort in your blood system... and depending on your remission is how long or fast they pump through to get to the arteries in your head... If you are eposodic your guys can swim faster or you have more of them...
no applause please......... the answer that's all... Now we gotta think of a way to kill the Gremlins... ree
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5-string
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Re: Clusters a symptom !
« Reply #23 on: Dec 29th, 2003, 9:56am » |
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[quote author=jonny link=board=general;num=1072440320;start=0#17 date=12/28/03 at 13:59:39]Grab a thousand people that dont have CH off the street and i'll bet you get the same results, or very close to.
Outside of this board, I've met 1(one)person that suffers from cluster headaches. I believe 1 out of 4 people I know are either:..type-A,over stressed, have a heart condition, take anti-depression meds,anti-anxiety meds,drink way too much,quit drinking altogether because they used to drink too much, commute back and forth to work on there bicycle,smoke 2 packs of lucky strikes per day,meditate,or are afraid to be alone at any time...
says alot about the people I hang-out with. 
....Mark..
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AlienSpaceBabe
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Re: Clusters a symptom !
« Reply #24 on: Dec 29th, 2003, 9:59am » |
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on Dec 29th, 2003, 9:54am, Ree wrote:I think you all have little microscopic Gremlins of some sort in your blood system... and depending on your remission is how long or fast they pump through to get to the arteries in your head... If you are eposodic your guys can swim faster or you have more of them...
no applause please......... the answer that's all... Now we gotta think of a way to kill the Gremlins... ree |
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ALLLLRIGHT!!! It's about time someone else saw the little men that mine eyes and brain matter in my head.... and now i know what they are - Gremlins! But... um.... I don't have any little guys that swim (females usually don't, do they?)
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