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(Message started by: cecile on Jan 2nd, 2003, 7:35pm)
Title: pregnancy and the devil
Post by cecile on Jan 2nd, 2003, 7:35pm
hello,
this site has change so much ! i didn't wrote on the board since a very long time ( a year maybe  :-/) : CONGRATULATION to the web master, it's a  bit complicated for me (my english is not very good) but it is fantastic  :o

i am still a bit lost, but it will be better after a while.

by the way, i am a 28 years old french girl and "of course"  suffuring of CH (for 8 years + i am chronic)

i come back to Ch supports groups cause actually i need support : we (my friend and i) have been trying to have a baby for two years now. it has been quite difficult because of my medication for CH. We had to wait a long time before my doctor "allowed" me to try to have the baby and i had to stop my treatment. After a very hard time, i finaly get pregnant.... but as things cannot be good for people like us, i lost the baby on the 23th december (merry christmas...)

well, i don't want to make everyone cry, i am just looking for somone like me who try to have a baby or who had children dispite this bloody CH.

Now as i hunderstood how the message board works, i'll try to come back more often (it won't be difficult after one year  ;) )

i hope somone will be able to give me informations and hope in particular.

Anyway, HAPPY NEW YEAR WITHOUT PAIN FOR ALL OF YOU

Cécile
Title: Re: pregnancy and the devil
Post by jonny on Jan 2nd, 2003, 7:45pm
Im sorry about the baby and your english is better than mine and I grew up here.

Prehaps someone will help you with information, Do come back from time to time.

............................jonny
Title: Re: pregnancy and the devil
Post by cootie on Jan 2nd, 2003, 8:03pm
My english is ok fer my own self made slang.......it's my spellin that sucks......hope ta hear from ya agin Cécile...I dunno how ta type french.........Pam,  with bad spellin 'n slang.................. ;)
Title: Re: pregnancy and the devil
Post by suzy617 on Jan 2nd, 2003, 8:16pm
Hi Cecile, Sorry to hear about your baby. I had 3 miscarriages myself so I  know how bad you feel. I did have 2 sons later but I did not take any medications for CH way back then, all they gave me at that time was pain killers which did nothing anyway(not while I was pregnant though)  so I really couldnt be of any help to you there, especially with you being chronic, must really suck.
Good luck to you and hoping you have a better year to come.

suzy
Title: Re: pregnancy and the devil
Post by cecile on Jan 2nd, 2003, 8:26pm
jonny, cootie & suzy thank you for your nice answers. Coming back in here i knew that i would find some help.

Cootie : "saperlipopette" is a PC-slang you can use with french people ;)
Title: Re: pregnancy and the devil
Post by cootie on Jan 2nd, 2003, 8:36pm
saperlipopette...whaz it mean...whaz it mean......should know that first shouldn't I.......wouldn't wanna make the wrong kinda french friends.....in case it means 'I'm easy' or sumthin.....ha-ha-ha-ha.......Pam  ;D ;D ;D ;D ;)
Title: Re: pregnancy and the devil
Post by Ueli on Jan 2nd, 2003, 8:41pm
Hi Cécile,

I'm sorry to hear about your baby. :(

But if you don't know it already, I'd like to bring to your attention to a web site on CH in French:

http://perso.club-internet.fr/cdelage/algies/index.html


PFNADs
Ueli
Title: Re: pregnancy and the devil
Post by catlind on Jan 2nd, 2003, 9:45pm
Cecile,

We do have a member who is expecting, her name is Melissa.  Perhaps you could email her and she can help answer some questions for you.

She isn't able to get online much these days because she's having a rough go of things I understand.  

Wish I could be of more help to you.

Cat
Title: Re: pregnancy and the devil
Post by Roxy on Jan 2nd, 2003, 11:42pm
Cecile,

I'm sorry about the miscarriage, they are pretty tough to handle.  Hopefully someone here will be able to give you some more info on the meds and pregancy.

Stick around, your English is pretty good....

Best wishes,

R
Title: Re: pregnancy and the devil
Post by Svenn on Jan 3rd, 2003, 1:08am
Hi Cécile,

I'm sorry to hear about your baby.  :( :( :( :(

Hopefully someone here will be able to give you some more info on the meds and pregancy

Take care

Svenn
Title: Re: pregnancy and the devil
Post by ZAIRA on Jan 3rd, 2003, 7:50am
Hello Cecile,
I'm sorry to hear about your baby.
I'll be praying for you.

Zaira
Title: Re: pregnancy and the devil
Post by catlind on Jan 3rd, 2003, 2:00pm
Cecile,

I spoke with Melissa via email and she gave me permission to post her email for you:

mfiltz@highstream.net

She is currently pregnant and is a clusterhead, so perhaps she will be able to help you with some info regarding meds and what to watch out for etc.

Just know that she is very very tired with her pregnancy and it may take her a day or two to reply to you.

Wish I could do more for you.

Cat
Title: Re: pregnancy and the devil
Post by kim on Jan 3rd, 2003, 4:12pm
Hello Cecile,

First, I am sorry about the miscarriage and send prayers and best wishes to you and your partner.

Second, for many, pregnancy actually seems to lesson or (as in my case) provide a remission from clusters.  I am episodic and  cannot speak for chronic.  

A good Neurologist can work with you during a pregnancy and find medications that do  not threaten pregnancy.  

Good  luck!
PFDAN.
Title: Re: pregnancy and the devil
Post by cathy on Jan 3rd, 2003, 4:53pm



Cecile..sorry to hear your sad news... :( hope you get the help you need here. Keep us posted.   :)

Cathy
Title: Re: pregnancy and the devil
Post by domm on Jan 3rd, 2003, 5:07pm
Cecile - I don't know a damn thing about this subject, but I wanted to welcome you to the board.
Good luck in finding what you need. The answers are here within this family.
domm
Title: Re: pregnancy and the devil
Post by 2late on Jan 3rd, 2003, 6:08pm
i'm very sorry to hear about the baby, continue to post & good luck to ya, things will work out, hang in there.                                                                                                                                                                                                      .........2late
Title: Re: pregnancy and the devil
Post by brain_cramps on Jan 3rd, 2003, 6:17pm

on 01/02/03 at 19:45:41, jonny wrote:
Do come back from time to time.

............................jonny


That doesn't sound like jonny to me!   IMPOSTER!!!
;D
Title: Re: pregnancy and the devil
Post by cecile on Jan 4th, 2003, 6:43am
thank you all, i just send a mail to Melissa

cécile
Title: Re: pregnancy and the devil
Post by Mark C on Jan 4th, 2003, 8:50pm
Welcome back Cecile,
Please keep us posted as to how you are doing. Good luck and God Bless.
Mark
Title: Re: pregnancy and the devil
Post by Belle on Jan 4th, 2003, 10:01pm
Cecile,

I too am sorry to hear of your loss. I myself have had 2 children. My son is 6 amd my daughter is 3. As Kim said, I went into remission during both of my pregnancies. But had to quit breastfeeding shortly after I  had both bcz the damn things returned and had to go back on meds. During that episode I went to the ER with an out of control CH. The doctor on duty said that I should keep myself pregnant and everything would be fine and he chuckled. What an idiot. Would have slapped him if I could have taken my hands off of my eye.

I hope things will be brighter in your future.

Belle
::)
Title: Re: pregnancy and the devil
Post by Anja24BR on Jan 5th, 2003, 10:36am
Hello Cécile!
I'm sorry to hear about your baby... but I hope you'll find ways to make your dream come true. I'll pray a lot for you okay?
Since i'm a begginer (I found out I had CH last friday, January, 3rd) I can't offer you much help.
But I hope things will end up working fine with you, okay?
PFNADs
Maria Rita
Title: Re: pregnancy and the devil
Post by KarynG on Jan 6th, 2003, 9:22pm
I also went into remission during the time that I was pregnant but began a cycle right after my son was born.  I won't ever forget nursing him while slamming my head into our headboard.  As soon as he was done, I would give him to my husband and lock myself in the bedroom crying, pacing, slamming.  My husband would come in the room with an imitrex injection and beg me to take it.  All this and a house full of family!  I made it through the six weeks taking excedrin every four hours 24/7.  It  tore my stomach all to hell and didn't stop the headaches but I was able to get through it.  This was before I knew about oxygen obviously.  I am also episodic though so that may make a difference during pregnancy.  Good luck to both of you and I too am sorry about your loss.
Title: Re: pregnancy and the devil
Post by cecile on Jan 7th, 2003, 1:36pm
It seems that all of you who had children are episodic and that you all had a very hard time just after your babies came to the world.

For my part i am chronic but since the day i got pregnant my pain stopped..... and the good news (yes there is one  ::) ) is that since i lost the baby - 2 weeks- i still have no pain  :) . this is one of the longest time without crises for me. Does it mean that i am turning episodic ? I wishe !!!!

cécile
Title: Re: pregnancy and the devil
Post by Melissa on Jan 7th, 2003, 8:24pm
Cecile, you have mail :)


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