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(Message started by: Jabeen on Jan 10th, 2003, 10:47pm)

Title: Does this happen to anyone else??
Post by Jabeen on Jan 10th, 2003, 10:47pm
Hello- I was wondering about 2 things that happen to me and was wondering if anyone else has a similar experiences? First- 99% my CH's only come at night when I am asleep-they wake me up suddenly, but often I think I hear a sound at the moment it hits. Its hard to describe, but in my mind it sounds like "Doink".  
Second-if I open my eyes too quick in the early morning,
it can set off a CH.  This generally only happens if I wake up when it is dark???

OK-I know this sounds odd...but no wierder than it sounded to me when I kept telling doctors about the symptoms I was having before I knew it was CH's.  Only you guys might understand what I am talking about? Or is this indiginous to my CH's??
Jabeen ??? ??? ???

Title: Re: Does this happen to anyone else??
Post by domm on Jan 10th, 2003, 10:53pm
Jabeen - sorry, not me. I got hit during the day and while asleep when in cycle and the only noise I hear when I get up is my knees and back cracking and popping. Sounds kinda like that breakfast cereal, you know - snap crackle pop.

"doink"?  - really?

domm

Title: Re: Does this happen to anyone else??
Post by Jabeen on Jan 10th, 2003, 11:05pm
I knew using that "doink" word would be a problem-but I cannot come up with a better description.  Its just a strange sudden sound I hear instantaneously as the CH hits.  I have debated for months whether or not to put this out there because it sounded weird-but then I figured "what the hell"! I was also curious if opening of the eyes was a "trigger" for anyone?  These are the things I wondering if they happened to other clusterheads-some, all, none?  This is THE place to go-n'est pas?
Jabeen

Title: Re: Does this happen to anyone else??
Post by brain_cramps on Jan 10th, 2003, 11:56pm

on 01/10/03 at 22:47:30, Jabeen wrote:
99% my CH's only come at night when I am asleep-they wake me up suddenly, but often I think I hear a sound at the moment it hits. Its hard to describe, but in my mind it sounds like "Doink".


99% at night for me too.  For me, its kinda like a white-hot halo that falls over one ear.  Sounds like 2 knife-blades going back'n'forth LOUDLY!!!


on 01/10/03 at 22:47:30, Jabeen wrote:
if I open my eyes too quick in the early morning, it can set off a CH.  


Not so much the opening eyes.  DON'T stand up really quick.    fOrck, that can HURT!!! :o :o :o

just my $.02s wurt,
grant

Title: Re: Does this happen to anyone else??
Post by JDH on Jan 11th, 2003, 12:03am
Jabeen,  
I don't think I've ever heard the noise that you're talking about at the onset but I have had k10's where I thought I could actually hear the pain...very weird.

Title: Re: Does this happen to anyone else??
Post by paul_b on Jan 11th, 2003, 12:06am
90% of mine at night. No "doink" but some fascinating dream memories. It all happens in REM, would rather have had the zzzzzz's.



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