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   Author  Topic: Clusters of different flavors  (Read 372 times)
daven
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Clusters of different flavors
« on: Mar 2nd, 2004, 8:13pm »
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Hi all,
Beginning last fall, I noticed I have 2 slightly different types of CH's. When my cycle started again it was the usual HA about 2 hours after gong to sleep. Within a couple of weeks I would have these, plus some bonus HA's during the day and before bedtime.  
I started a course of Prednisone and that ended the rem sleep HA in the middle of October. Since then I have had a cycle of 3-4 days of HA's usually in the evening that I can knock out most of the time with Tylenol Allergy sinus and O2, then a quiet day or two. No CH's at night (thank god!!) Then it repeats. The pain is identical to my rem CH's. I get swelling of the glands on the side and back of the neck several hours before the CH which, if rubbed, will trigger it. Most are around a 5-6 KIP, with an occasional CH that redefines my 10 Cry
Have any of you noticed different types of CH's?
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Scooter
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Re: Clusters of different flavors
« Reply #1 on: Mar 4th, 2004, 1:11pm »
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Years ago my cluster headaches use to come at night and come on a weekend or holiday (typical discrisption I think) then they changed where they would come any time but usually at the same time every day.  I also noticed I would get what they call shadows in this web sight,  I called it activity I guess about an hour before the big one hit but not always.  I also have had them start from the base of my neck and when rubbed it would bring it on.  Hope this gives you a little insight .
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henzey
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Re: Clusters of different flavors
« Reply #2 on: Mar 5th, 2004, 4:47pm »
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The cycle that just ended for me was downright weird.... Tongue...it started out like yours as a typical episode, but then it went on much longer and had more problems with persistent low-level clusters with major ones breaking through every few days.  Finally is gone  Grin but who knows when the beast will be back.  What I have learned from reading here and other places is that we will also likely experience some odd episodes, especially as we age.  Women are likely to experience a major change in clusters in 40s or 50s....may get better or may get worse.  May be related to hormones, but may not be.   So you are not alone in having a different cycle than usual!
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civics queen CHead
Dave in Merced, Ca.
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Re: Clusters of different flavors
« Reply #3 on: Mar 6th, 2004, 11:36am »
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Hi Scooter,
Yep ... i know what shadows are. Pain is a great teacher and we definetly become sensitive to the precursors to a CH.
Hi Henzey,
I guess you are describing the same type of CH's I am having. Most peak at about a 3-4 KIP. About every 3 or 4 days I'll have a few in the 5-7 range. These are all tougher to beat down than the ones that came at night. This is why I posted the topic as 'different flavors' because they really are distinctly different.
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