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        New Message Board Archives >> 2004 Cluster Headache Specific Posts >> 20 yrs doning the dance
        
(Message started by: Rod_v._Devil on Nov 30^th, 2004, 4:29am)

Title: 20 yrs doning the dance
Post by Rod_v._Devil on Nov 30^th, 2004, 4:29am

Tonight I read a lot of posts. I'm 37 and with 18 - 24 month PFs. cycle lasting 3 weeks to 4 months. Sansrt was the best 8 to 10 a day down to 3-5 a week. Taken off the market (no longer proiftable.) So I'm on the Zone 80 mg a day 40am and pm. This time around I hit 15k (Ive gone beyond my 10kips of the past.) Attacks of longer then 3 hrs back off a bit and seem to get stuck. At tihs point I used stadall (off THe Market as of last year) Now A 2X does of viciden seems to bring the pain to a level of satifactory dicomfort. But leves me stoned and as a teacher I can't go to work that way. Blood pressuer is a larger issue this time around and O2 helps the day attacks. Removed all salt from my dite + 3X H2O. Lots of ice showers to distract, 20% benzoncane on the gum and roof eases the root canal feeling during a dance. Menthal gel on the rubed ion the side of the head (The nerve from the eye to the base of the neck, seems to ditract for a time)

This is week 3 for this cycle. This is the worst cycle my wife and I can remember.
PS. Please be caful with imitrix it almost killd me.

Title: Re: 20 yrs doning the dance
Post by nani on Nov 30^th, 2004, 9:33am

Welcome and I'm sorry you're here. Have you tried oxygen to abort? Vicodin doesn't help CH and yes, as a teacher you need all your wits about you. Look around the board here and at the OUCH site to find some treatment options. You probably need some preventatives and oxygen. Talk to your doc. Ice packs help during a hit, also. Good luck and I hope you find some some relief.

Title: Re: 20 yrs doning the dance
Post by unsolved1 on Nov 30^th, 2004, 10:32am

Sorry you're dealing with the devil. I know how you feel because I've been doing it too for the past 16 yrs.

on 11/30/04 at 04:29:18, Rod_v._Devil wrote:

At tihs point I used stadall (off THe Market as of last year).

You mean Stadol ?? Stadol IV, IM, and NS are still available. I had some last month. (Little good did it do)

Hang in there

PF Wishes,
Unsolved

Title: Re: 20 yrs doning the dance
Post by marlin on Nov 30^th, 2004, 11:14am

I used a pred taper this cycle. Was getting 2-3 CH/day when I started the taper. Immediately eliminated the CHs. Had 1 CH 2 weeks ago, around 1 week into the taper and that was it. Been off the pred for a week now and no CHs. I think this cycle is over for me.

You may want to see about the pred. Also, there are tips on how to split a trex dose in half. Perhaps that would be a little easier on your system. Without the trex I don't know what I'd do.

Good luck w/ your CHs, and get a spell checker teacher.

Title: Re: 20 yrs doning the dance
Post by Rod_v._Devil on Nov 30^th, 2004, 11:24am

O2 works 50% of the time. The tank is by my bed. The vicadin breaks a stuck CH. What do I mean by stuck? After 3-5 hrs and the 9-10 kip is a 4-7 and just stays (stuck) I think that a mucele spasum at the base of my neck presses the same nerve keeping it inflamed. I'm going to ask my Dr. to cortizone the spasum. Then cross my fingers. Only about 40% of my CH fade to nothing. I know I'm treating the pain and not the problem but sometimes you retreat from a battle to win the war.

Title: Re: 20 yrs doning the dance
Post by Carl_D on Nov 30^th, 2004, 11:47am

I think the 'stuck' level 4-7 feeling (especially in the eye / eyebrow, temple area) is what is known as shadowing. Some pain meds do help with shadows, but there is always the risk of rebound headaches as well.

If your BP is too high, then talk to your doc about Verapamil. It is a BP med that also works as a preventative for CH.

One coping trick I do alot is to press my fingers into my jawline to try and cut off pressure from the neck, under the ear, leading to the temple. I learned long ago that if you press on your temple with your hands or something during a full blown CH, you're just adding to the pressure. Hope your get some relief soon.

Peace,
Carl D

Title: Re: 20 yrs doning the dance
Post by Rod_v._Devil on Nov 30^th, 2004, 3:45pm

Verapamil caused a bad rash and I had to stop. The shame is Sansert worked for me and it is gone by way of the $$$$$.