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New Message Board Archives >> 2004 Cluster Headache Specific Posts >> Re: calling all chs need info stat PLEASE !!!!!S
(Message started by: vig on Dec 16th, 2004, 5:14pm)

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by vig on Dec 16th, 2004, 5:14pm
standard triggers:
booze
nitroglycerin
odors/perfumes/scents
MSG
nitrates
pressure changes
Fall/Spring!

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by becky8 on Dec 16th, 2004, 5:19pm
Sorry but this true....

Booze and everything and anything! Not being smart its just things that set me off sometimes don't and other times do. Sorry I wasn't much of a help to you  [smiley=huh.gif]

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Bandette74 on Dec 16th, 2004, 5:49pm
currently, on page three in the general forum is a thread entitled "triggers?" that many kind folks contributed towards. feel free to check it out.

personally, i'm far too new to this illness to offer any personal info that would be helpful. sorry & best wishes to ya!!

Title: Re: iM COUNTING ON YOU GUYS WE IN THIS TOGETHER
Post by Bandette74 on Dec 16th, 2004, 6:16pm

on 12/16/04 at 16:25:33, snook wrote:
My ch friends, one more thing any list of meds that might kick a ch into the beast, pain meds over the counter anything you might have had an experiance with. ANYTHING THANKS ( no time to get involved researching now YOUR MY BEST INFORMATION SORCE) THANKS SNOOK

you mean meds that might worsen it or help it?

ibuprofen, tylenol and asprin are like sugar pills for me.

codiene only helps if it's a kip 4-6. kip 7+ and i'm just high with a CH

strong odors, espcially cigar smoke, anger the beast.
i avoid mentholated things (cough drops, etc. for similar reasons).

dry heat angers the beast, too, for me.

the "triggers?" thread on page three in the general forum did have a more comprehensive list from others, though. many say they don't have triggers, and i've found that while i seem to have things that make the ch's worse, they don't necessarily bring them on.

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by marlin on Dec 16th, 2004, 6:37pm
Other than booze, red wine in particular, REM sleep arouses my beast.  That's when he gets real angry and throws me out of bed in the middle of the night.

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by RichardN on Dec 16th, 2004, 8:40pm
Alchohol . . . .any form, real beer, brandy, wine (whine, whine).  

 Also, you might think about quantity of food.  A heavy meal can (and has) trigger a ch for me . . . . . the beast likes to attack when you relax.  There was a thread on this quite a while ago, and I'm sure someone here still has the info.

 Cigar smoke also will kick in the shadows for me almost always.

   Luck and PFDANs to ya,

           Richard

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by CC2004 on Dec 16th, 2004, 9:01pm
Once bout has started - BANANAS!  cheese, yoghurt? maybe dairy products
definitely champagne, sob :-[

Im fine with caffeine
Im vegetarian and seem OK with nuts and eggs  but have been taking it very easy on eggs because not sure about them - I have been eating a lot of toast and bread - thats safe!

STRONG NON-FOOD TRIGGER is going from activity to inactivity - most evenings sitting down to eat or watch TV but Im wise to that now - I eat standing, and I dont sit for long just watching TV, if I do I periodically shake my head & move about - it works for me, but then of course inevitable bedtime, and then awake again 40-60 minutes later

hope this helps - feel free to ask more
take care and stay strong


Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by CC2004 on Dec 16th, 2004, 9:15pm
Ive been getting these for 28 years and used to go mad trying to figure it all out - I ended up thinking I had so many food triggers it couldnt be that, it must be the act of eating!  
This time after 28 years, I have made the connection with inactivity - that is a major trigger!
I am an artist and sit on my bum at the easel all day, but I am working and active in my way.  Too often as soon as I leave the studio, get something to eat and sit down to watch TV & relax while I eat, it strikes!

(thats the nastiest thing about this beast - we get so wrecked and exhausted but so terrified of waking with another, because they are always worse when you're woken with them and they've just had that extra tiny bit of time to set in before you can get your meds...  I stayed up for 72 hours at the beginning of this week because I was so terrified of getting another K10 but of course I had to sleep eventually - 6-9s since

Yesterday I found this site and today I started magnesium and the water treatment so I have hope again


Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by nani on Dec 16th, 2004, 11:32pm
My triggers: (i'm chronic w/ cycles)
alcohol (when in cycle)
bending over
sneezing
sun in my eye
no food triggers that I'm aware of.

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Biker on Dec 17th, 2004, 12:20am
Too many nuts, or peanutbutter will trigger me.
The smell of bacon, or eating bacon.
Exhaust fumes, or potent fossile fuel type cleaning agents.
Heat seems to be a trigger--working in mid summer.
paint fumes.
chochlate, or any of those cheap snacks ya get in a plastic wrapper.  
Stress-----like working in potentially dangersous places.
Stress----like having the spouse question me about something I would rather not talk about.
Stress---like seeing blue flashing lights in the rear view mirror-(that happened once  ch made me pull off the road for over an hour)
resting after a hard days work.
any kind of alochol.
smoking pot brought on ch
When Im in my CH cycle, I think they just come on by themselves whenever they want to.  These are just some of the triggers I have learned to avoid.  

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by ski2k on Dec 17th, 2004, 2:59am
Gotta agree with the inactivity trigger.
Doesn't always happen, but I sure see a difference if I'm busy all day or just sitting around.  Always makes you afraid to relax.

No food triggers I have found. Helps me to eat a little something when the shadows hit.

Good luck and PF wishes!!!

                                                  ski

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Sylvan on Dec 17th, 2004, 9:42am
Still new to this - but here's a few things that seem to bring on the beast for me:

1. Sun glare
2. camera flash
3. skipping meals
4. Supressing the desire to choke the living Sh*t out of someone who desperately deserves it
5. Strong odors - especially cologne
6. And of course - the biggie - REM sleep.

Title: Thank you
Post by snook on Dec 17th, 2004, 4:05pm
  I got alot of helpful info and also checked  out suggested sites. wish pf days to ya snook [smiley=girlflash.gif] [smiley=girlflash.gif] [smiley=wave.gif] [smiley=wave.gif]

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by toolong on Dec 19th, 2004, 3:01pm
Let's see where do I start? Yankee candles,loud purfume,loud music,anything loud.Beer,wine,whiskey, anything that has been smoked.Smoke.Sex(only if to orgasim)But you you have to go for some things!Too little sleep,too much sleep.Bright lights,flashing lights........shit everything seems to be a trigger.Only relief I have is this site and my wonderfull 02.I'm going to ask santa for a pain free day so so I'll know what it's like again.Here's to no triggers and a pain free new year for everybody!!! :PDavid

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by docdog on Dec 19th, 2004, 6:54pm
Well, I've been fighting the beast off and on for 13-14 years and have found that different cycles highlight different triggers.

Alchohol, smoking, perfumes, nuts, chocolate, inactivity, and sleep or naps almost always bring out the beast. But sometimes the smell of gasoline when filling up the tank, bright sunshine on a snowy day, a hot environment, MSG, nitrates, some strong cheeses, too much reading, stress from job, any smell of smoke, etc.

Hang in there. When you are in a cycle, keep a diary if you can and identify anything that seems to be a potential trigger for each CH. I've been doing that for years and while it never seemed to do any good, at least I felt like I was trying to find the silver bullet.

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by cmhybrid on Dec 20th, 2004, 8:58am
Sleeping patterns/sudden interruption and cigarette smoke...

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Chillrmn1 on Dec 26th, 2004, 8:54am
Only two things I'm certain of trigger my clusters:
1. REM Sleep.
2. Alcohol - This I no longer partake in whether in cycle or not since it's a known trigger for me.

I have driven myself crazy, or crazier, in the past trying to find a commonality or trigger for my clusters. Finally found peace, if that's possible, with myself by accepting that whenever that damn hypothalmus or whatever grey matter of the brain, etc., starts freaking out, the headache begins.

PFDANS TO ALL FOR THE HOLIDAYS!

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by unsolved1 on Dec 26th, 2004, 2:13pm
Breathing and sleeping is a trigger for me  :-/

Unsolved

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Kris_in_SJ on Dec 26th, 2004, 8:03pm
When I'm in cycle, there are only 2 sure-fire triggers:

1) The clock striking 9:00 PM
2) Getting overheated while working at something physical

I'm one of the rare few that alcohol doesn't trigger, but I've always been triggered to illness by perfumes (not CH, just some weird allergy reaction).

Kris

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Kirk on Dec 29th, 2004, 10:56pm
1. Alcohol
2. Heat

Title: Re: calling all chs need info stat PLEASE !!!!!S
Post by Wendy1 on Dec 30th, 2004, 11:04pm
My Order....

1.  Alcohol (ESPECIALLY Red Wine)

2.  Heat, temperature, exercising, etc.

3.  Talking on the phone can trigger one, i.e. getting   tensed up.  Driving, same thing.

4.  MSG.... Processed foods like lunchmeats, cheese slices, hotdogs, etc.

Good Luck



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