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(Message started by: dagger on Dec 22nd, 2004, 8:28am)

Title: question
Post by dagger on Dec 22nd, 2004, 8:28am
Hi all,  

Has anyone's doctor told them that the ch's will stop when you get into your 40's or 50's?  My brother's neurologist at the Mayo clinic told him that and it was true for him.  In another area of the board I posed the question when responding to somebody's post and nobody there had heard of that.

Title: Re: question
Post by karma on Dec 22nd, 2004, 8:33am
Sorry to say that thats not true. It may stop for some folks or go into a long long remission. But age has nothing to do with it although some people have reported longer remissions and shoreter cycles as they get older. Others have not been so lucky.

Title: Re: question
Post by don on Dec 22nd, 2004, 8:57am
I wish someone would tell my Doc that so he could in turn instruct me to no longer have CH.

Title: Re: question
Post by Kris_in_SJ on Dec 22nd, 2004, 9:15am
If that were only true, I would never have had CH's.  Mine started at the tender young age of 41!

Kris

Title: Re: question
Post by JJA on Dec 22nd, 2004, 9:44am
From what I have read, I would say that some people get relief in their old age. Only a lucky few have them go away completely. I'm planning on being a lucky one!

Jesse

Edit: I did not mean to imply 40's and 50's are old age.  

Title: Re: question
Post by guesst on Dec 22nd, 2004, 12:34pm

on 12/22/04 at 08:28:42, dagger wrote:
Hi all,

Has anyone's doctor told them that the ch's will stop when you get into your 40's or 50's? My brother's neurologist at the Mayo clinic told him that and it was true for him. In another area of the board I posed the question when responding to somebody's post and nobody there had heard of that.

I've been told that they just go away sometimes, but they haven't for me yet.

Title: Re: question
Post by RichardN on Dec 22nd, 2004, 1:03pm
Mine didn't start til' I was 55 - - - must have gotten someone elses  - - - where do I go to complain?

 OH . . .  sorry, HERE of course!

  Be safe and PF

        Richard

Title: Re: question
Post by Sylvan on Dec 22nd, 2004, 1:13pm

on 12/22/04 at 09:15:03, Kris_in_SJ wrote:
If that were only true, I would never have had CH's. Mine started at the tender young age of 41!

Kris


Ditto

Title: Re: question
Post by allan_r on Dec 22nd, 2004, 9:07pm
My doctor has told me that it is rare for CH to continue into the 60's and that he has not had patients in that age range.

I am counting down the years and holding out hope.
Please do not post any contrary statistics, knowledge, or anecdotal evidence to offset this one ray of hope I still hold near and dear to my heart.

allan r.

Title: Re: question
Post by Grandma_Sweet_Boy on Dec 22nd, 2004, 9:19pm

on 12/22/04 at 21:07:58, allan_r wrote:
My doctor has told me that it is rare for CH to continue into the 60's and that he has not had patients in that age range.

I am counting down the years and holding out hope.
Please do not post any contrary statistics, knowledge, or anecdotal evidence to offset this one ray of hope I still hold near and dear to my heart.

allan r.


Take me to your doctor - I need to educate him! ;;D

Title: Re: question
Post by Bill-G on Dec 22nd, 2004, 10:07pm
Had my first CH at 57, 3 months ago.  

Title: Re: question
Post by pubgirl on Dec 23rd, 2004, 4:41am
Dagger

Sadly this is total bollocks. The opposite is more likely to be true

Quote from Goadsby:

"It can occur at any age, although the most common age of onset is the third or fourth decade of life"

W the B

Title: Re: question
Post by Filbert on Dec 23rd, 2004, 7:05am
From the OUCH uk info leaflet

"An encouraging piece of information for sufferers is that a substantial proportion of them can expect longer pain-free periods as they age. "

Written by Dr Manjit Matharu who used to be a research registrar to Prof. Goadsby.

Hope is a great thing!

Filbert.

Title: Re: question
Post by don on Dec 23rd, 2004, 10:11am

Quote:
Written by Dr Manjit Matharu


And a well educated compassionate guy. I know this from an hour or so in conversation with him.

This guy is on our side.

Title: Re: question
Post by nani on Dec 23rd, 2004, 10:15am

Quote:
" An encouraging piece of information for sufferers is that a substantial proportion of them can expect longer pain-free periods as they age. "


God bless those that bring this aging boomer some hope. After 31 years of CH...maybe I only have another 10-15 to go... :-/

Title: Re: question
Post by Filbert on Dec 23rd, 2004, 1:47pm

on 12/23/04 at 10:11:52, don wrote:
And a well educated compassionate guy. I know this from an hour or so in conversation with him.

This guy is on our side.


Don's absolutely right! Dr Matharu gives a presentation on CH at virtually every OUCHuk regional meeting. Not only will he not accept a fee but also refuses any payment for his travel or accomodation expenses! He certainly cares!

  Merry Christmas
                              Filbert.

Title: Re: question
Post by marlin on Dec 23rd, 2004, 2:27pm
In my case I can honestly say the CHs condition has improved with age.  Cycles are getting further apart and a little less intense.  The decrease in intensity could very well be due to the meds.  I rarely let myself go past a K4 without blasting myself with trex.  The exception would be if I've already taken 3 shots within 24hrs.

I used to fight the beast without meds and to this day I don't know how I made it.

Title: Re: question
Post by bobbio56 on Dec 23rd, 2004, 8:09pm
Hi,
Got em 8 years ago at 40. Gone chronic for the last 2 yrs. freq. and intensity up. 3 weeks ago I broke my own record of 8 Imitrex shots in 24 hrs.  I'm hoping this is their "life" peak and it's all downhill from here. Have to agree, hard to believe how I survived the early years.  Just goes to prove, things get better with time. PFD! Bobbio.



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