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   Author  Topic: Re: how Long?  (Read 1613 times)
Jeepgun
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Re: how Long?
« Reply #25 on: Dec 16th, 2004, 3:17pm »
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on Dec 16th, 2004, 2:11pm, exhausted wrote:
I ask the questions you give the answers...none of you are doctors and none are experts.

 
If years and years of suffering, trying various treatments, and having first-hand experience doesn't make us experts, then why are you even bothering to come here in the first place?
 
"I ask the questions and you give the answers," is a real shitty attitude, and is guaranteed to get you off to a very bad start, here. You asked questions and people were patient and provided support, care, and answers. If you don't provide accurate and complete information, you are going to get inaccurate and incomplete answers. GIGO.
 
Try being less circumspect and confrontational. You just might find that people are more willing to help than you seem to believe.
 
Cheers,
-Frank
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Margi
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Re: how Long?
« Reply #26 on: Dec 16th, 2004, 3:44pm »
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on Dec 16th, 2004, 2:11pm, exhausted wrote:
you attacked me and have attacked my girlfrined in the past

 
your "girlfrined"'s name wouldn't happen to be Marie would it?
 
 
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135447360 135447360   mondocharlie   mondocharlie
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Re: how Long?
« Reply #27 on: Dec 17th, 2004, 1:19am »
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There are always gaps between cluster hits. They will subside quickly and start up later....perhaps minutes, hours or days while in cycle. There has never been an instance of uninterrupted cluster attacks lasting as long as you say. I doubt anyone could stand it.  
 
Perhaps you mean that these attacks come and go over this period of time with some periods of considerably lesser pain rather than completely uninterrupted.  
 
One good way to be pretty sure they are clusters is that they will wake one out of a sound sleep. Also, no one can lie down or rest during an attack. If that's the case, they almost certainly aren't clusters
 
There is a lot of information here and I encourage you to look it over. Please come back and let us know how you are doing.
 
Charlie
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Carl_D
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Re: how Long?
« Reply #28 on: Dec 17th, 2004, 2:49am »
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I might be shot by everybody for saying this but...
 
It IS possible that what could be happening is your girlfriend gets hit with a level 10 attack, but then it reduces to a heavy shadow, around a level 3-5. For some cluster sufferers this is the case, and they are never really pain free in a cycle.  
 
However, if it is peak pain for the entire 10 hours, then it is not cluster, though the symptoms may be mimmicking CH, it could be any various form of migraine.  
The pain meds, anti depressants and Xanax (anti anxiety) will have no effect on a cluster. Only an abortive such as o2 breathed at 10-15 litres for about 10-20 minutes, or a Triptan such as Imitrex, Relpax, Zomig, Axert, etc. I have had clusters for 17 years and in that time, the longest one has ever lasted was 4 hours - and that only happened twice. They usually clock in at about 45 minutes to an hour and a half.
 
Exhausted... there are alot of good people here giving you good advice. However, your lack of info is raising the red flags that this isn' CH but another form of headache. I'm sure a doctor may have told your girlfriend she has Clusters. But there are alot of people who DON'T have clusters that are diagnosed as having them, and then others who DO have them but don't know what it is. In any case, if you're girlfriend has not had an MRI, she needs to ASAP to rule out a possible tumor.  
 
Peace,
Carl D
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Re: how Long?
« Reply #29 on: Dec 17th, 2004, 3:32am »
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on Dec 16th, 2004, 2:11pm, exhausted wrote:
to the morons and judgemental cretins...I am a male alwyas have been and I ask the questions you give the answers...none of you are doctors and none are experts.
I am not rude unless attacked, you attacked me and have attacked my girlfrined in the past, her and I just talked about it and she told me as much as to who would be supportive and who wouldnt be....and she got it right regarding who would help.
 
thanks to those that can read

 
Who the FUCK do you think you are, coming into MY house and asking questions without giving ANY information to base an answer on and then come off with an attitude like that?
 
Seems to me that if you were worried one iota about someone's health, you would be falling all over yourself to give us the info we need to give an intelligent answer.
 
And if we are not intelligent enough to answer your questions as you seem to feel, then why come here and ask in the first place?
 
You want to ask the questions?  Ask me where the door is bi+ch.
 
 
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marieinthesprings
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Re: how Long?
« Reply #30 on: Dec 17th, 2004, 5:20am »
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on Dec 16th, 2004, 3:44pm, Margi wrote:

 
your "girlfrined"'s name wouldn't happen to be Marie would it?
 
 

 why do u think it was me.............or are u talking about another Marie????? Not nice dropping names......and nope not me, i have a husband not a boyfriend and i ask my own questions.........cheers...........Marie
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Margi
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Re: how Long?
« Reply #31 on: Dec 17th, 2004, 9:36am »
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nope, sorry Marieinthesprings, I was referring to another "Marie" of a time long ago and far away.  Sorry for the confusion, I didn't mean you.  The other Marie also posted as "August", etc.
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kathy copelin, ch.com 8/8/06
john_d
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Re: how Long?
« Reply #32 on: Dec 17th, 2004, 10:08am »
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me thinks the troll has vacated the thread
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Re: how Long?
« Reply #33 on: Dec 17th, 2004, 8:28pm »
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on Dec 17th, 2004, 10:08am, john_d wrote:
me thinks the troll has vacated the thread

 
 
Darn, and I had my stick all sharpened up!
 
DD
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Re: how Long?
« Reply #34 on: Dec 29th, 2004, 10:59am »
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thanks for the input
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john_d
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Re: how Long?
« Reply #35 on: Dec 29th, 2004, 11:45am »
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on Dec 29th, 2004, 10:59am, exhausted wrote:
thanks for the input

 
 crackup
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