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Topic: 2005 Lets get it started knowing... (Read 1508 times) |
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Ree
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2005 Lets get it started knowing...
« on: Jan 1st, 2005, 11:51am » |
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Who is in cycle right now? Who is hurting? This is what we are here for... Let's show our support for our Cluster family?
Are you in cycle, or in pain chronic?
Got meds, need meds... taking new meds?
Got support... wouldnt it be great if like AA you pain sufferers had sponsors to vent to maybe someone out of cycle right now and of course the same sex... a cluster buddy... ???? I think this is a cool idea...
and STFU Don!!! No pickin on the Reester... I know sometimes I act like a cruise director ... Get up and exercise your ideas as a citizen of Clusterville!!!~~(I am such a dink) Ree
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don
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Re: 2005 Lets get it started knowing...
« Reply #1 on: Jan 1st, 2005, 11:53am » |
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No reply neccesary. 
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Ree
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Re: 2005 Lets get it started knowing...
« Reply #2 on: Jan 1st, 2005, 12:16pm » |
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Ok I fell into that one... How is your head (on your shoulders) Don???? ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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nani
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Re: 2005 Lets get it started knowing...
« Reply #3 on: Jan 1st, 2005, 12:25pm » |
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That's a good idea, Ree. I wouldn't want anyone to feel limited to one buddy, though. Just so everyone knows...I am available to be supportive anytime. I am so thankful you all have been here to be supportive of me when I need it. 
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don
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Re: 2005 Lets get it started knowing...
« Reply #4 on: Jan 1st, 2005, 12:33pm » |
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Quote:| How is your head (on your shoulders) Don???? |
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Yes it is. Been there for quite some time now.
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Sean_C
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Re: 2005 Lets get it started knowing...
« Reply #5 on: Jan 1st, 2005, 12:49pm » |
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Don, she meant she wasn't talking about your little head LMMFAO 
How little is it Don???????
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john_d
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Re: 2005 Lets get it started knowing...
« Reply #6 on: Jan 1st, 2005, 1:25pm » |
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Thanks Ree. I am in cycle, and support from the message board is always nice, though for some reason now that I am actually getting hit I feel less and less like posting here. Isn't it supposed to be the opposite? Oh well. It sounds like a good idea though.
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Sean_C
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Re: 2005 Lets get it started knowing...
« Reply #7 on: Jan 1st, 2005, 1:30pm » |
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on Jan 1st, 2005, 1:25pm, john_d wrote:| Thanks Ree. I am in cycle, and support from the message board is always nice, though for some reason now that I am actually getting hit I feel less and less like posting here. Isn't it supposed to be the opposite? Oh well. It sounds like a good idea though. |
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I get that way too John, its because I'm usually exhausted from my bouts with the beast, or I'm afraid the puter screen is gonna set it off, or I'm in fear of the next hit etc etc etc. Life with him is definately life altering in many ways.
Stay around though, lots of people here go unsupported and need hope. Just being around helps them alot.
Sean.....................
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john_d
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Re: 2005 Lets get it started knowing...
« Reply #8 on: Jan 1st, 2005, 1:36pm » |
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yep, i'm exhausted, but I am gonna go do yoga- for real, and then go run. I'm fricken tense all over.
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Tim_Z
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Re: 2005 Lets get it started knowing...
« Reply #9 on: Jan 1st, 2005, 1:51pm » |
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If anyone needs to vent, or just get something off of their mind let er rip.
Tim
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Ree
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Re: 2005 Lets get it started knowing...
« Reply #10 on: Jan 1st, 2005, 2:03pm » |
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trying to get the visual of you doing yoga John!!!! a big dude like you that is so cool... and so good for you... I hope it helps... We are all here for you and completely understand when you cant post... just know it will end... and knowing that is half the battle... love to you Ree
come on people i really want to know who is hurting.., share, vent and let us know.........love ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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john_d
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Re: 2005 Lets get it started knowing...
« Reply #11 on: Jan 1st, 2005, 2:52pm » |
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on Jan 1st, 2005, 2:03pm, Ree wrote:| trying to get the visual of you doing yoga John!!!! a big dude like you that is so cool |
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lol, sometimes I don't realize how big I am but my size becomes very apparant when doing yoga and I am stretched from one side of a big-ass room to the next. It's not a pretty site either, but it is an almost perfect exercise.
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Ree
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Re: 2005 Lets get it started knowing...
« Reply #12 on: Jan 1st, 2005, 9:58pm » |
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ok... who else is in cycle... is everyone mad at me or something........... we should all know who is hurting... I will bump this thread til you tell me.......... ree
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nani
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Re: 2005 Lets get it started knowing...
« Reply #13 on: Jan 1st, 2005, 10:08pm » |
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I'm chronic...does that count? Lately I've been having a little bit of an easier time of things. Mostly shadows...a couple of k6's a day. But they only last about 20 -30 minutes. I could use some shingles vibes....haven't seen a dr yet, but I only have a few real ones...most are still just dry painful bumps. The hurt comes in waves...weird. Almost like CH in a way. Waves that come on suddenly, ramp really high and then stop. But it keeps me from needing pain meds. I really think the Neurontin I take is affecting it (them?).
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Sean_C
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Re: 2005 Lets get it started knowing...
« Reply #14 on: Jan 1st, 2005, 10:09pm » |
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Just shadows for me Ree, nothing unusual, just here for support if someone needs it, and to piss of the others inbetween. 
Love back at ya
Sean.............................
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Grandma_Sweet_Boy
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Re: 2005 Lets get it started knowing...
« Reply #15 on: Jan 1st, 2005, 10:11pm » |
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on Jan 1st, 2005, 9:58pm, Ree wrote:| ok... who else is in cycle... is everyone mad at me or something........... we should all know who is hurting... I will bump this thread til you tell me.......... ree |
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Ree - no one could ever possibly be mad at you for anything.
I'm out of cycle but when it's my turn, I'm gonna be here lookin for you and your special vibes and hugs.
Carol
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BarbaraD
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Re: 2005 Lets get it started knowing...
« Reply #16 on: Jan 1st, 2005, 10:24pm » |
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I'm chronic and getting hit right now big time. The damn weather won't quit changing and I swear the barometer going up and down is when mine hit the worst.
Good idea Ree.... Clusterbuddy. I have a couple that I vent to cause I don't like to whine on the board.
I've always e-mailed or Pmed anyone I thought was in real trouble.
But you're right -- this board is for support and that's what we should be giving each other. Well a little pissing off in between.... that just adds a little laugh to the whole thing. 
Hugs BD
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Sean_C
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Re: 2005 Lets get it started knowing...
« Reply #17 on: Jan 1st, 2005, 11:10pm » |
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vig
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Re: 2005 Lets get it started knowing...
« Reply #18 on: Jan 1st, 2005, 11:18pm » |
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bump
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Jonny
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Re: 2005 Lets get it started knowing...
« Reply #19 on: Jan 1st, 2005, 11:22pm » |
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on Jan 1st, 2005, 10:11pm, Grandma_Sweet_Boy wrote:| Ree - no one could ever possibly be mad at you for anything. |
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Carol's right Ree.......By doing so one would risk death by boot!!
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Langa
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Re: 2005 Lets get it started knowing...
« Reply #20 on: Jan 1st, 2005, 11:24pm » |
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Been episodic for 26 years. My last cycle, I thought, ended in October (4 month cycle), but since have had a couple of low-level clusters, ice-pick headaches and last week a kip-10 out of nowhere. Been shadowing since then; shadowing right now actually. Getting welder's oxygen on Monday in case it happens again. I have no idea if these are isolated "events" or am starting another cycle right after the last. Usually my cycles start June and go for about 8 weeks, this year I have no clue what's going on. Next choice of treatment for me is the shrooms.
I do have a clusterbuddy and my very special friend Nani has been a great support. We were actually raised in the same neighborhood...it's a small world.
Thanks Ree...I think a sponsorship program is a great idea. 
Langa
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nani
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Re: 2005 Lets get it started knowing...
« Reply #21 on: Jan 1st, 2005, 11:27pm » |
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Quote:| my very special friend Nani |
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How was dancing at the Copa, chica?
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Langa
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Re: 2005 Lets get it started knowing...
« Reply #22 on: Jan 1st, 2005, 11:30pm » |
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on Jan 1st, 2005, 11:27pm, nani wrote:
How was dancing at the Copa, chica? |
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No dancing... 
Was called at the last minute to sing at my friends club. I do that once a week for extra money. Never been kissed by so many drunk strangers in my life once the clock hit midnight... 
I read yours went well and you actually got to drink!
Langa
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Langa
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Re: 2005 Lets get it started knowing...
« Reply #23 on: Jan 1st, 2005, 11:32pm » |
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By the way, Redd gave me a great recipe being that she used to sing too...Brandy with honey and lemon...boy was my voice smooooooooth after that...
Thanks again Redd!
Langa
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When you saw only one set of footprints, it was then that I carried you.
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nani
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Re: 2005 Lets get it started knowing...
« Reply #24 on: Jan 1st, 2005, 11:33pm » |
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Quote:| Never been kissed by so many drunk strangers |
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Were they cute, at least? Yeah...I had a few margaritas. Enjoyed it... but ended up staying up all night with the effen shingles. My normal shadows are nothing compared to these right now.
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Others may come and go, but MY power is MINE.
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