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Topic: Suffering and in pain (Read 1810 times) |
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Sharpie
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Re: Suffering and in pain
« Reply #25 on: Jan 13th, 2005, 9:28am » |
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Had another attack.  Woke up at 5:20am this morning to a very severe one (kip 9). My husband tried everything to help. I tried to get up and walk it off, tried laying there like I normally do and roll back and forth, tried hot compress, turned shower on in bathroom and stood there, took an excedrin, I didnt want to take my midrin because I was concerned if I took it I wouldnt be able to go into work. Turns out my CH is still here. This ones lasting a long time. Its a little over a shadow right now. But i still feel it as I type. Cant go into work anyways.
We got a humidifier last night and honest to pete I think thats what triggered it this morning. Every time I breathe a shooting pain goes through my nose, my eye and my temple area, all on the right side.
This morning all I kept telling myself, was I am going to be okay, its going to go away. Please god make it go away.
I called my doctors office at 8:00 this morning, spoke to the nurse. I begged and cried to see a Nuerologist. She said I had to see my doctor first. I told her I cannot live like this. Its affecting my everday activity. My is appointment at 1:15pm. My husband it taking off of work to take me so he can help and maybe better explain whats going on. I know this HAS to be CH. It has too.
Thank you for your support. 
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nani
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Re: Suffering and in pain
« Reply #26 on: Jan 13th, 2005, 9:44am » |
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Even a primary care doc can prescribe oxygen and drugs like Imitrex and Verapamil and lithium. Print out what you can from here and show it to him/her. You may be able to get some relief while you wait to see a Neuro. Go here for some helpful info:
http://www.clusterheadaches.org/resources/dr.htm
Keep us posted...and hang in there... 
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Lobster
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Re: Suffering and in pain
« Reply #27 on: Jan 13th, 2005, 1:27pm » |
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So how did you appt turn out Sharpie?
What do your prescriptions look like?
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Sharpie
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Re: Suffering and in pain
« Reply #28 on: Jan 14th, 2005, 2:24pm » |
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I am so unbelievably amazed at the support here. I feel so loved and you dont even really know me.  Thank you for the PM's that were sitting in my box.
Okay, here is the update:
As you already know I had an "attack" yesterday morning. I went to my appointment at 1:15. Before I left I took a shower to see if that would help and I took my midrin. I still had some shadowing and slight pain (that I could handle)
I went in with all the print outs I could find on Cluster Headaches. My husband took notes as I had an attack that morning and he went with me to help better explain the pain I was in and what I said at the time. I felt it was neccessary to have him there (after reading several posts on this messageboard!!!) because I felt I wasnt explaining myself well with my doctor.
She said it was a ver HIGH possibilty that it was Cluster headaches, but expressed that it is so rare in woman. But from the frequency , timing and the amount of pain I am in, and where it was located (thank you lord for the diagram at mayo someone posted!!!) it did lean towards that. Soooo..
Great news! I have an MRI & MRA schedule on Monday to rule out other causes. I have an appoint with a Neurologist ON the 25th of JAN! She is being so proactive and supportive. I am so grateful
She insisted I take my midrin as soon as I feel like I am going to get "hit" At first, I was taking excedrin, THEN I would take the midrin. She said just take the midrin right away. She also prescribed me Indomethacin (apparently its suppose to help) and I am to take it every day. This is all suppose to be safe for me, because my husband and I are trying to have a baby.
After I see the neorologist and get an official diagnosis, I can look into various treatments.
It all has come together for me, the once thought sinus headaches were in fact this. Its just now, they are considerably worsening.
I appreciate the support here and I cant tell you enough how much I have gleened from here and how I feel like other people know whats going on. I have read numerous post and felt I could relate so much. It really has been very empowering to finally figure out what the heck was wrong and is wrong and hopefully to find a fix.
Thanks.
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RichardN
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Re: Suffering and in pain
« Reply #29 on: Jan 14th, 2005, 2:47pm » |
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WAY TO GO SHARPIE!
And you're wrong, we do know you . . . . . or at least the"devil" in you. 
Wish your doc had given you a script for 02, but make sure you take the 02 info in for your neuro. I'll shut up about it now . . .. . . but I will nag you til' you get to try it.
Having a name-for-the-pain makes a huge difference doesn't it?
Congratulations again, and best wishes
Be safe,
PFDANs,
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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nani
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Re: Suffering and in pain
« Reply #30 on: Jan 14th, 2005, 2:59pm » |
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That's good news Sharpie!! Yes, please do as Richard says and talk to your neuro about oxygen...very safe if you're trying to conceive. I'm so glad you're getting some help...love to you, nani
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Sean_C
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Re: Suffering and in pain
« Reply #31 on: Jan 14th, 2005, 4:04pm » |
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Clusters are not rare in women, men just complain more.................................did I just say that 
Good luck
Sean....................................
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nani
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Re: Suffering and in pain
« Reply #32 on: Jan 14th, 2005, 4:10pm » |
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LMAO...I love you Sean!!!
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CC2004
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Re: Suffering and in pain
« Reply #33 on: Jan 14th, 2005, 5:35pm » |
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on Jan 14th, 2005, 4:04pm, Sean_C wrote:Clusters are not rare in women, men just complain more.................................did I just say that
Good luck
Sean.................................... |
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hehehe 
Its not so rare in women. It seems stats (in the '60s)used to be 6 men to 1 woman, now apparently 3 to 1 - but maybe what Sean says and its really 50/50!
Plenty of us women here
I must say again, I agree with oxygen - it seems to be the MOST effective & quickest abortive, its not a drug and therefore as Nani says its safe for you, providing you've got no issues like heart problems or whatever.
Also I have to say it again, please try WATER WATER WATER - it kicked my cycle in the butt - but you have to drink heaps like I said before
So you've got some excellent drug-free options...
Continue to keep us informed wont you
CC
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MOMO3
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Re: Suffering and in pain
« Reply #34 on: Jan 14th, 2005, 6:49pm » |
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Sharpie,
Welcome, glad you found us. I am a supporter for my brother, who has suffered with chronic clusters for over 10 years and just recently found this site. I must tell you, your husband sounds like a wonderful supporter, and you are lucky to have each other. Hope you find some PF time soon and good luck with everything. Michelle
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unsolved1
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Re: Suffering and in pain
« Reply #35 on: Jan 14th, 2005, 10:28pm » |
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Welcome Sharpie ... Grab an oar
PF Wishes,
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Lobster
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Re: Suffering and in pain
« Reply #36 on: Jan 15th, 2005, 1:12am » |
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I just feel bad that your GP did not give you something.. even a few Imitrex NS or Zomig NS samples.
Man... I would crush someones throat to get at a triptan or some o2 now that I know the relief they bring. It pains me to see someone doing without.
Where are you... update your map on your profile?
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maureeng96
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Re: Suffering and in pain
« Reply #37 on: Jan 15th, 2005, 2:18am » |
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Sharpie,
I was on the OUCH site earlier tonight, and I was looking at the headache comparison chart (even though I know my boyfriend has CH). It listed a headache that I never heard of before - (CPH) Chronic Paroxysmal Hemicrania. Many of the characteristics seem to be similar to CH, but CPH is more prevalent in women, while CH is more prevalent in men. CPH also seems to be more frequent, shorter duration attacks.
Obviously, that's not to say that you do not have CH just because you are a woman, but CPH might be worth researching. I would be willing to bet that someone here is familiar with it. That's all the info I have, but I wanted to pass it along.
Good luck to you and your husband.
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Renee
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Re: Suffering and in pain
« Reply #38 on: Jan 15th, 2005, 7:00am » |
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Sharpie,
If you are actually suffering from CPH the indomethacin will help alot! This is not to say that indo won't help with CH.
I'm a chronic ch'er and indomethacin is a prevent for me. Recent studies have shown that indomethacin can be beneficial as a prevent but only for women.
Get some oxygen...
Isn't it nice to know you are not alone in this pain now?
Good luck at the neuro,
Renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
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jillybean
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Re: Suffering and in pain
« Reply #39 on: Jan 15th, 2005, 4:59pm » |
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Hi Sharpie,
So sorry you are suffering. Isn't it amazing how hard you have to fight to get help? Don't the silly doctors know you don't feel well? Congrats on finding the strength to keep pushing them. Great that hubby goes with you. My hubby also often cannot express his attacks etc and wants me to explain for him.
I'm glad it appears you have a loving husband to get you through this.
I have been doing the tests and seeing the specialists with my husband. He's the sufferer in our house.
I hope both our journeys lead to pfdan soon!
Jill
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rickyshot
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Re: Suffering and in pain
« Reply #40 on: Jan 16th, 2005, 10:59pm » |
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HI Sharpie. I am a woman too who has suffered 20 years spring and winter with this. Like you when it first started, I though I could never live through it. Well I have although it has affected my life greatly. When not in cycle, I have wonderful complicated migraines to deal with.  Life is beautiful lol. You have come to the right place.
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unsolved1
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Re: Suffering and in pain
« Reply #41 on: Jan 16th, 2005, 11:32pm » |
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CPH'ers have 20 - 50 attacks per day. Pain much like CH. Attacks are much shorter ( a few seconds to 5 minutes or so ) Indomethacin is said to be very effective on CPH but not effective in CH.
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