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Topic: POLL : IF you had Choice of doc???.... (Read 939 times) |
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E-Double
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POLL : IF you had Choice of doc???....
« on: Jan 20th, 2005, 11:43am » |
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other than Goadspy...................
Where would you try to go or who would you try to see?
Thanks!!!
Eric in NY considering NECH
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| « Last Edit: Jan 20th, 2005, 11:43am by E-Double » |
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nani
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Re: POLL : IF you had Choice of doc???....
« Reply #1 on: Jan 20th, 2005, 12:01pm » |
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Kudrow
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thomas
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Re: POLL : IF you had Choice of doc???....
« Reply #2 on: Jan 20th, 2005, 12:12pm » |
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Meilie 
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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maureen
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Re: POLL : IF you had Choice of doc???....
« Reply #3 on: Jan 20th, 2005, 12:26pm » |
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Considering I have to wait 4 more months to see a nuero finally I would see anyone if it was soon!
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broomhilda
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Re: POLL : IF you had Choice of doc???....
« Reply #4 on: Jan 20th, 2005, 12:28pm » |
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I might choose him!!!
Sorry Eric, my neuro is great here in BC, Dr R but hes too far I believe for you!!
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Suck it up Princess...
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Bob P
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Re: POLL : IF you had Choice of doc???....
« Reply #5 on: Jan 20th, 2005, 12:48pm » |
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I'll stick with my doc. He doesn't know squat about clusters so I treat myself. I tell him what I want and he writes the scripts. I even tell him what dose I want.
If you can't cure their ignorance, use it to your advantage!
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thomas
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Re: POLL : IF you had Choice of doc???....
« Reply #6 on: Jan 20th, 2005, 1:42pm » |
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on Jan 20th, 2005, 12:48pm, Bob P wrote:I'll stick with my doc. He doesn't know squat about clusters so I treat myself. I tell him what I want and he writes the scripts. I even tell him what dose I want.
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BINGO!!!!!!! Sounds like we have the same doc.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Lizzie2
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Re: POLL : IF you had Choice of doc???....
« Reply #7 on: Jan 20th, 2005, 5:31pm » |
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Well my family doc said no to the idea of me telling him what scripts to write based on the research. I dunno what they're scared of...look what happened to me when going to a real-live headache specialist!!!
My choice would be my former neuro, Dr. Charles Siow...who currently lives in Singapore.
After him, I'd choose Dr. Noah Rosen at Jefferson. He's amazing!! Even if he is still young...he is so *interested* in what he can learn from patients. I love that. 
Dr. Young and I have our moments of getting along or not...
I'm considering a second opinion up at NECH just to see what they have to say about a few things. I know they don't have an inpatient facility anymore, and I have a habit of needing to wind up in the hospital a lot...but maybe they don't have one because they've developed treatment strategies that WORK. That would be wonderful.
So....sticking with Dr. Young at Jefferson for now. I think I would have gotten along with him a lot better if I hadn't started off with Dr. Siow! Dr. Siow was like a 2nd father to me...and that spoiled the rest of my doctor-patient relationships because now if someone isn't as nice or wanting you to be as much of a treatment partner, then I get mad!
Best of luck whatever you do!!!!
L-double
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lionsound
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Re: POLL : IF you had Choice of doc???....
« Reply #8 on: Jan 20th, 2005, 5:38pm » |
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on Jan 20th, 2005, 5:31pm, Lizzie2 wrote:
I'm considering a second opinion up at NECH just to see what they have to say about a few things. I know they don't have an inpatient facility anymore, and I have a habit of needing to wind up in the hospital a lot...but maybe they don't have one because they've developed treatment strategies that WORK. That would be wonderful. |
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I go to NECH, and you're right, they don't have an inpatient place anymore. They used to at Greenwich Hosp. They are considering sending me for inpatient in Michigan at MHNI(and NECH would do the follow-up) if my treatment plan doesn't pan out.
Oh, I see Dr. Sheftell there and have other various consultants, some docs, some not , that I work with
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| « Last Edit: Jan 20th, 2005, 5:40pm by lionsound » |
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Redneck
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Re: POLL : IF you had Choice of doc???....
« Reply #9 on: Jan 20th, 2005, 6:47pm » |
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No good headache docs here. Have a friend in internal med, that writes me scripts. The only good one Dr. Moore moved to Oak Park Il. Dammit. I want him back!
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Lizzie2
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Re: POLL : IF you had Choice of doc???....
« Reply #10 on: Jan 20th, 2005, 7:00pm » |
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on Jan 20th, 2005, 6:47pm, Redneck wrote:| No good headache docs here. Have a friend in internal med, that writes me scripts. The only good one Dr. Moore moved to Oak Park Il. Dammit. I want him back! |
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Hey...my family lives in Oak Park Cool A bit far from here, though!!!
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E-Double
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Re: POLL : IF you had Choice of doc???....
« Reply #12 on: Jan 20th, 2005, 9:52pm » |
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Thanks everyone!!
I guess for me it's not really enough to read on a list rather than to "hear" from "failiar" people who they deal with and they are comfortable with.
Willing to travel......
Will send my Resume if needed
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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thomas
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Re: POLL : IF you had Choice of doc???....
« Reply #13 on: Jan 21st, 2005, 8:59am » |
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on Jan 20th, 2005, 9:52pm, E-Double wrote:
Willing to travel......
Will send my Resume if needed |
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We'll keep the light on for ya.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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cat14
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Re: POLL : IF you had Choice of doc???....
« Reply #14 on: Jan 21st, 2005, 9:57am » |
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on Jan 20th, 2005, 9:29pm, vig wrote:| I went to Oak Park High School |
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That explains it!!!!
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kissmyglass
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Re: POLL : IF you had Choice of doc???....
« Reply #15 on: Jan 21st, 2005, 4:44pm » |
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Dr. James Butler. No question. he is very knowledgeable about Clusters and gives me whatever scripts I want, refillable for a year. i could get 30 statdoses a week if i could afford them... i couldn't ask for a better doc & he is 30 minutes from the NECH, in Connecticut.
Kev
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Renee
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Re: POLL : IF you had Choice of doc???....
« Reply #16 on: Jan 21st, 2005, 5:57pm » |
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Dr. Sheftell at NECH! He's my neuro and I live in Texas. It is worth the trip for me as no one around here could treat my ch properly.
And, MHNI is often a referral Dr. Sheftell will use for inpatient. He recommended MHNI to me but his treatment plan kept me out of MHNI.
I have a local neuro for rescue relief.
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
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Biker
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Re: POLL : IF you had Choice of doc???....
« Reply #17 on: Jan 21st, 2005, 7:30pm » |
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Whatcha mean Doc? For general doc, I prefer a young lady. Their fingers are small and that helps when they do the protocology feel. For headache??? Well my first Neruo hit the nail on the head. Dr. Ramadan at the Cincinnati headache center. He is hard to get an appointment with, and right expensive. He does neruo-sugery, and travells world wide treating people with enough bucks to hire him. He also suffers from Clusters and other types of head hurts. I feel extremely lucky to have had my first appointments with him. Would never have happened if not for a special nurse friend.
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toolong
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Re: POLL : IF you had Choice of doc???....
« Reply #18 on: Jan 21st, 2005, 7:44pm » |
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Live in a semi-large city (Indianapolis)and have yet after 20 years found a doctor that can come up with a plan to cure my CH.Seen quite a few over the years and taken every drug you can imagine.Still chronic after all those years.Pray for a magic pill that will make them disappear.But then who will pay the doctors bills if they find a cure? Hell no BMW's or fancy homes.Anyway working on a kip4 right now getting ready to hit the 02.If anybody knows of a real CH doctor in the Indianapolis area please let me know.  David
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Kris_in_SJ
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Re: POLL : IF you had Choice of doc???....
« Reply #19 on: Jan 21st, 2005, 7:59pm » |
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I'm with BobP and Guesst. I have the best GP in the world. I've been the neuro route several times. Small community, what can I say?
I do the research ... my doc writes the scripts. Basically, I'm teaching him. However, at my last appointment he mentioned he has two new patients with diagnosed clusters that he is treating (successfully) with the things I've learned here. He also mentioned he's a sometimes "lurker."
If I lived in a big city with access to the best and most knowledgeable cluster docs, things would probably be different. For now, I'm my own advocate and am grateful for every link and tidbit of knowledge I gain.
Do whatever you need to do, Eric! Big hugs,
Kris
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Redneck
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Re: POLL : IF you had Choice of doc???....
« Reply #20 on: Jan 21st, 2005, 10:17pm » |
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Really no docs here now, fired the sorry so and so I was using. No help at all. Guess I will let the beast run its course this time. May drive 5 hours to either Dallas or New Orleans. Oh well, been in this boat before.
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sandie99
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Re: POLL : IF you had Choice of doc???....
« Reply #21 on: Jan 22nd, 2005, 3:05pm » |
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Well... let's see, I have already seen the two best docs here in Finland.
So, I have no idea who to turn next... Whose the best?
Any ideas, family...?
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Re: POLL : IF you had Choice of doc???....
« Reply #22 on: Jan 22nd, 2005, 7:28pm » |
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Gator
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Re: POLL : IF you had Choice of doc???....
« Reply #23 on: Jan 23rd, 2005, 1:40am » |
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ROFLMAO DON
There have been a few times I wished I could see him.
Hmmmm. Maybe that's not so funny.
Gator
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E-Double
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Re: POLL : IF you had Choice of doc???....
« Reply #24 on: Jan 23rd, 2005, 8:34am » |
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It's "funny" because we all fight it out and don't .....
and have had the same thought or atleast I'll admit
Damn Funny Though 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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