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Topic: Thankful I found this board (Read 377 times) |
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KristenNYC
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Thankful I found this board
« on: Jan 22nd, 2005, 8:46pm » |
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Hi Everyone,
My name is Kristen, I am 27 years old, and I have been suffering with episodic CH's for the past 12 years.
I have gone as long as 5 years without a headache, and doom knocked on my door again about 6 weeks ago. For years the only way I dealt with them, was an ice pack, crying, and pacing. No doctor ever knew what was wrong with me. MRI upon MRI revealed nothing. 2 weeks ago, I made an appointment with a neurologist, and he was the first doctor in 12 years to figure it out. I went with printouts from this board. He prescribed me Verapamil, once a day, and Imitrex shots. I am at the point right now where they are only lasting about 20 minutes or so without meds. I only have 3 shots left, and because of me medical insurance, I cant get another 4 for 20 days. So, I have been suffering without the meds, just in case I get a real whammy. Mine are like clockwork. 10 pm, and 5 pm. I find that the trex shots really work for me. When I get my 5 am CH, I usually log on here and read, and before I know it, its gone.
Well, I just wanted to introduce myself, and say thank you to ALL of you, for being here, sharing your experiences, and giving helpful advice.
Kristen
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Langa
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So many donuts, such little time...
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Re: Thankful I found this board
« Reply #1 on: Jan 22nd, 2005, 8:51pm » |
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Hi Kristen and Welcome!
Quite a few of us from NY, myself included...maybe we'll do a meet and greet soon.
Langa 
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When you saw only one set of footprints, it was then that I carried you.
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KristenNYC
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Re: Thankful I found this board
« Reply #2 on: Jan 22nd, 2005, 8:52pm » |
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Enjoying this snow? UGH
Nice to meet you. Where in New York are you?
Im on long island, amityville to be precise.
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don
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Re: Thankful I found this board
« Reply #3 on: Jan 22nd, 2005, 8:55pm » |
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Check your PMs Kristen
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Langa
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So many donuts, such little time...
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Re: Thankful I found this board
« Reply #4 on: Jan 22nd, 2005, 8:58pm » |
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on Jan 22nd, 2005, 8:52pm, KristenNYC wrote:Enjoying this snow? UGH
Nice to meet you. Where in New York are you?
Im on long island, amityville to be precise. |
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We have about 1 foot already  ...i'm upstate NY, but I have lots of family in NYC...visit at least monthly...
Langa
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When you saw only one set of footprints, it was then that I carried you.
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KristenNYC
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Re: Thankful I found this board
« Reply #5 on: Jan 22nd, 2005, 9:12pm » |
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We have about 11 inches here so far. Stuck in the house. Wish this could have happened during the week so I wouldnt have to go to work! 
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don
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Re: Thankful I found this board
« Reply #6 on: Jan 22nd, 2005, 9:17pm » |
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Can someone post up that pic of the head showing the hypothalamus gland?
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Redd
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Re: Thankful I found this board
« Reply #7 on: Jan 22nd, 2005, 9:24pm » |
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The hypothalthingy gland or the trigeminal nerve pic don?
I only have the trigeminal nerve pic.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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E-Double
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Re: Thankful I found this board
« Reply #8 on: Jan 22nd, 2005, 9:35pm » |
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You mean this one?
Just kidding.......
Pleasure to meet ya Kristen!
I'm not to far from you.....over on the North Shore, East Northport. Whew Alottttta Snow today.
Anyway, wishing you the very best and if you ever want to meet up for coffee or need something I'm literally a drive away and can help with what ever ya need!
Welcome to the family.
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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don
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Re: Thankful I found this board
« Reply #9 on: Jan 22nd, 2005, 9:36pm » |
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Either or both.
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Redd
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Re: Thankful I found this board
« Reply #10 on: Jan 22nd, 2005, 9:41pm » |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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don
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Re: Thankful I found this board
« Reply #11 on: Jan 22nd, 2005, 9:52pm » |
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Thanks Redd.
I owe you one sexual encounter. Kinda guy that I am.
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Redd
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Re: Thankful I found this board
« Reply #12 on: Jan 22nd, 2005, 9:57pm » |
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on Jan 22nd, 2005, 9:52pm, don wrote:Thanks Redd.
I owe you one sexual encounter. Kinda guy that I am. |
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I'm not really the bath house type Don but thanks for the offer. 
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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RichardN
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Re: Thankful I found this board
« Reply #13 on: Jan 22nd, 2005, 11:14pm » |
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Hi Kristen
If you haven't already, do investigate the 02 as abortive. For those of us it works for . . . is a miracle! I can't take Imitrex and 02 is my only abortive . . . and it works for most of them. Verapamil is my preventative and I also take 6mg Melatonin . . . also water/water/water.
Welcome to the family,
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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Gator
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Re: Thankful I found this board
« Reply #14 on: Jan 23rd, 2005, 2:34am » |
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One of the hypnothingy. LOL
Here is a website that lets you see the different layers of the brain via MRI/PET Scan. Select the box that say Show List. On the popup page, scroll down to Brain-Axial to the right of Diencephalon you'll see the option for hypothalamus.
http://www.med.harvard.edu/AANLIB/cases/caseNA/pb9.htm
Gator
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Thankful I found this board
« Reply #15 on: Jan 23rd, 2005, 7:52am » |
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Welcome to CH family online, Kristen! 
I am so sorry that you have CH, though... 
I wish that one one had it.
But I am glad that you found this site. It must have been horrible for you to suffer so long time alone.
Best wishes & PFdays,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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don
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Re: Thankful I found this board
« Reply #16 on: Jan 23rd, 2005, 7:57am » |
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Kristen,
That there is the culprit.
The hippopatamus gland.
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| « Last Edit: Jan 23rd, 2005, 7:59am by don » |
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ShariRae
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Re: Thankful I found this board
« Reply #17 on: Jan 23rd, 2005, 12:50pm » |
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Hi Kristen.....
Welcome aboard!! NY here too,,, but I am in the Buffalo/Niagara Falls area...stick around..it's the best group of folks you will ever know!!!
Huggs
Shari
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Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
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BarbaraD
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Hugs to ya
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Re: Thankful I found this board
« Reply #18 on: Jan 24th, 2005, 5:47am » |
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Welcome Kristen,
Clusterville folks are here to help. Feel free to PM or e-mail any of us when you need help. We've been there, done it all and lived to tell about it. We're the best support you'll ever find.
Hugs BD
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What don't kill ya, Makes ya stonger!
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