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Topic: Anyone have experience with Actiq Lollypops on CH' (Read 333 times) |
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Dallas_Denny
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Anyone have experience with Actiq Lollypops on CH'
« on: Sep 6th, 2005, 12:55pm » |
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Just completed an almost 14 week cycle the end of June and during that time I was referred to a pain management doctor. He prescribed Actiq (active ingredient is fentynil and is FDA cert for break thru cancer pain) and said he has had great success with it for CH sufferers. Of course, UHC declined coverage!!!! Anyway the Doc fought the battle for me and they have now approved the script for a year @ 30 lollypops /mo ($585.00!!!) but thought I'd see if anyone has any experience with them before I fill it.
Thanks,
Dallas_Denny
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Karla
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Re: Anyone have experience with Actiq Lollypops on
« Reply #1 on: Sep 6th, 2005, 4:10pm » |
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Talk to your dr about using the duragesic patch (fentanyl). I get 2 boxes of 5 patches each. I put on one patch every 3 days. I was chronic having 8ch/day for several years. I have been pain free for about 3 years now. I have gotten my life back due to these patches. I don't feel high or doped up either and can fully function. I would ask my dr to go this route because it has got to be cheaper and you will have around the clock coverage. To me 30 lolipops wouldn't have done me any good getting 8 ha a day. I would run short before the months out. Maybe that isn't your situation. Good for you then. Plus I hate the taste of the pops and there is no taste in the patch. There are a small few of us who use the patch and have had wonderful pain relief. My insurance had no complaints paying for the meds as long as it keept me out of the hospital and HR. Good luck.
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Karla
suffer chronic ch
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Kris_in_SJ
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Re: Anyone have experience with Actiq Lollypops on
« Reply #2 on: Sep 6th, 2005, 7:06pm » |
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Hi Denny,
Welcome. It's rather hard to answer your question without knowing more about you. For example, how long have you been diagnosed as a clusterhead? What other abortives, preventatives, etc. have you tried? What about Oxygen therapy - have you tried that?
I mainly ask, because most clusterheads prefer to avoid heavy-duty drugs and narcotics (and most knowledgeable neurologists do too).
If this is a last resort for you, you might try searching the archives. A number of clusterheads have tried this therapy when all else failed.
Sorry you're suffering. Sending PF Wishes,
Kris
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CHTom
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Re: Anyone have experience with Actiq Lollypops on
« Reply #3 on: Sep 6th, 2005, 11:54pm » |
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Actiq is an excellent abortive for break-through pain for some sufferers, especially since you are using the fentanyl patch-no mixing of different drugs. Good luck and PFDANs.
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