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Topic: New Poll... article sparked an idea... (Read 1127 times) |
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Sandy_C
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Burn that bra!
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Re: New Poll... article sparked an idea...
« Reply #25 on: Sep 20th, 2005, 7:56am » |
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Hysterectomy at 43. First CH cycle at 53. No connection whatsoever.
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catlind
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Taz taught me the cluster dance
  
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Re: New Poll... article sparked an idea...
« Reply #26 on: Sep 20th, 2005, 8:49am » |
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I was on the pill for alot of years, then was a guinea pig for the Norplant transdermal birth control system in Canada (96) and that screwed my life up in many ways, and coincidentally corresponds with what is believed to be the first bout of CH. Norplant was removed and had another round in 98, then had a tubal. Diagnosed with endometriosis caused by autoimmune issues, and had an ablation done at which point they removed the tubal clips. Ayden was born a year later  Have since had a hysterectomy to 'fix' the headaches. There seems to be no correlation between birth control and my CH. I started into a 3 month on 3 month off cycle 4 months after Ayden was born (my 3rd child) and have since progressed to chronic.
Not saying there is no connection, because the hypothalamus and it's partners play a role in all hormone function, but I do not believe it was any direct connection in my case.
My latest MRI of a list of many in the last 5 years has shown an 8mm pituitary cyst/tumor. The neuro surgeon so 'kindly' explained that even if they remove the growth it will not likely remove my clusters or migraines.
Cat
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| « Last Edit: Sep 20th, 2005, 8:52am by catlind » |
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If yer gonna be stupid, ya gotta be tough
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Ree
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Re: New Poll... article sparked an idea...
« Reply #27 on: Sep 20th, 2005, 10:36pm » |
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on Sep 18th, 2005, 8:09am, E-Double wrote:I have CH and enjoy Oral.
Have enjoyed Oral prior to recognizing any clear cut cycles of CH.
May have had CH in my younger years prior to giving or receiving Oral.
Diagnosed last year with having CH after a decade of misdiagnoses and still having Oral.
Turned Chronic in March and still partake in Oral.
Will continue to have CH throughout my life and will not let it take over!!! This will not effect my use of Oral!
I have to live!
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ya pig!!! now get....
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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Ree
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Re: New Poll... article sparked an idea...
« Reply #28 on: Sep 20th, 2005, 10:39pm » |
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Maybe I should change the poll......sheesh....how many of US HEAD CASES....OF ALL TYPES HAVE HAD HYSTERECTOMIES....... I DID! REDD DID.... KIM DID... WHO ELSE..... AHHHHHHHHHH we've been robbed......lol love ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespockethttp://www.prohawaiian.com
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madaline
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Re: New Poll... article sparked an idea...
« Reply #29 on: Sep 22nd, 2005, 3:09am » |
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Hi Ree, Well, I had a hysterectomy about 9 1/2 years ago and my CH started soon after that and have always been chronic. But then how do we account for the male CH's? Madaline
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rossimft
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Doggonit! These CHs are making my eyes pop out!!!
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Re: New Poll... article sparked an idea...
« Reply #30 on: Sep 22nd, 2005, 10:56am » |
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I started with CH at age 17. Went on the pill at age 19. Been off the pill for 3 years at age 36. I've had CH every 18 months regardless of pill/ no pill. Oh, yes, and I still have all my goods!!
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Sheri
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PollyPocket
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Re: New Poll... article sparked an idea...
« Reply #31 on: Sep 29th, 2005, 10:44am » |
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"Have enjoyed Oral prior to recognizing any clear cut cycles of CH.
May have had CH in my younger years prior to giving or receiving Oral.
Diagnosed last year with having CH after a decade of misdiagnoses and still having Oral.
Turned Chronic in March and still partake in Oral.
Will continue to have CH throughout my life and will not let it take over!!! This will not effect my use of Oral!
I have to live!"
Guess I should put in my 2 cents worth... pill @17, CH'S at 23, now 42. No hysterectomy, tubes tied at 40. In cycle now.
But I love oral too.
Oh wait,.... guess you didn't mean it that way. My bad.
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| « Last Edit: Sep 29th, 2005, 10:47am by PollyPocket » |
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
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ckelly181
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To err is human; To forgive, canine.
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Re: New Poll... article sparked an idea...
« Reply #32 on: Sep 30th, 2005, 7:00pm » |
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No pills, no hysterectomy.
No relation to headaches.
Chris
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gabesmom
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Re: New Poll... article sparked an idea...
« Reply #33 on: Oct 7th, 2005, 11:24am » |
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Started getting CH as soon as I started the pill. When I went off the pill, my cycles stopped. (didn't figure this out for 7 years) Then when I got a TB test I IMMEDIATELY got an attack. I was fine through two pregnancies, but exactly 3 1/2 months after each birth, got a six week attack. My doc says I'm lucky and we know my triggers and that I can be classified as an a typical cluster patient with hormonal triggers. Lucky me
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alienspacebabe
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yup. i am. i do. uh huh. you know it hon.
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Re: New Poll... article sparked an idea...
« Reply #34 on: Oct 8th, 2005, 4:54pm » |
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pills, Norplant, DepoProvera (shot)...
had CH before, during, after....
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Not until we are lost do we begin to understand ourselves.
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