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Topic: How do you decribe the pain? (Read 2786 times) |
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Kim_for_Todd
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Re: How do you decribe the pain?
« Reply #25 on: Oct 14th, 2005, 8:05am » |
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One way for people to have some understanding of the pain is to read this site. This thread in particular. It's been a Godsend for us in explaining to family and close friends.
My sister has migraines and after reading Simon's collegue letter she was in tears. She then said she felt quilty complaining about a migraine.
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Lissa
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Re: How do you decribe the pain?
« Reply #26 on: Oct 17th, 2005, 9:25am » |
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on Oct 10th, 2005, 12:30pm, Langa wrote:| I crawl on the floor, vomit on myself and bang my head on the wall until i get nosebleeds trying to get the imaginary icepick out of my brain, oh and let's not forget the runny nose you can't blow because you feel like your brains will come out of your ears, |
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OMG. I got a cluster just reading this.  
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Episodic cluster survivor since 1995 at age 16.
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zanychef
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i'm busting with a masx cant really go wrong can i
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Re: How do you decribe the pain?
« Reply #27 on: Oct 17th, 2005, 6:35pm » |
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one of the best ones i can say is that its an intense orgasm of pain
otherwise i just shut up and let others tell me about their pain,and think well i wouldnt like that either!
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plenty of time to sleep now me headaches aint too bad
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KMT
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Re: How do you decribe the pain?
« Reply #28 on: Oct 18th, 2005, 8:08am » |
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How do I describe this ......to others.
Well I have tried nurmerous things, the letter, descriptions of the stabing in the eye, the pain that will never end, Jumping around, rocking, crying and so on.
One time I told a coworker that the day wasn't a good day and my headache was really bad even told my Dirctor of Nursing just in case I needed to go home. One of the nurses I warned made a comment about which resident I recommend run the courts so trying to have a sense of humor I chose one. 
Well needless to say to spite all that I stayed at work and got hit and she was there Hubby had to come and get me and she wouldn't leave my side. She was crying too. That day my hubby had to take me to the ER because the Trex 6mg didn't work and I was dying.
Next time I worked she was apologizing and admitted that she didn't think it was that bad.
Of course still trying to convince my fellow students but in time I am sure they to will understand.
Kim
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aka...................................................... KimY
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Azrael
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Sometimes... Being good just ain't worth it.
   
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Re: How do you decribe the pain?
« Reply #29 on: Oct 19th, 2005, 7:42pm » |
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My beast has saved the pain from a million torture victims (bamboo under the finger nails, electric shock, testicle vise, filing taxes, etc.) and mixed in a bit of pain from walking on broken glass covered in rubbing alcohol, and just a touch of salt in a fresh papercut, fermented it for a few decades, then distilled it to get the most pure, festering pain possible, then concentrated it to a small little spot directly behind my eye, where it then grew tentacles overed in rusty razorblades, poisoned fangs, infected fish hooks, and oozed battery battery acid all over that side of my head just before the beast started stabbing a white hot ice pick into my eye over and over again until there's nothing left but a bloody, steaming, throbbing pulp to put back together and start all over again in a few hours.
PFDAN................................. Drk^Angel
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"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
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mynm156
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hope life isn't a big joke, because I don't get it
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Re: How do you decribe the pain?
« Reply #30 on: Oct 22nd, 2005, 2:40pm » |
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It reminds me of a Brain Freeze that doesnt go away after a few seconds. From eye to my teeth!
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"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
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burnt-toast
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Re: How do you decribe the pain?
« Reply #31 on: Oct 25th, 2005, 6:08am » |
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"Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space."
My tag line lists the utensils - Now the process.
1). Light torch close to face and begin rotating egg
beater
2). Forcefully insert egg beater through eye socket
and increase rotation speed.
3). Insert lit torch slowly through nasal cavity until it
reaches close proximity to egg beater in
brain. Quickly open gas cylinder to full. (Note: Do not
forget to keep egg beater at full rotation just
because torch reaches maximum temp.)
4). Adjust jaws of vise-grips until nearly closed.
Clamp to scalp, jaw, teeth, forehead, temple
(multiple devices are required to achieve
optimum results). (This choice is not yours to make
so just play it by ear, Note: this may also require
an additional device)
5). Insert pipe expander through invisible opening
between egg beater in eye socket, and propane
torch in nasal cavity. Expand to full and hold this
position until fear of pain enduced heart attack
peaks.
6). Now walk, run, bang head, etc., etc. (Note: take
your time, be creative here, this is the only thing you
have some choice in so do it right).
7). Best practices call for slow removal of devices in
reverse order of insertion. (this choice is also not
yours to make so be prepared for some creativity
here). (some substitution of devices may take place
here just to keep things interesting). Regardless
you'll know things are winding down so you won't
mind these last minute substitutions too much.
 . Repeat as required.
SO NOW:
"Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space."
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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Beastfodder
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O2 and clusterbusters - naturally
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Re: How do you decribe the pain?
« Reply #32 on: Oct 31st, 2005, 7:30am » |
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You spend half a lifetime wondering just how bad can a migraine be from the people who complain about them - then the beast comes to live with you.
There's more to life than complaining and since it what doesn't kill you makes you stronger - then collectively we must have a fair bit going for us.
And of course this website is one of those.
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O2 and clusterbusters - naturally
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hoosierdaddy
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Are we having fun yet?
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Re: How do you decribe the pain?
« Reply #33 on: Nov 2nd, 2005, 4:43pm » |
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Hello all,
..."it feels as if my head is giving birth to my brain and can't decide whether to use my right eye or right nostril as the birth canal."
That's the funniest thing I've heard for days. Thanks for that. 
I don't let anyones opinion bother me. I suffer and go on and rarely attempt to explain the pain. But I would say everyones pain threashold is different and we have a tolerance that is hard to match. I had both my nipples pierced while totally sober, and the split second that the hollow needle was piercing my nipple was the closest I have ever came to a non CH related 10. But the Pain from the piercing ended as soon as the needle was through. For me I relate that same pain but piercing from my right eye to the base of my skull constently until the trex kicks in.
So I would tell someone who wants to know what it feels like to go pierce their nipples and then thank God they are not CH Suffers.
C-Ya
Greg
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..."it feels as if my head is giving birth to my brain and can't decide whether to use my right eye or right nostril as the birth canal."
Hoosier-Daddy?
;^)
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Jonny
CH.com Alumnus
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Re: How do you decribe the pain?
« Reply #34 on: Nov 2nd, 2005, 5:07pm » |
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I just tell them that I would rather be fucked in the ass by John Holmes for three hours without any lube
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| « Last Edit: Nov 2nd, 2005, 5:08pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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rextangle
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Re: How do you decribe the pain?
« Reply #35 on: Nov 2nd, 2005, 5:52pm » |
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on Nov 2nd, 2005, 5:07pm, Jonny wrote:| I just tell them that I would rather be fucked in the ass by John Holmes for three hours without any lube |
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That's what you said about a hangnail Jonny!
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E-Double
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Are we ourselves?
 
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Re: How do you decribe the pain?
« Reply #36 on: Nov 2nd, 2005, 6:10pm » |
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Do it with pictures or if they are lucky give them a real viewing
Then say hangnails are much worse
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Mr. Happy
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If I can do it, it ain't art.
 
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Re: How do you decribe the pain?
« Reply #37 on: Nov 2nd, 2005, 7:03pm » |
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Damnit Eric......that is NOT a Clustermasx. And you're one of the smart ones.
I'm acrimonious.
Herd, Water, Cheap Sex.
RJ
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May those who don't want any
Have memories of never getting any.
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E-Double
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Are we ourselves?
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Re: How do you decribe the pain?
« Reply #38 on: Nov 2nd, 2005, 10:03pm » |
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RJ,
It's in the mail......waiting patiently!
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Lastdaddy
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My II's are always open !!
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Re: How do you decribe the pain?
« Reply #39 on: Nov 6th, 2005, 7:14am » |
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Ther best one is when ya tell someone ya have CH, and they Oh Yeah I know what you mean I get bad Migraines!! What a joke that is HUH??. One nite I went to the ER with a KIP 10, The nurse on duty was extremely sympathic, She gave me my shot but didn't say much at all. About 20 minutes when I was up and coherent she came back and told me that she has CHA also so she knew I needed to be left alone. She also told me that as a mother with CH , she'd "rather give birth to a hundred babies than to have 1 CH". I have also had the unfortunate experience of having a Kidney stone and I can tell you first hand that while the stone process is not something I look forward too, I'd much rather have that than another CH Cycle!! And in the 33 years of having CH the best was , during another nite at a different ER I had a woman DR who had the distinction of having all three Pains. She had three Boys all Natural , 4 bouts with Kidney stones , and lived with CHA for 27 years. Know what she told me?? The Child Birth and the stone pain couldn't even come close to the pain she suffered while in a CH Cycle .Now we all know that most women will tell you that a man could never endure the pain of childbirth. A favorite argument of feminist Mothers. Now when I haer that I just smile to myself and say " yeah keep talking Lady cause you haven't got a clue " !!!
Wishing all of us PF D&N,
Nico
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Lastdaddy/Nico/Daddy
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mabus
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And the Beast shall be named Mabus - Nostradamus
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Re: How do you decribe the pain?
« Reply #40 on: Nov 12th, 2005, 6:48pm » |
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on Oct 12th, 2005, 10:11pm, MJ wrote:
I descibe the pain when asked much as Rextangle says. I start getting into the description and then they say whats an ice cream headache, never had one of those.
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I frequently got ice cream aches when I was a kid, as did many of my friends. I just assumed that everyone did. But my neuro told me that not all people DO know that vaguely similar to CH feeling, as they aren't susceptable to "brain freeze'. Apparently those people are never CH sufferers.
Did anyone out there that has clusters NOT get brain freeze when they were a kid eating ice cream?
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.mm
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owk
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It'll be over soon!
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Re: How do you decribe the pain?
« Reply #41 on: Nov 16th, 2005, 1:41pm » |
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Sorry mabus. I get CH attacks, episodic. I never got brain freeze.
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Shaz
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Re: How do you decribe the pain?
« Reply #42 on: Nov 24th, 2005, 9:01am » |
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The pain description, I wont bother with because it is so similar to what the majority of you out there experience. But I know just how frustrating it is to try to describe to other people. As some of you have said unless somebody actually sees you going through an attack they have no idea. Luckily all my family have at different times and they are all fantastic....
There was a quote on one of the replies saying that a doc compared it to a long hard labour. I have had two very long hard labours. Believe me, there is no comparison.... Give me more babies any day...........
I sit and read through so many of these posts and when I can contribute I do, but so few people are of aware of CH. Nobody I know had ever even heard of them.
THANK GOD FOR YOU LOT AND THIS SITE. YOU HELP ME GET THROUGH IT. I AM NOT ALONE ANYMORE XXX
Shaz 
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MarcSeidl
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Re: How do you decribe the pain?
« Reply #43 on: Dec 1st, 2005, 11:43pm » |
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Wow.
My doc told me today that my headaches recently could be headaches. But. The pain I had is NOTHING compared to what many of you are describeing. Yes, i had the Burning pain behind my eye, with the eyes bloodshot and running, and my nose too. But I was able to fall alseep and even sit through one of my college lectures. The pain was no were near the levels you are talking about.
My hats off to those of you with that horriable pain.
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Pinkfloyd
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comfortably numb
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Re: How do you decribe the pain?
« Reply #44 on: Dec 4th, 2005, 12:45am » |
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Send them to www.clusterbusters.com and have them scroll down to the video clip.
Once they have seen it, and apologize, and tell you they wish there was something they could do to help, tell them to scroll down a little farther to the "donate to research" tab.
Bobw
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www.obscuredview.blogspot.com
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boomer52
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Re: How do you decribe the pain?
« Reply #45 on: Dec 4th, 2005, 2:03pm » |
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mine start out making my left eye twitch and little needle like stabbing sensations, they keep getting worse until my left eye and temple area feel like it has a hot coal being pressed around inside. The pain gets so bad that I think I will pass out or sometimes I think I am dying, which doesn't seem like a bad alternative at the time.
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If pain could have saved us, we long ago would have been cured.
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