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   Author  Topic: fibromyalgia and clusters  (Read 3071 times)
mrs mac
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fibromyalgia and clusters
« on: Oct 18th, 2005, 7:55pm »
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hey guys, was just wondering if any one here suffers both fibro and clusters??
 
my other half Andy has both, and we were wondering if there was any one else, and if there was, how do you cope with both??
 
 
sandra xxxxx
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LeLimey
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Re: fibromyalgia and clusters
« Reply #1 on: Oct 18th, 2005, 8:00pm »
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Hi Sandra, I know there is a guy here called CarlD who has both, look for posts by him on the general board and drop him an IM!
Oh and check your email lil Sis.. sent you somefink earlier!
love
big sis
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mrs mac
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Re: fibromyalgia and clusters
« Reply #2 on: Oct 18th, 2005, 8:02pm »
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hey big sis!!!!!
 
yeah i seen it, soooooooooo funny!!!!! Cool Shocked
 
have you checked our mb lately?? think you should (meds)
 
will look out for Carl!!!
 
luvs ya  lil sis xxxxxxxxxxxx
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kimmeesue
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Re: fibromyalgia and clusters
« Reply #3 on: Oct 18th, 2005, 11:39pm »
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I have clusters, fibro and lupus.  Don't think there is a connection but it sure can be the pitts
 
Kim
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don
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Re: fibromyalgia and clusters
« Reply #4 on: Oct 19th, 2005, 7:34am »
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Check your PMs
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mrs mac
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Re: fibromyalgia and clusters
« Reply #5 on: Oct 19th, 2005, 6:34pm »
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cheers don!!!
 
appreciate you sharing that with me!!!
 
 
take care
 
mrs mac xxxxx
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floridian
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Re: fibromyalgia and clusters
« Reply #6 on: Oct 19th, 2005, 8:52pm »
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If there is a connection, it is probably through serotonin and glutamate problems:  
 
Quote:
J Pain Palliat Care Pharmacother. 2004;18(4):31-45.  
 
    Serotonin mechanisms in pain and functional syndromes: management implications in comorbid fibromyalgia, headache, and irritable bowl syndrome - case study and discussion.
 
    Smith NL.
 
    University of Utah, School of Medicine, USA. smithnlee@aol.com
 
    A young woman presented with multiple central hypersensitivity disorders, including fibromyalgia, headache, pelvic pain and several smooth muscle spasm disorders, including irritable bowel syndrome, irritable bladder and Raynaud's phenomenon. She also had significant fatigue and sleep problems. Her case illustrates the importance and surprising frequency of atypical bipolar mood disorders in people with multiple central hypersensitivity pain disorders, especially with depression and anxiety resistant to antidepressant treatment. Considering neurological mechanisms common to her overlapping disorders was very helpful in guiding treatment choices. This experience illustrates the value of serotonin receptor type 2 (5HT2) inhibition with atypical neuroleptics, of neural cation channel and glutamate inhibition with anticonvulsants, and the potential usefulness of antidepressants after establishing 5HT2 control to enhance downward inhibitory tracts. Medications with combined usefulness for both bipolar mood and pain disorders were highly effective for her multiple hypersensitivity problems.
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Kate in Oz
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Re: fibromyalgia and clusters
« Reply #7 on: Oct 19th, 2005, 10:06pm »
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Hi Sandra,
 
Yep, I've got fibro as well as ch.  I take (if/when I remember - so vague!!) chelated magnesium and levo-carnitine for the fibro and I'm lead to believe the magnesium helps with insomnia too.    
 
How do I cope??  One day at a time!!
 
Wishin you all the best,
 
Kate
 
P.S. if you come across anything that works to help Andy cope I'd really be interested.  Ta
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zanychef
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Re: fibromyalgia and clusters
« Reply #8 on: Oct 20th, 2005, 10:15am »
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i hope to hell i havent got it i couldn't say it or spell it in a hit frown
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plenty of time to sleep now me headaches aint too badSmiley
mrs mac
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Re: fibromyalgia and clusters
« Reply #9 on: Oct 22nd, 2005, 6:51am »
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hi kate
 
check your PM's  
 
 
luv
 
sandra xxxxxx
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E-Double
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Re: fibromyalgia and clusters
« Reply #10 on: Oct 22nd, 2005, 7:26am »
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There could be a connection fo rsome due to the "screwed up" melatonin levels
 
Abstract:  
Can Melatonin Be an Alternative and Safe Treatment for Patients with Fibromyalgia?  
  http://www.Fibromyalgiasupport.com/library/showarticle.cfm?ID=1387  
 
Abstract:  
When Was the Last Night You Slept Well?    
  http://www.Fibromyalgiasupport.com/library/showarticle.cfm?ID=270  
 
Chronic Cluster Headache May Resolve With Melatonin Treatment  
http://www.fibromyalgiasupport.com/library/print.cfm?ID=3360
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
mrs mac
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I love YaBB 1G - SP1!

   


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Re: fibromyalgia and clusters
« Reply #11 on: Oct 22nd, 2005, 8:39am »
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thanks for that e double
 
found it very interesting and a possibility to at least try, especially if it could help with both conditions!!!!!!
 
 
if you find any thing else please let me know
 
tc and thanks again
 
sandra xxxxx
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