Author |
Topic: Getting worse? (Read 1229 times) |
|
CHater
New Board Newbie
I hope sex is not a trigger, hehe...
Gender: 
Posts: 31
|
 |
Getting worse?
« on: Nov 20th, 2005, 7:50am » |
 Quote  Modify
|
Here I am again...
Getting a bit frustrated by my longest cluster in 15 years, in it for 10 weeks now with a 5 days break when I was on a short holliday in Cyprus, strange ???
I really feel with the chronics...
I had a second treatment with acupuncture but in the 48 hrs. after every treatment I get hit 4 to 5 times a night, luckily only between a kip 4 -6.
Right now (48 hrs. after treatment) I have a constant pain for 3 hours right now Kip2-3, looks a bit like rebound HA but with CH characteristics. Never had this before.
My pain side of my face is oversensitive and don't know if I should take meds for this or not....?
I really hope I am getting close to the end of my cycle.
Does anyone had similar experience with acupuncture ? I think I have to stop the treatment because it is worsening the number of attacks, luckily the severity of the attacks are a little less.
Or maybe I just get more used to the pain and it's just an impression they are less painfull.
But damn it still hurts like hell and wanna be out of it!!!
Sorry for yelling, but need to leave my frustration somewhere. I know you guys don't care and understand why I want to write these stuff down here.
Anybody with similar experiences by acupuncture ?
|
|
 IP Logged |
It hurts..but relax and stay positive.
Our life isn't in danger by CH, only life-quality is somehow affected.
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender: 
Posts: 5164
|
|
Re: Getting worse?
« Reply #1 on: Nov 20th, 2005, 8:32am » |
Quote Modify
|
I had acupuncture and after every treatment I got hit BAD, so I quit it. Didn't get hit near as bad after I quit. It may have just been me, but I think it triggered mine. Sorry to be doom and gloom about it.
sorry you're having a rough time of it. Since I'm chronic, I can relate to you. But you've got something to look forward to - a light at the end of the tunnel.
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
CHater
New Board Newbie
I hope sex is not a trigger, hehe...
Gender:
Posts: 31
|
|
Re: Getting worse?
« Reply #2 on: Nov 20th, 2005, 9:16am » |
Quote Modify
|
Dear Barbara,
Sorry to hear you have our chronic version, sjeezz I really feel with you.
As mentioned earlier, I also got hit a lot more after acupuncture treatment.
He set me for a 3th appointment coming friday, but I think I will cancel that as it is getting worse instead of better.
Normally I get some help by my Osteopate, but this cluster he brought some reliefs but no real cure as the other times. This is why i tried acupuncture, bad decision I notice now.
Thanks a lot for sharing your experiences with me and I really-really hope you get a lot of PF days soon.
|
|
IP Logged |
It hurts..but relax and stay positive.
Our life isn't in danger by CH, only life-quality is somehow affected.
|
|
|
unsolved1
Guest
|
I had acupuncture at MHNI. It made no difference at all. I was still getting hit hard.
Best of luck
UNsolved
|
|
IP Logged |
|
|
|
MJ
New Board Hall of Famer
Gender:
Posts: 911
|
|
Re: Getting worse?
« Reply #4 on: Nov 20th, 2005, 12:01pm » |
Quote Modify
|
Had acupuncture treatments as well in the past.
Did nothing for the pain, but relieved some knots in neck and shoulders.
I was allways curious as to how this might go if the accupuncture were performed in the midst of an attack if one could sit for it.
Seems we all do a little accu pressure at that time.
|
|
IP Logged |
MJ
|
|
|
CHater
New Board Newbie
I hope sex is not a trigger, hehe...
Gender:
Posts: 31
|
|
Re: Getting worse?
« Reply #5 on: Nov 20th, 2005, 2:45pm » |
Quote Modify
|
Thanks for your info guys!
Guess I'd better stop the acupuncture and go back to my osteopath.
He aborted 4 clusters in the past. However he couldn't cut this one down, but I still got more faith in him.
The reason I went to see the other one is that he's so fully booked. He always does me favours by taking me in between. He's aware of the severeness of our CH pains I guess.
i let you know my experience on me going back!
Have a PF sleep !
|
|
IP Logged |
It hurts..but relax and stay positive.
Our life isn't in danger by CH, only life-quality is somehow affected.
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Getting worse?
« Reply #6 on: Nov 21st, 2005, 3:39am » |
Quote Modify
|
Herwig,
If you get ANY relief from your D.O. by all means get back to him. Some releif if better than none. And try some O2 - it works so well for so many. Along with the adjustments, it might just do the trick for you.
Black coffee will abort the onset of CH for me if I get to it soon enough (like when I first wake up with a 3-4 or when I feel one coming on during the day). But it has to be before they get past a 4). Try that with some O2 and see how that works for you. It's natural, cheap and fast.
When I start tugging on my left ear, my four year old grandson, runs for the O2 bottle and starts yelling, "Granny Breathe!" He doesn't like to see Granny's eye swell shut and knows that O2 will usually stop it and Granny will be back to her normal grouchy self in a few minutes. 
PF days to you
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
CHater
New Board Newbie
I hope sex is not a trigger, hehe...
Gender:
Posts: 31
|
|
Re: Getting worse?
« Reply #7 on: Nov 21st, 2005, 12:34pm » |
Quote Modify
|
Dear Barbara,
Thanks for the support and advise.
I did use OČ in the past and it did help but not always.
The last 2 weeks I mostly did fight against it without any meds unless they passed kip6, then I took ergotamine (cafergot).
As you probably noticed in some other topics, I feel like I am getting out of this cluster.
I really hope to confirm you this in a day or 2 when I did the test with some glasses of wine, hehehe
Thanks a lot for your concern and I really hope you find PF time very soon as well.
BR
|
|
IP Logged |
It hurts..but relax and stay positive.
Our life isn't in danger by CH, only life-quality is somehow affected.
|
|
|
vig
CH.com Alumnus
New Board Hall of Famer
CHit Happens
Gender:
Posts: 4401
|
|
Re: Getting worse?
« Reply #8 on: Nov 21st, 2005, 3:02pm » |
Quote Modify
|
since you're willing to examine alternatives...
why don't you look at www.clusterbusters.com?
|
|
IP Logged |
never, Never, NEVER quit. -Winston Churchill
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss