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   Author  Topic: A New Name for Cluster Headaches  (Read 6379 times)
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A New Name for Cluster Headaches
« on: Dec 11th, 2005, 1:07pm »
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I think we all agree that "cluster headache" is a misnomer that has caused considerable harm.  It seems to incite others to tell us about their latest headache and how three aspirin took it away.
 
I think we must make noise about this issue.  We need to somehow decide what words best describe this horrible affliction and then (I volunteer) write to the AMA and similar types telling them that we want a change in nomenclature.  A good press release would go out at the outset of our "campaign."  I am an old public info person and would volunteer to do that also if somebody could dredge up a long list of appropriate names and addresses.
 
Qs:  What are your thoughts?  What words might best describe the affliction?  Are you willing to help in any way?
 
If nothing else, I belueve we're guaranteed a bit of media attention if we make this unusual brand of noise and take on the medical eestablishment even a little bit.
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Re: A New Name for Cluster Headaches
« Reply #1 on: Dec 11th, 2005, 1:44pm »
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I agree with your vision.
 
CH is not a headache, it is more like "neuralgy attacks"...damn it's really hard to define.
 
But it is definitely "NOT" headache.
 
Good thinking from your side !
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Re: A New Name for Cluster Headaches
« Reply #2 on: Dec 11th, 2005, 1:51pm »
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Horton's Syndrome already exists and usually elicits a "What is that?" from people.  
 
...Or maybe Ice Cream Brainfreeze XTREME.
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Re: A New Name for Cluster Headaches
« Reply #3 on: Dec 11th, 2005, 2:28pm »
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I think it should be called "Suicide Headache Disease", or something to that effect.
 
or fuckinga$$holepieceofshitmonsterthatidliketobashthefuckoutof
 
 
 Smiley
« Last Edit: Dec 11th, 2005, 8:28pm by Melissa » IP Logged
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Re: A New Name for Cluster Headaches
« Reply #4 on: Dec 11th, 2005, 2:31pm »
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laugh
ROTFLMAO
one of the best fuckingdescriptionsIhaveeverheard!
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Re: A New Name for Cluster Headaches
« Reply #5 on: Dec 11th, 2005, 2:39pm »
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At my house it's called "One of those".
 
When She notices me holding my face.........
 
She: "Headache?"
 
Me: "Yep"
 
She: "One of those?"
 
Me: "Yep"
 
End of conversation.
 
 
Or when talking to an idiot........
 
Idiot: "Migraine?"
 
Me: "No, Cluster"
 
Idiot: "Oh yeah, I had One Of Those once".
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Re: A New Name for Cluster Headaches
« Reply #6 on: Dec 11th, 2005, 5:00pm »
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I think it should have "attack" in the name...
 
Brain attack  
or
 ice-pick attack
 
 
Cause
Fire-poker in the eyeball is way too long....
 
Hey when we get a new name,
will the president declare a war on it?
We have a war on Drugs,
War on Drunk Driving
War on terror....
even a war on smoking now....
when will we get around to "war on Pain"????
 
 
wink....
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Re: A New Name for Cluster Headaches
« Reply #7 on: Dec 11th, 2005, 5:20pm »
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My mom always referred to them as "a special headache". ..Yeah, they're special alright.
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Re: A New Name for Cluster Headaches
« Reply #8 on: Dec 11th, 2005, 6:27pm »
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I don't know how you adaquately describe with a short description a ....  
 
Skull Crushing, Eye Piercing, Nose Searing, Jaw Bashing, Tooth Rripping, Temple Drilling, Unearthly Pain, Don't Sleep, Don't Rest, Repetitive Attack syndrone.
 
Picking "Headache" to describe Clusters ranks up there with the really stupid choices of medical terms.
 
Tom
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Re: A New Name for Cluster Headaches
« Reply #9 on: Dec 11th, 2005, 7:59pm »
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Hypothalatrigeminal syndrome - a.k.a. (As Tom so aptly put and I added a little) - Skull Crushing, Eye Piercing, Nose Searing, Jaw Bashing, Tooth Rripping, Temple Drilling, Unearthly Pain, inject molten metal into my brain, Don't EVER Sleep, Don't EVER Rest,  Repetitive Attack syndrone
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Re: A New Name for Cluster Headaches
« Reply #10 on: Dec 11th, 2005, 10:38pm »
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I tell them I suffer from" trigeminal horribleness" then they say (That's terrible) then I say yes it's a very bad disorder. you wouldn't want it.   Lets face it headache just doesn't describe it period!!!
 
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Re: A New Name for Cluster Headaches
« Reply #11 on: Dec 11th, 2005, 11:00pm »
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Hey all,
 
Many moon ago I won a contest on this site for renaming cluster headaches, this was my suggestion:
 
Supraorbital Hemicranial Ipsilateral Trigeminal Syndrome:
 
The SHITS in other words.
 
 Grin  Marsha
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Re: A New Name for Cluster Headaches
« Reply #12 on: Dec 11th, 2005, 11:16pm »
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How about this....????
 
Quote:
Skull Crushing, Eye Piercing, deep ear stabbing Nose Searing, Jaw Bashing, Tooth Rripping, Temple Drilling, Unearthly Pain, inject molten metal into my brain, and set fire to my scalp Don't EVER Sleep, Don't EVER Rest, date ending, life stealing, career ending, money depleating, Repetitive at THE worst possible monent Attack syndrome.

 
Once again the beast interrupted a date going quite well, and guess who didn't return my calls the next day.  
 
Ahhhh the lovely life of a clusterhead. Angry
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Re: A New Name for Cluster Headaches
« Reply #13 on: Dec 12th, 2005, 1:44am »
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I have a very good doctor in my family. Once he told me that they have volumes in the Journals about "Cluster Headaches." I explained that the name is to vague, similar to "Cluster Housing." Nobody really knows what the hell that means but they accept the name.When you ask any doctor what inroads have they made in assisting or ( God fORBID) curing them.....it takes their voice away. I agree with you that a new clinical term would cause a peak in interest....Just look at the Avian Flu-----people would line up to get the tamaflu shot, when you have a better chance winning a lotto, and getting struck by ligtening in a blizzard, then actually getting that flu.
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Re: A New Name for Cluster Headaches
« Reply #14 on: Dec 12th, 2005, 7:57am »
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A lot of neuros are just starting to get it.
 
I'm not sure changing the rules with new lingo would help the cause. Only confuse it.
 
They wouldn't use my description any way. Not many would approach their doc and tell them those "m..fuckers" arte back again
« Last Edit: Dec 12th, 2005, 7:59am by chewy » IP Logged
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Re: A New Name for Cluster Headaches
« Reply #15 on: Dec 12th, 2005, 9:44am »
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Headaches of Mass Destruction
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Re: A New Name for Cluster Headaches
« Reply #16 on: Dec 12th, 2005, 7:21pm »
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on Dec 11th, 2005, 2:39pm, BobG wrote:

 
Or when talking to an idiot........
 
Idiot: "Migraine?"
 
Me: "No, Cluster"
 
Idiot: "Oh yeah, I had One Of Those once".

 
 
 Grin
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Re: A New Name for Cluster Headaches
« Reply #17 on: Dec 12th, 2005, 7:26pm »
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on Dec 12th, 2005, 7:57am, chewy wrote:
A lot of neuros are just starting to get it.

 
Avian flu?     Wink
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Re: A New Name for Cluster Headaches
« Reply #18 on: Dec 13th, 2005, 12:04am »
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Suicide headaches
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Re: A New Name for Cluster Headaches
« Reply #19 on: Dec 13th, 2005, 12:28am »
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How's about:  Cranial Incapasitory Syndrome
 
Or Maybe" "heyyoustupida$$holewhatthefuckareyoustaring
     atImnotcryingandifyoudon'tgoawayI'llkickyou're
      ignorantassallaroundtheroomintwentyminutes      -itis
 
 
          Roll Eyes
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Re: A New Name for Cluster Headaches
« Reply #20 on: Dec 13th, 2005, 1:27am »
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Quote:
Or Maybe" "heyyoustupida$$holewhatthefuckareyoustaring  
     atImnotcryingandifyoudon'tgoawayI'llkickyou're  
 ignorantassallaroundtheroomintwentyminutes -itis  
 

 
or, HYSAWTFAYSAINCAIYDGAIKYIAAATRITMitis
 
it's shorterSmiley
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Re: A New Name for Cluster Headaches
« Reply #21 on: Dec 13th, 2005, 1:28am »
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I have two possibilities.
 
"fuckmefuckmefuckme" which is my classic definition.
 
and my new, more literary, definition:
 
"Cerbercephalgia"
 
As I am sure you all remember from mythology class (right!) Cerberus was a three-headed dog with a snake for a tail.  He was a horrific animal who stood watch at the gates of Hades and was feared even by the gods.  He was charged with the job of devouring anyone trying to return to the land of the living and was so dreadful to behold that anyone that looked upon him was turned to stone.
 
So, I like my new name for CH but it may not quite work for when you are having one.  Example.  When I get a CH now I don't sit around saying "Cluster headache, cluster headace."  It just doesn't work.  I prefer to use the classic definition which all around me know and love.  Even  if I changed to "Cerbercephalgia"  I can't see me chanting that for headache relief.  
 
So,  when engaging in polite conversation, with my little pinkie in the air, I will now refer to it as "cerbercephalgia."  Which, from a literary and mythological standpoint gets the message across.  But, when being ravaged I will resort to the classic definition which we all understand.
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Re: A New Name for Cluster Headaches
« Reply #22 on: Dec 13th, 2005, 1:41am »
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Hi tenacious.........Avian Flu = "Bird Flu" If one of the major news magazine shows does a piece on this particular kind of flu--people here in New York start to go wild looking for the Tamaflu Injection, which supposedly is the only thing that will ward off the Bird Flu. But then again, if the Weatherman predict 3 inches of snow, the streets resemble the movie--"day after tomorrow."
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Re: A New Name for Cluster Headaches
« Reply #23 on: Dec 13th, 2005, 4:17am »
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How about "Acute HypoCranial Orbital Expulsion"?
 
It's the next best thing to having your skull crushed and eye pushed in while your brain is sucked out of any  newly created openings.
 
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Re: A New Name for Cluster Headaches
« Reply #24 on: Dec 13th, 2005, 9:54am »
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on Dec 11th, 2005, 2:39pm, BobG wrote:
At my house it's called "One of those".
 
When She notices me holding my face.........
 
She: "Headache?"
 
Me: "Yep"
 
She: "One of those?"
 
Me: "Yep"
 
End of conversation.
 
 
Or when talking to an idiot........
 
Idiot: "Migraine?"
 
Me: "No, Cluster"
 
Idiot: "Oh yeah, I had One Of Those once".

 
Isn't it funny/annoying when Idiot says "Is it stress?" and you say "no", then they say "I've got a BC powder you can have if you want".  They mean well, but then most clueless morons do.
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