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Topic: O2 (Read 3002 times) |
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genss
New Board Newbie
 
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It has been working so well till last night. Has this ever happened to anyone else? Why all the sudden does it not work?
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Kate in Oz
New Board Old Timer
 
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Re: O2
« Reply #1 on: Dec 18th, 2005, 7:01pm » |
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 don't know but I have that too. Sometimes works sometimes doesn't. Don't give up tho cos it might work next time. Was it a particularly bad hit? Did you get to it too late? ???
Sorry I'm not much help.
Kate
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snyder
New Board Veteran
Nothing can hurt me as much as my head.
  
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Re: O2
« Reply #2 on: Dec 18th, 2005, 9:03pm » |
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I have been using O2 for a couple of years now and, for myself, have learned a lot about its use. I usually can tell when a CH is starting if it is one that will respond to O2 or not. Sometimes, if over tired especially, I will become aware that the O2 isn't working when I had thought it would. This I usually know within 10 minutes. If O2 is going to work it does, and if it isn't going to it clearly doesn't; going longer than 10 or 15 minutes with it for me is pointless. Zomig nasal spray then comes to the rescue and relief comes then within 7 to 12 minutes depending how far up the Kip scale I have been taken.
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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Beastfodder
New Board Old Timer
O2 and clusterbusters - naturally
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Re: O2
« Reply #4 on: Dec 19th, 2005, 6:28am » |
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Couldn't agree with e-double more.
Clusterheads as a primary treatment and O2 to mop up the rest. Last year over 50 separate headaches in the cluster - this year 4.
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O2 and clusterbusters - naturally
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snyder
New Board Veteran
Nothing can hurt me as much as my head.
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Re: O2
« Reply #5 on: Dec 19th, 2005, 7:00am » |
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Clusterheads? And then O2 to mop up the rest? I don't understand. Clusterheads?
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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E-Double
CH.com Alumnus
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Are we ourselves?
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Re: O2
« Reply #6 on: Dec 19th, 2005, 7:20am » |
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on Dec 19th, 2005, 7:00am, snyder wrote:| Clusterheads? And then O2 to mop up the rest? I don't understand. Clusterheads? |
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I think he means US and O2 to abort ;)
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Mr. Happy
CH.com Alumnus
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If I can do it, it ain't art.
 
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Re: O2
« Reply #7 on: Dec 19th, 2005, 11:08am » |
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Replace Clusterheads with Clusterbusters and it starts making sense.
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May those who don't want any
Have memories of never getting any.
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Spike_Inmyeye
New Board Junior
Better living through oxygen!
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Posts: 52
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Re: O2
« Reply #8 on: Dec 19th, 2005, 9:48pm » |
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I have found that when the o2 is not working all I need to do is hold my breath for as long as I can. Then when I am about ready to burst start using the o2 again. I think this must be the neurologic equivilent of throwing the circuit breaker. It may take a couple of times to work. If it doesn't work you will faint!
When the o2 isn't working I figure I am screwed. I don't have a successful backup. Maybe I shoiuld get Imatrex or start smoking Kudzu. The herb mon, the herb.
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"If you can treat it over-the-counter it isn't a headache"
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Mr. Happy
CH.com Alumnus
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If I can do it, it ain't art.
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Re: O2
« Reply #9 on: Dec 20th, 2005, 2:48am » |
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Get a Clustermasx, hook up a Big bag, and use a real high flow regulator for starters.
Betcha quitcherbittchin right quick.
RJ
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May those who don't want any
Have memories of never getting any.
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Guiseppi
CH.com Alumnus
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Re: O2
« Reply #10 on: Dec 29th, 2005, 2:30pm » |
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A comment and a question! Doe anyone else use a demand regulator instead of the flow regulators? I modified an old paramedic button push positive pressure type regulator. I removed the mask and basically put my mouth over the port. That way I suck in the pure 0-2. Using this sytem on an e-tank I get 15 minutes worth, and usually burn less then 300 lbs. Gives me 8 attacks per tank. My insurance doesn't cover my oxygen so it saves me a few bucks.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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E-Double
CH.com Alumnus
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Re: O2
« Reply #11 on: Dec 29th, 2005, 2:36pm » |
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I have taken it straight from the tank before as well in the past.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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FramCire
CH.com Alumnus
New Board Hall of Famer
Life like a froward child must be humored a little
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Re: O2
« Reply #12 on: Dec 29th, 2005, 3:00pm » |
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Try contacting your Insurance company again. My insurance company didn't cover it last year but they do now. They may need a letter from your doctor explaining your diagnosis of cluster headaches and the need for O2 but mine didn't even need that. Hopefully all insurance companies will start covering O2 for CH.
Now, can we get them to cover appropriate amounts of Tripans too!
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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Mr. Happy
CH.com Alumnus
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If I can do it, it ain't art.
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Re: O2
« Reply #13 on: Dec 29th, 2005, 11:18pm » |
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on Dec 29th, 2005, 2:30pm, Guiseppi wrote:| Doe anyone else use a demand regulator instead of the flow regulators? |
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Nothing but flow regulators in this neighborhood, but if you'd mail me your on-demand regulator (short term loan) I'd love to take it for a test drive. When you don't need it, of course.
Quote:I removed the mask and basically put my mouth over the port.
and....
I have taken it straight from the tank |
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Barbarians. Both of you. Shame.
CMasx ad inserted here. Again.
RJ
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May those who don't want any
Have memories of never getting any.
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E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
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Re: O2
« Reply #14 on: Dec 29th, 2005, 11:21pm » |
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Sorry RJ I missed my opportunity for the plug.......
I meant to say............but never again since I got my ClusterMasx 
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| « Last Edit: Dec 29th, 2005, 11:22pm by E-Double » |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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