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New Message Board Archives >> 2005 Cluster Headache Specific Posts >> just as i thought
(Message started by: keithr1024 on Sep 30th, 2005, 7:39pm)

Title: just as i thought
Post by keithr1024 on Sep 30th, 2005, 7:39pm
 thank you for clearing things up for me  i asked these    ?s becuse the doctor i seen today said that he calls ch's "smokers headaches" and that pepole who were born in months following the fall equnox(sp)leading to the summer soltice and had a tramatic injury or illness at birth were more likely to have ch's. my better judgement told me that his ideas were off base.i apologize for lack of grammer and puncuation and spelling brains been frying for 2months now. thank you for your anwsers

Title: Re: just as i thought
Post by Sean_C on Sep 30th, 2005, 9:51pm
i fele lik i noyou  ? have ubin heer b4   ?

Title: Re: just as i thought
Post by floridian on Sep 30th, 2005, 9:55pm

on 09/30/05 at 19:39:45, keithr1024 wrote:
 thank you for clearing things up for me  i asked these    ?s becuse the doctor i seen today said that he calls ch's "smokers headaches" and that pepole who were born in months following the fall equnox(sp)leading to the summer soltice and had a tramatic injury or illness at birth were more likely to have ch's. my better judgement told me that his ideas were off base.i apologize for lack of grammer and puncuation and spelling brains been frying for 2months now. thank you for your anwsers


A history of head injuries is more common in cluster heads than in the general public.  So are allergies and smoking.  But it is too simple to say that these are the cause - they are risk factors or aggravating factors.  

I have never seen any information related to the month of birth.  But it is not out of the question.  For many, this disease has circadian and annual cycles, which can be genetic.  My daughter and I share the same birthday (±1 day) ...  coincidence, or did I inherit genes that make me more active in certain times of the year??  

Title: Re: just as i thought
Post by marty on Oct 1st, 2005, 5:39am
Hi Keithr

I think that the main problem that we (CH'rs) are dealing with when it comes to doctors is that they don't know what causes and/or cures CH. Therefore, being what they are, it becomes a matter of them being open-minded or not. Most of them are not and they stick with what-ever explanation they feel fits the problem - be it right or wrong, they seem to take offense when challenged by a patient.

This becomes very frustrating when a CH patient is refered to a neurologist; if the patient is a female, it is likely that the patient is told that they do not have CH since it does not strike females, if the patient drinks a lot of coffee, it is rebound headaches, if a smoker, it is smokers-headache etc, etc.

It is a lot easier to diagnose something that is treatable, such as migraine or rebound headaches. Migraine because it is a known type of headache that is fairly common and rebound headaches because there is a definite cause for these that can be isolated and treated. Once you diagnose, or agree with an earlier diagnose of cluster headaches, the doctor is entering an area where he has little or very limited knowledge and he/she is unlikely to admit that.

So, if you dance around the big oak tree at midnight, where born on a certain date, don't have the facial features of a CH'r, smoke - drink - do drugs, are female..  you are likely to be diagnosed with something else than CH - as of now, we have to live with this until we come up with a way of educating the medical society.

Marty

Title: Re: just as i thought
Post by keithr1024 on Oct 1st, 2005, 7:24am

on 09/30/05 at 21:51:33, Sean_C wrote:
i fele lik i noyou  ? have ubin heer b4   ?

   yes i have been here before, last year october during my last cycle. You ?ed my integertiy and we exchanged minor unpleasentries never the less i still pray for you and all other chers.... go red socks

Title: Re: just as i thought
Post by Kris_in_SJ on Oct 2nd, 2005, 7:02pm
Keith,

Find a different doctor.  Your's sounds a bit surrealistic - like out of a bad novel.

Please get a second opinion.

Kris



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