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        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> CH Database Part 2-2
        
(Message started by: cluster on Oct 1^st, 2005, 5:13am)

Title: CH Database Part 2-2
Post by cluster on Oct 1^st, 2005, 5:13am

Global Cluster Headache Database
Some Available Cluster Headache Statistics and Surveys

(Please see also: http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1126505637 )

Non scientific cluster headache surveys:

http://www.wrongdiagnosis.com/c/cluster_headache/stats.htm

Be warned: This page is spammed with popups. Some statistic figures with reference to the Department of Health, England. Have to find the original data source. – Anybody?

O.U.C.H surveys: (2002 – ongoing)

http://www.clusterheadaches.org/survey/survey.htm

The “famous” surveys from DJ at clusterheadaches.com:

General cluster survey - 12026 inputs since 1999:
http://www.clusterheadaches.com/survey/index.html

Survey about medication and helpers – 3575 inputs since 2000:
http://www.clusterheadaches.com/meds/index.html

(DJ, the counters haven’t moved since July this year, why?)

And last, but definitely not least:

http://www.clusterbusters.com/phpsurveyor/index.php?sid=5

http://www.clusterbusters.com/phpsurveyor/index.php?sid=6

Please have a look at these surveys, even if you may object to considering alternative treatments. Actually, the above surveys do not really have to do much with alternative treatments.

What should be added to such an approach is:

- Data entry only by CH patients certified by doctors (“survey prescription”)
- Content + questions to be defined by scientific medical, survey, statistic experts and CH support groups (IHS working group) etc. - see Global Cluster Database proposal

The IHS (working group) should be in charge of such a global database – on the national basis the database should be controlled by the National Headache Societies and National Government Institutions – supported by the Cluster Headache Support groups. If the IHS working group should decide to use the cluster buster’s database or a similar approach: Do not worry about their copyright notice – I will pay for the required license fees.

There is also an existing internet database ‘CHATS’ which is currently offline.

Pain free times!

Friedrich

Title: Re: CH Database Part 2-2
Post by unsolved1 on Oct 1^st, 2005, 5:24am

You've certainly been doing your homework and I applaud your efforts!

UNsolved

Title: Re: CH Database Part 2-2
Post by cluster on Oct 1^st, 2005, 6:29am

Global Cluster Headache Database
Overview of CH.com message board postings

- I had to split the postings because the text was to long -

Proposal for a Global Cluster Headache Database
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1126505637

Part 2: Some Available Cluster Headache Statistics and Surveys

Part 2-1 Scientific surveys, statistics and literature
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128161475

Part 2-2 Non scientific surveys, statistics and databases
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128161636

Part 3: Some ideas on how this could be made to work

Part 3-1
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128162323

Part 3-2
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=chspecific;action=display;num=1128162464

Pain free times,
Friedrich