Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2005 Cluster Headache Specific Posts >> fibromyalgia and clusters
        
(Message started by: mrs mac on Oct 18^th, 2005, 7:55pm)

Title: fibromyalgia and clusters
Post by mrs mac on Oct 18^th, 2005, 7:55pm

hey guys, was just wondering if any one here suffers both fibro and clusters??

my other half Andy has both, and we were wondering if there was any one else, and if there was, how do you cope with both??

sandra xxxxx

Title: Re: fibromyalgia and clusters
Post by LeLimey on Oct 18^th, 2005, 8:00pm

Hi Sandra, I know there is a guy here called CarlD who has both, look for posts by him on the general board and drop him an IM!
Oh and check your email lil Sis.. sent you somefink earlier!
love
big sis

Title: Re: fibromyalgia and clusters
Post by mrs mac on Oct 18^th, 2005, 8:02pm

hey big sis!!!!!

yeah i seen it, soooooooooo funny!!!!! 8) :o

have you checked our mb lately?? think you should (meds)

will look out for Carl!!!

luvs ya lil sis xxxxxxxxxxxx

Title: Re: fibromyalgia and clusters
Post by kimmeesue on Oct 18^th, 2005, 11:39pm

I have clusters, fibro and lupus. Don't think there is a connection but it sure can be the pitts

Kim

Title: Re: fibromyalgia and clusters
Post by don on Oct 19^th, 2005, 7:34am

Check your PMs

Title: Re: fibromyalgia and clusters
Post by mrs mac on Oct 19^th, 2005, 6:34pm

cheers don!!!

appreciate you sharing that with me!!!

take care

mrs mac xxxxx

Title: Re: fibromyalgia and clusters
Post by floridian on Oct 19^th, 2005, 8:52pm

If there is a connection, it is probably through serotonin and glutamate problems:

Quote:

J Pain Palliat Care Pharmacother. 2004;18(4):31-45.

Serotonin mechanisms in pain and functional syndromes: management implications in comorbid fibromyalgia, headache, and irritable bowl syndrome - case study and discussion.

Smith NL.

University of Utah, School of Medicine, USA. smithnlee@aol.com

A young woman presented with multiple central hypersensitivity disorders, including fibromyalgia, headache, pelvic pain and several smooth muscle spasm disorders, including irritable bowel syndrome, irritable bladder and Raynaud's phenomenon. She also had significant fatigue and sleep problems. Her case illustrates the importance and surprising frequency of atypical bipolar mood disorders in people with multiple central hypersensitivity pain disorders, especially with depression and anxiety resistant to antidepressant treatment. Considering neurological mechanisms common to her overlapping disorders was very helpful in guiding treatment choices. This experience illustrates the value of serotonin receptor type 2 (5HT2) inhibition with atypical neuroleptics, of neural cation channel and glutamate inhibition with anticonvulsants, and the potential usefulness of antidepressants after establishing 5HT2 control to enhance downward inhibitory tracts. Medications with combined usefulness for both bipolar mood and pain disorders were highly effective for her multiple hypersensitivity problems.

Title: Re: fibromyalgia and clusters
Post by Kate in Oz on Oct 19^th, 2005, 10:06pm

Hi Sandra,

Yep, I've got fibro as well as ch. I take (if/when I remember - so vague!!) chelated magnesium and levo-carnitine for the fibro and I'm lead to believe the magnesium helps with insomnia too.

How do I cope?? One day at a time!!

Wishin you all the best,

Kate

P.S. if you come across anything that works to help Andy cope I'd really be interested. Ta

Title: Re: fibromyalgia and clusters
Post by zanychef on Oct 20^th, 2005, 10:15am

i hope to hell i havent got it i couldn't say it or spell it in a hit [smiley=frown.gif]

Title: Re: fibromyalgia and clusters
Post by mrs mac on Oct 22^nd, 2005, 6:51am

hi kate

check your PM's

luv

sandra xxxxxx

Title: Re: fibromyalgia and clusters
Post by E-Double on Oct 22^nd, 2005, 7:26am

There could be a connection fo rsome due to the "screwed up" melatonin levels

Abstract:
Can Melatonin Be an Alternative and Safe Treatment for Patients with Fibromyalgia?
http://www.Fibromyalgiasupport.com/library/showarticle.cfm?ID=1387

Abstract:
When Was the Last Night You Slept Well?
http://www.Fibromyalgiasupport.com/library/showarticle.cfm?ID=270

Chronic Cluster Headache May Resolve With Melatonin Treatment
http://www.fibromyalgiasupport.com/library/print.cfm?ID=3360

Title: Re: fibromyalgia and clusters
Post by mrs mac on Oct 22^nd, 2005, 8:39am

thanks for that e double

found it very interesting and a possibility to at least try, especially if it could help with both conditions!!!!!!

if you find any thing else please let me know

tc and thanks again

sandra xxxxx