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benetton
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NEW HERE!
« on: Jan 31st, 2004, 9:32am »
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Hi Everyone, I just wanted to say hello and introduce myself.  I am Italian but I live abroad for my work (often in the USA). Now I'm in Italy Grin. Is there any Italian here? I live in a village near Venice. Grin  
 
I am new to the site but, not to CH.  It started 5 years ago, Iím episodic. Four things have helped me fight the pain; Verpamil and Litium, Imigran and Oxigen. And when Iím in cluster I try to stay away from alcohol, heat, I try not to go hungry, etc.
 
Anyway, It was so nice to finally find others who are going through the same thing I am. Finally found people who understand!!!! Thank you!!
 
Regards,  Sara Benetton
 
 
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I'm with you in thoughts and heart!! Greetings from the beautiful country!!
Edski_1
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Re: NEW HERE!
« Reply #1 on: Jan 31st, 2004, 9:57am »
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Welcome Sara! Smiley
 
I'm going to guess that Imigran is the Italian name for Sumatriptan, what we call in the USA "Imitrex"?  Seems to be the most commonly used triptan for abortive...
 
Yes, it is good to find a community that understands this beast.
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Re: NEW HERE!
« Reply #2 on: Jan 31st, 2004, 9:58am »
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Welcome to Clusterville.  There ARE others like you.
 
Quote:
Is there any Italian here?

 
Yes, and there's OUCH Italia, too:
 
http://www.ouchitalia.it/
 
Sounds like you're on the right medications and have the triggers under control as well.  What's your story about how you got diagnosed and found such appropriate treatment?
 
Check out OUCH USA as well:
 
http://www.clusterheadaches.org/
 
Sorry that you have CH, but you've found the right place if you have to have them!
 
 
 
 
 
 
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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Re: NEW HERE!
« Reply #3 on: Jan 31st, 2004, 10:05am »
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Welcome to the club, Sara!
 
-Brad
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Re: NEW HERE!
« Reply #4 on: Jan 31st, 2004, 10:12am »
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Welcome Sara!
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Jackie S.
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Re: NEW HERE!
« Reply #5 on: Jan 31st, 2004, 6:25pm »
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Hello Sara --- welcome!!!
 
There are TOO MANY NEWBIES!!!    TOO MANY --
 
more people with CH?  or more people with computers??   either way - sucks.
 
Welcome aboard Sara... stick around!
 
tina
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Re: NEW HERE!
« Reply #6 on: Jan 31st, 2004, 6:48pm »
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Chiao, or how you say, hello~!
 
Glad you found us.  Love to hear your accent.  Welcome to the Villa da Cluster.
 
Kevin M
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Re: NEW HERE!
« Reply #7 on: Jan 31st, 2004, 8:44pm »
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welcome aboard... Cheesy
 
 Ramon
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Re: NEW HERE!
« Reply #8 on: Jan 31st, 2004, 10:11pm »
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Welcome aboard Sara.  Sounds like you have your situation pretty well under control.  Let us know how you were diagnosed and how you were prescribed the four most potent reliefs for CH.  That is awesome!  Many here have gone for ten years or more without even a diagnosis, let alone proper medications.  
 
Jerry
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Re: NEW HERE!
« Reply #9 on: Feb 1st, 2004, 12:11am »
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Hi Sara,
 
Welcome to the board.
 
We do have an Italian sufferer that posts here regularly.  Her name is Zaira.  Even though she suffers a great deal with CH, she is a fantastic supporter.
 
Stay close....we will be here for you, should you need us.
 
PF vibes,
 
Jean
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Re: NEW HERE!
« Reply #10 on: Feb 1st, 2004, 12:56am »
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Welcome and yes there are lots of Italians here. Great people.  
 
Tiannia
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Re: NEW HERE!
« Reply #11 on: Feb 1st, 2004, 2:20am »
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welcome sara
 
glad you found us Wink stick around and let us know how you are doing!
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Re: NEW HERE!
« Reply #12 on: Feb 1st, 2004, 5:28am »
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Ah Sara, neppure si capisce che sei di Treviso, dal cognome intendo!! Hehehehe †Grin  
 
I can say you are lucky, Sara. † † OUCH Italia has a fantastic supporter and CH sufferer, her name is Zaira, she lives in Treviso. I give you her phone number, talk to her. She is WONDERFUL. She is in a bad time but I know she will be very happy to meet you........ be well, Andrea †(trevigiano pure e puro Grin)  
 
« Last Edit: Feb 1st, 2004, 5:32am by AndreaD » IP Logged

'La felicitŗ Ť una scelta. Scegli saggiamente.' - Happiness is a choice. Choose wisely.

Andrea (Zaira's friend) Grin
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Re: NEW HERE!
« Reply #13 on: Feb 1st, 2004, 8:23am »
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Glad you have found a good mix to fight the pain.
 
Welcome.
 
Steve G
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benetton
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Re: NEW HERE!
« Reply #14 on: Feb 1st, 2004, 5:21pm »
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Thank you for the warm welcome! Wink
 
Quote:
Sounds like you're on the right medications and have the triggers under control as well.  What's your story about how you got diagnosed and found such appropriate treatment?  

 
Quote:
Sounds like you have your situation pretty well under control.  Let us know how you were diagnosed and how you were prescribed the four most potent reliefs for CH

 
I had the first attack 5 years ago, my ex husband is a Doctor and immediately he said: you have CH. I was recovered and, sadly, he was right.......I was diagnosed of CH. In the hospital I had some treatments with no results, so the meds decided to give me Lithium and Verapamil, a mounth later the treatment started to work. I read that someone of you is chronic, or is having a very bad time.... I feel lucky if I think about it!  
 
Quote:
Ah Sara, neppure si capisce che sei di Treviso, dal cognome intendo!! Hehehehe  

Zitto Grin probabilmente nessuno sŗ che Benetton Ť un marchio nato dalle nostre parti Grin. Cmq, Avanzi una birra, voglio ringraziarti di persona per avermi dato il nome di Zaira.
 
Anyway, Thanks AndrŤ Grin, I met Zaira this evening and Iím really proud to know her! And what a coincidence! Her grandfather was my teacher at the University! WOW!  
Zairaís art is what first attracted me, Iím so impressed with her art, I can say she has exactly  her grandfatherís talent. We spoke a lot this evening, Zaira is a very special person and she has a wonderful spirit and she is beautiful inside. Iím trying to to tell you that she has an effect on people, a strong positive effect. Even if she is suffering horribly, she gave me strength to go on. Really happy to have such a wonderful woman near me!!
 
Greetings to you and a prayer for whom is suffering in this moment! I'm sorry!
 
Sara Benetton
 
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JustRe: NEW HERE!
« Reply #15 on: Feb 1st, 2004, 8:48pm »
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Just want to say WELCOME!
 
 
Little Deb
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« Reply #16 on: Feb 2nd, 2004, 9:27am »
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on Feb 1st, 2004, 8:48pm, Little Deb wrote:
Just want to say WELCOME!
 
 
Little Deb
Raleigh, NC

 
Ditto!
 
Paige
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Charlie
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135447360 135447360   mondocharlie   mondocharlie
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Re: NEW HERE!
« Reply #17 on: Feb 3rd, 2004, 12:49am »
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Welcome to the fold and I see you met some of your own. You'll also find Jonny here. The last I heard he is Italian  Cheesy Poor dope lives near Boston though.  Roll Eyes
 
Glad to have you and you'll find some good ideas and ways to deal with this horror.
 
Let us know how you're getting along.
 
Charlie
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ZAIRA
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Re: NEW HERE!
« Reply #18 on: Feb 3rd, 2004, 2:47pm »
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Hmmm........ Italian people make always a lot of compliments.... Grin ...... smooooooch Sara Kiss Kiss Kiss
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Re: NEW HERE!
« Reply #19 on: Feb 3rd, 2004, 3:11pm »
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Welcome!!   Grin
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mediccpc
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Re: NEW HERE!
« Reply #20 on: Feb 3rd, 2004, 3:58pm »
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Welcome Sara,
 
You will find alot of information here. I recently became a member also. Working in the US is not bad I do it every day. I am also Italian. Lived in Naples.
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ZAIRA
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Re: NEW HERE!
« Reply #21 on: Feb 4th, 2004, 11:08am »
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on Feb 3rd, 2004, 3:58pm, mediccpc wrote:
Welcome Sara,
 
You will find alot of information here. I recently became a member also. Working in the US is not bad I do it every day. I am also Italian. Lived in Naples.

 
 
Hi Compatriot Grin! I have not read  your post.... BTW  Welcome by me too! Zaira  Tongue
 
 
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Re: NEW HERE!
« Reply #22 on: Feb 6th, 2004, 5:52pm »
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Welcome, sorry you have to be here.  I have been away from the board for about a week now.  I am amazed at how many new people there are.  I am sad because there are so many.  I am not sure if it is a good thing that there are so many because it shows that people are finally getting proper diagnoses, or a sad thing becasue there are sooo many of us suffering Cry
Very mixed feelings here Undecided
Andrea
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