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Topic: I'm new here (Read 481 times) |
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rob_d
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I'm new here
« on: Feb 6th, 2004, 1:22pm » |
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Hi everyone- I am a 40 year old man- had CH since i was 16...get them every 3 years or so...theis bout happened 1 week ago...funny how I convince themselves they are gone forever!!
I have tried some medication over the years and found no relief, but 3 days ago went to the Dr and he suggested Stadol nasal spray- what a godsend.
Of course the headaches persist but the pain is almost non-existent...the second best thing to being pain free.
Thanks for listening- nice to be here.
Rob
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Margi
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Re: I'm new here
« Reply #1 on: Feb 6th, 2004, 1:30pm » |
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Hi Rob and welcome.
Just so you know, we just launched a website for O.U.C.H. Canada (Organization for Understanding Cluster Headaches). Feel free to drop in for some "home grown" info. (No, not THAT kind of home grown!  ) We've also just upgraded to the same format of a message board that you see here.
http://www.clusterheadaches.ca
Glad you've found something to relieve your pain.
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| « Last Edit: Feb 6th, 2004, 1:31pm by Margi » |
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BlueMeanie
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Welcome Rob !!!
Sorry to hear the Beast has returned.
I'm glad Stadol works for you, but it is a narcodic. Stadol just knocks you out. Does not rid a CH. I used that stuff years ago and it sucked. Check on Imitrex and O2. Please read all you can off this site. Many new meds out there that you probably have NOT tried. I hope you find some relief soon. I am sending PF vibes your way in hopes you have a very short cycle this time around.
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| « Last Edit: Feb 6th, 2004, 1:42pm by YOSIMITE » |
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echo
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Re: I'm new here
« Reply #3 on: Feb 6th, 2004, 1:59pm » |
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Glad you found an abortive that works for you. I have used it from time to time myself. It is a dangerously addictive drug however.
Sorry the SOB returned for a visit after a 3 year absence.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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amen
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Re: I'm new here
« Reply #4 on: Feb 6th, 2004, 6:00pm » |
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Sorry you have to be here  Welcome though. You will get lots of great information here, and a ton of wonderful support.
Andrea
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River_Rat
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Re: I'm new here
« Reply #5 on: Feb 6th, 2004, 6:21pm » |
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Welcome aboard Rob, glad you have something that works, stick around, this is a great place to hang out.
NORM
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Charlie
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Re: I'm new here
« Reply #6 on: Feb 7th, 2004, 12:32am » |
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Welcome aboard and I'm happy you found something that works. Stick around as there are lots of good ideas here. Here's one that worked for me:
http://www.netsync.net/users/charlies/
Charlie
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cootie
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Re: I'm new here
« Reply #7 on: Feb 7th, 2004, 12:38am » |
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Hi Rob.......nice meetin ya !!! Hang around and learn alot and have sum fun ! Pam that likes South Park's cute version of Canada
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Callico
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Re: I'm new here
« Reply #8 on: Feb 7th, 2004, 12:38am » |
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Welcome!
Draw up a chair and sit a spell. You will find a lot of info available as well as a lot of caring people to help you through the tough times with this beast. Glad the Stadol is working for you, but along with the others I would strongly encourage you to check out some of the other remedies that are now available that don't have the addictive qualities. O2 is a definite recommend.
Take care.
Jerry
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tsayswhy
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Re: I'm new here
« Reply #9 on: Feb 7th, 2004, 1:53am » |
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Welcome Rob 
glad you found us. You should read about imitrex injections and o2 works well and ask your dr. about this
and like margi said please look us up over in the canadian site and feel free to post there as well.
wishing you pf...........tari
just around the conner from you feel free to email me!
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TxBasslady
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Re: I'm new here
« Reply #10 on: Feb 7th, 2004, 2:01am » |
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Welcome to the board, Rob....
Lots of good information here.....and the best support group around.
Hope you stay and let us know how you're doing.
PF vibes,
Jean
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rob__d
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Re: I'm new here
« Reply #11 on: Feb 7th, 2004, 7:59am » |
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Thanks for the kind advice everyone.
I have a few thoughts re CH and I would be curious if anyone agrees.
One thing I have noticed is that if I get an attack at home, there is nothing I can do but wait it out- sometimes 1/2 hour, sometimes 2 hours. (A few days ago was a first, I had a 45 minuter, went to bed and got another one before I could fall asleep).
However, if I happen to get one when I REALLY don't want one, say at work or in a public place, I can usually fend them off. I don't know how or why, but they seem to attack and then drift away after 10 minutes. That never ever happens when I get one at home.
Another phenomenon is that if I am in the middle of one, an 8 on the kip scale, my memory increases. For example, right now , pain free, I couldnt name 5 kids in my first grade class, but during an attack I could name almost all. The headaches must allow me to concentrate or drudge things out of my subconcious for some reason.
Thanks for letting me ramble.
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Margi
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Re: I'm new here
« Reply #12 on: Feb 7th, 2004, 11:13am » |
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on Feb 7th, 2004, 7:59am, rob__d wrote:Thanks for the kind advice everyone.
However, if I happen to get one when I REALLY don't want one, say at work or in a public place, I can usually fend them off. I don't know how or why, but they seem to attack and then drift away after 10 minutes. That never ever happens when I get one at home.
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Hi again, Rob - I'd say that's because of the adrenaline theory. Most sufferers don't get hit when the adrenaline is surging. It's when they start to relax that the bombs start dropping. My husband is the same way. He is a finishing carpenter by trade, so he's very physical in his work. He rarely gets hit during the day. It's when he gets home at night and sits down is when the beast finds him. I wish we could figure a way to keep you guys pumped up all the time, but then the sleep deprivation would probably kill you. It's a vicious circle, isn't it? 
Also, you say you're getting hit just after falling asleep. Rob, go to Shoppers Drug Mart and get yourself some generic Gravol or generic Benadryl. Take two before bed and it will most likely let you get through the night. It doesn't let you reach REM sleep which is when clusters hit. Don't take it for more than a few days in a row but do try it, ok?
Hang in there!
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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cathy
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Re: I'm new here
« Reply #13 on: Feb 7th, 2004, 11:23am » |
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Hi Rob Welcome aboard...sorry to read that your getting hit...hope you find some PF time soon....sending you vibes from across the pond...
Cathy 
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brad267
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Re: I'm new here
« Reply #14 on: Feb 7th, 2004, 12:09pm » |
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Hi Rob,
Welcome aboard, eh.
Brad
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Mark C
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Re: I'm new here
« Reply #15 on: Feb 7th, 2004, 2:43pm » |
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Welcome to the board Rob,
BTDT with the Stadol, I did not do too well with it, and I usually like narcotics but that stuff made me sick and dizzy, and I still had a HA.
For more conventional meds look here most of which I have tried and most work. Oxygen gives relief without nasty side effects, look here for info.
PFDAN's
Mark
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Kirk
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Re: I'm new here
« Reply #16 on: Feb 7th, 2004, 6:49pm » |
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Welcome to the Maelstrom.
Like Don says "stay stressed, don't ever relax".
Unless you are like me. I never stress.......much.
TTFN 
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BobG
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Re: I'm new here
« Reply #17 on: Feb 8th, 2004, 3:10am » |
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on Feb 7th, 2004, 6:49pm, Kirk wrote:
Like Don says "stay stressed, don't ever relax".
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Don said that? 
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| « Last Edit: Feb 8th, 2004, 3:10am by BobG » |
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Stay stressed. Never relax. Never sleep. Ever.
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rob__d
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Re: I'm new here
« Reply #18 on: Feb 8th, 2004, 7:53am » |
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Now this is odd...
I am 2 weeks into a cycle but PF for 3 days, but yesterday got one so took Stadol spray and as usual the headache persisited but I felt no pain.
5 hours later I got another one so I took the spray again (I don't like to take the spray so frequently but I will if I feel a doozy is on the way) and for the first time it didn't completely help. Perhaps it turned a 8 kip into a 5, that type of thing.
Woke up last night 4 am with one, but didn't feel alot of pain, just the unmistakable throbbing and convulsing. It's as if the stadol took 8 hours to work.
This stuff is scaring me- going to see the Dr tommorow for immitrex injections or 02.
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