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Topic: new guy- old sufferer (Read 340 times) |
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randal
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new guy- old sufferer
« on: Feb 10th, 2004, 7:20pm » |
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Will it seems like I am an old sufferer.Anyway Hello My name is Randy and I have had CH for about 25 years now. So far this website has been awesome.
Married- Father of Two/22 & 15
It seems I have tried every medication there is but I know thats not possible.I was one of Stanfords first Ginni-Pigs in 1979 for a Prednisone study of clusterheadaches.They put me on 100 Mg a day for 3 months before even starting the taper.Of course at that time I had no Idea you had to taper off this stuff I was willing to try anything to get rid of this Devil or whatever the hell it was out of my head. I wound up not suffering as bad but the side effect where WOW. I gained 150 pound of water fat-3 chins and my face looked like the surface of the moon.What a memory....Thanks for your help so far and cant wait to learn anything I can.[email]clusterhed@aol.com
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Paigelle
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Re: new guy- old sufferer
« Reply #1 on: Feb 10th, 2004, 7:31pm » |
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Welcome to the family! Sorry you had to find us, but glad you did. We are all a little nutso here and we have all been guinea pigs, as a matter of fact we still are. Stick around and be brave it is hard to tell what you will see and hear!
Paige
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fubar
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Re: new guy- old sufferer
« Reply #2 on: Feb 10th, 2004, 8:07pm » |
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Welcome aboard Randy. What's your current condition? In/Out of cycle, or (God forbid) chronic? Have you tried any of the suggestions here like Oxygen, Melatonin, etc...
-fubar
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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katlee
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.Re: new guy- old sufferer
« Reply #3 on: Feb 10th, 2004, 8:19pm » |
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Hello Randal I'm a new gal-old sufferer! I have had CH for around 20 or so years,not chronic, but was told I had migraines. Found out differently a few years ago but did not know about any meds for CH till I found this site. This place has been very helpful to me and I hope it will for you too.
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tomorrow is another day....if i can make it through the night!
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Charlie
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Re: new guy- old sufferer
« Reply #4 on: Feb 10th, 2004, 8:47pm » |
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Welcome to the fold. Here, you'll find lots for support and some good ways to deal with this horror. Sadly, the club grows every day but so does our determination to survive.
Here is a link to something that worked very well for me:
http://www.netsync.net/users/charlies/
I hope you stick around and let us know how you're doing.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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BlueMeanie
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Re: new guy- old sufferer
« Reply #5 on: Feb 10th, 2004, 8:58pm » |
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Welcome Randal !
Looks like you've suffered abunch. You should find some good info here. Read all you can. Hopefully you'll find something new that will help you deal with the Beast.
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: new guy- old sufferer
« Reply #6 on: Feb 11th, 2004, 1:20am » |
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Welcome aboard!
on Feb 10th, 2004, 7:31pm, Paigelle wrote:| We are all a little nutso here |
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Don't mind Paige, she is ONLY a female!!! I just wish she would go back to the "home", they have her padded room waiting for her.
Not all of us are nuts ... well maybe a LITTLE bit ...
Chuck
(Now running to hide, before the flying frying pans start at me ... )
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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TxBasslady
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Re: new guy- old sufferer
« Reply #7 on: Feb 11th, 2004, 2:06am » |
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Hi Randy,
Welcome to the board.
Tons of good information here. Read the links on the left, if you haven't already done so.
Wow, sounds like you were on a helluva Prednisone trip!
Would be interesting to know if you are currently on any meds. And like Shawn said.....are you chronic, episodic, in or out of cycle?
Let us know how you're doing.
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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mediccpc
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Re: new guy- old sufferer
« Reply #8 on: Feb 11th, 2004, 9:12am » |
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Randy Welcome,Sorry your here. One of the things I felt when I found this site was,I'm truly not alone. learn as much as you can.
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randal
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Re: new guy- old sufferer
« Reply #9 on: Feb 11th, 2004, 5:07pm » |
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I am in a cycle right now and it will most likley go on for about 6 weeks.I am not chronic but I have had a few CH during the rest of year out of cycle if I eat something wrong or dont quit the habit. (to many ciggs). I am just taking IMITREX 100 MG and still take Varapamil 240 MG every day.
Take Care RB
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