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Topic: recommended Docs? (Read 340 times) |
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Rmatt
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I love YaBB 1G - SP1!
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recommended Docs?
« on: Feb 11th, 2004, 1:16pm » |
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How should I go about locating a good one in the Charleston, SC area?
Matt
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Virginia
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Re: recommended Docs?
« Reply #1 on: Feb 11th, 2004, 3:22pm » |
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Click on the "ouch website" button on the left. Once there look under "cluster help" for a list of recommended Dr's.
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The Clusterhead formerly known as 9erfan.
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Bob_Johnson
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Re: recommended Docs?
« Reply #2 on: Feb 11th, 2004, 4:35pm » |
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PHYSICIANS--LOCATING HEADACHE SPECIALISTS
The National Headache Foundation, 1/888-643-5552, will send a list of doctors, by state, who have self-identified themselves as being interested and experienced in treating headache.
I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder" which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.
www.HEADACHECARE.COM. See physician finder; limited listings.
WWW.ACHENET.ORG American Council for Headache Education.
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Bob Johnson
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t_h_b
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primary chronic since 1999
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Re: recommended Docs?
« Reply #3 on: Feb 11th, 2004, 8:15pm » |
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on Feb 11th, 2004, 4:35pm, Bob_Johnson wrote:
the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder" which block them from sympathetic and effective work with the patient; |
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Forty percent must be an extreme underestimate. If that were true, then sixty percent of US MDs would have GOOD training in treating headache, and the odds would be better than 50-50 of getting a good one with one try. With all of the people posting about seeing multiple MDs prior to even getting diagnosed properly, it is VERY hard to believe that statement.
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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Cerberus
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Whomever said that two heads are better than one?
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Re: recommended Docs?
« Reply #4 on: Feb 11th, 2004, 9:12pm » |
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Finding a "Good" one is a crapshoot, at least it has been in my experience, however, the others have gotten you off to a great start.
Ramon
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: recommended Docs?
« Reply #5 on: Feb 11th, 2004, 11:34pm » |
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Matt, I am calling one of our sisters who lives in Columbia, and see if she knows a clusterhead down in Charleston who can help you.
Hopefully she can help you.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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t_h_b
New Board Hall of Famer
primary chronic since 1999
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Re: recommended Docs?
« Reply #6 on: Feb 12th, 2004, 8:12pm » |
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I did an educational module today about..........migraines. (Aren't any for clusters as far as I know.) It said that one large study found that only 48% of migraneurs were properly diagnosed with the most common misdiagnoses being sinus headache (sound familiar?) and tension headache.
If migraneurs with their well-known affliction only get diagnosed properly 48% of the time, then that really leaves us ClusterHeads sh*t out of luck trying to get diagnosed. (There are about 5 million of them in the US compared to less than 300,000 of us.)
There was no mention of how many physicians the migraneurs saw to reach an overall 48% level of proper diagnosis.
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| « Last Edit: Feb 12th, 2004, 8:15pm by t_h_b » |
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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