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Topic: New to the site (Read 304 times) |
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Reillysmom
New Board Newbie
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Posts: 3
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New to the site
« on: Mar 30th, 2004, 8:10pm » |
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Well here I am again with the Beast! It has been four years almost to the day that I had my last bout.
I am now on day 26 and again today started new meds.
I feel like I have lost a month of my life. I am not fun to be around any more. I want my life back!
I think that this is an awesome website and have referred my co-workers to it, perhaps they will understand it a bit better when I say it will be yet another week before I am back at work.
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FZfan
New Board Old Timer
Not Insane
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Posts: 459
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Re: New to the site
« Reply #1 on: Mar 30th, 2004, 9:35pm » |
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Welcome, sorry about the return of "the Thing That Wouldn't Leave". A four year remission is a good long one, though, at least you had that.
Glad you found this site, you're right, it is awesome. Read up on everything. Since it's been four years for you I hafta ask, have you tried o2? Check out o2 info on the menu to the left. Works great as an abortive for lots of us.
How long are your cycles? Are you near the end? What kind of med are you using?
Hope you're not getting too much shit at work. I know in my case it helped a lot to educate my co-workers. I hope yours are as understanding.
Let us know how you're doing. Good or bad. Lots of support here either way.
Again, welcome.
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There is no such thing as a dirty word. Nor is there a word so powerful, that it's going to send the listener to the lake of fire upon hearing it. - FZ
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Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
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Posts: 3757
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Re: New to the site
« Reply #2 on: Mar 31st, 2004, 9:43am » |
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Hi ReillysMom
Sorry to hear you have a reason to find support for your pain, but glad you did!!
What meds did they put you on?
Don't forget to check out OUCH Canada - there's a bunch of Canadian clusterheads there now....maybe even someone in your neighbourhood!!
http://www.clusterheadaches.ca
p.s. I just checked your profile and see that you're from Winnipeg! Or should I call it Winterpeg? You're actually the first Canadian clusterhead we've found from Manitoba. We were beginning to think that maybe there was something in the air out there and were starting to pack our bags to move there en masse. Figured maybe that Portage and Main had a secret cluster elixir cure or something.... 
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| « Last Edit: Mar 31st, 2004, 11:24am by Margi » |
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Luke63
New Board Hall of Famer
For sale: 1 BIG BARKING HEAD Price: Free
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Posts: 1182
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Re: New to the site
« Reply #3 on: Mar 31st, 2004, 11:05am » |
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Welcome!!! We're here ok? Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
Gender:
Posts: 3201
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Re: New to the site
« Reply #4 on: Apr 1st, 2004, 10:03pm » |
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Welcome to the board.
I know it doesn't make the pain go away, but you're not alone.
This site has been a life saver and a God-send for lots of folks.
There are lots of ideas and home remedies that work for alot of folks here. Check out the posts on Melatonin. So much to read and learn.
Sorry you're suffering.......
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
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Posts: 14968
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Re: New to the site
« Reply #5 on: Apr 2nd, 2004, 8:06pm » |
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Welcome Mom to the fold. Sorry you have to deal with this horror but you are no longer alone. If you stick around you'll find good ideas and ways to help deal with Ch. Here is a technique that worked well for me:
http://www.netsync.net/~charlies/
Stick around and let us know how you're doing.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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