Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
May 14th, 2024, 2:20pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Hi everyone »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2004-2005 Getting to Know Ya Posts
(Moderator: DJ)
   Hi everyone
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Hi everyone  (Read 310 times)
Blackrosa
New Board Newbie
United_Kingdom 
*




I love YaBB 1G - SP1!

   


Gender: female
Posts: 9
Hi everyone
« on: Jun 15th, 2005, 6:21am »
Quote Quote Modify Modify

Im sarah and i have been having these headaches since jan!
 
At first the doctors told me it was just a migraine and gave me a list of triggers..so i stopped eating and drinking all on that list..But they just came back and with a vengence..This time i have had these head aches for 3 weeks..And at last the doctors have a result..Im a clusterhead!!!
IP Logged

*-*Being who i want to be*-*
BobG
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 5747
Re: Hi everyone
« Reply #1 on: Jun 15th, 2005, 7:31am »
Quote Quote Modify Modify

on Jun 15th, 2005, 6:21am, Blackrosa wrote:
Im a clusterhead!!!

Be proud! Stand and scream it to the world!
 
"I am among the few, the proud, the .05% of the world's population with the title of CLUSTERHEAD!"
 
Well............uhmmmm......maybe not.
 
Welcome to the board Sarah. Sorry you had to come looking for us. There is a lot to learn.
 
Please tell us some more about yourself. Like........
what is a Blackrosa?
 Grin
IP Logged

Stay stressed. Never relax. Never sleep. Ever.
E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: Hi everyone
« Reply #2 on: Jun 15th, 2005, 7:39am »
Quote Quote Modify Modify

Welcome aboard sister!!  
   
This is  a great resource to know like the back of your hand...print it out and give it to your doc  
   
   
http://www.brightok.net/~mnjday/chtherapy.pdf    
   
It will present the appropriate treatments that you should seek and your doctor should know!!!    
   
Ask for a script and if needed FIGHT fOR Oxygen...  
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm    
   
Educate your doctors!!!    
 
Here is a link to OUCH (Organization for Understanding Cluster Headaches) UK  
 
http://www.clusterheadaches.org.uk/home/index2.cfm?address=../home/txt_w elcome.cfm&added=Dec2001&code=AD
     
Good luck and stay strong!    
     
E
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
Langa
CH.com Alumnus
New Board Hall of Famer
USA 
*****




So many donuts, such little time...

   


Gender: female
Posts: 4179
Re: Hi everyone
« Reply #3 on: Jun 15th, 2005, 9:50am »
Quote Quote Modify Modify

Welcome to the family Blackrosa!!
 
Langa
IP Logged

When you saw only one set of footprints, it was then that I carried you.
Blackrosa
New Board Newbie
United_Kingdom 
*




I love YaBB 1G - SP1!

   


Gender: female
Posts: 9
Re: Hi everyone
« Reply #4 on: Jun 15th, 2005, 10:57am »
Quote Quote Modify Modify

thankies for the warm welcomes...Im trying to do as much research on it as i can...but when the beast awakens its pretty hard.
 
I love black roses...I know they aint really real and have to be dyed..but they are so sweet and beautiful. and true beauty is on the inside...so i picked the name..besides its my devaint art name too.
IP Logged

*-*Being who i want to be*-*
LeLimey
CH.com Alumnus
New Board Hall of Famer
Great_Britain 
*****



OUCH-US - Less "ME" and more "WE"

  lelimey  
WWW Email

Gender: female
Posts: 11720
Re: Hi everyone
« Reply #5 on: Jun 15th, 2005, 11:22am »
Quote Quote Modify Modify

Hello Sarah!
Its nice to meet you. What meds are you on at the moment? I'm only asking because sometimes doctors don't always know of the better treatments and we can arm you with knowledge!
Have a look at OUCH UK too, it will be very relevant to you as some meds have different names between here and the US for instance, also they have some stunning new info on employment law which is groundbreaking (Thank our Pubgirl aka Wendy for that, she is incredible!)
Reading IS your best weapon and I know its alot to take in at once. Feel free to ask any questions and ask them as many times as you need to as well!
Look after yourself
Helen
IP Logged





The arsehole I'm divorcing needs to get a life and stop stalking mine

Blackrosa
New Board Newbie
United_Kingdom 
*




I love YaBB 1G - SP1!

   


Gender: female
Posts: 9
Re: Hi everyone
« Reply #6 on: Jun 15th, 2005, 6:28pm »
Quote Quote Modify Modify

im on a preventor...to stop or reduce the attacks..plus i have to take somehting whenthe attacks happen
IP Logged

*-*Being who i want to be*-*
vig
CH.com Alumnus
New Board Hall of Famer
USA 
*****




CHit Happens

    alongivsiuolluap
WWW Email

Gender: male
Posts: 4401
Re: Hi everyone
« Reply #7 on: Jun 15th, 2005, 10:03pm »
Quote Quote Modify Modify

Hi!
read up, enjoy the wonderful people here....
Hope you get better soon
IP Logged


never, Never, NEVER quit. -Winston Churchill
Blackrosa
New Board Newbie
United_Kingdom 
*




I love YaBB 1G - SP1!

   


Gender: female
Posts: 9
Re: Hi everyone
« Reply #8 on: Jun 16th, 2005, 5:26pm »
Quote Quote Modify Modify

ye i will...had an attack in work...the other girls must have thught i was crazy lol
IP Logged

*-*Being who i want to be*-*
Gator
CH.com Alumnus
New Board Hall of Famer

*****





   


Gender: male
Posts: 4556
Re: Hi everyone
« Reply #9 on: Jun 17th, 2005, 11:47am »
Quote Quote Modify Modify

on Jun 15th, 2005, 6:28pm, Blackrosa wrote:
im on a preventor...to stop or reduce the attacks..plus i have to take somehting whenthe attacks happen

 
 
Hi and welcome.  Either of these two meds have an actual name? LOL  Knowledge is power and there's tons of it just laying around waiting to be absorbed.  You are your own best advocate in your treatment, but you have to be well informed.  Read everything in the links to the left and in the various message boards.  Check out the UK site as well.  Lots of location specific info there and even a hotline you can call to talk to a clusterhead who's been there and will help you, too.
 
Good luck and again, welcome!
 
IP Logged
pubgirl
Guest

Email

Re: Hi everyone
« Reply #10 on: Jun 17th, 2005, 7:35pm »
Quote Quote Modify Modify Remove Remove

Gator
 
She's been given a migraine preventer called Pizotifen (an anti-histamine) that probably isn't worth the energy it takes to digest it
 
 
Wendy
IP Logged
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss