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treith
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Introduction
« on: Nov 9th, 2005, 3:32pm » |
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Hi everyone, I am new here. Just wanted to introduce myself.
I am 28 years old recently married and have a beautiful little boy. Since I got pregnant with my son I have been having migraines once a month or so. after i had my son i was given midrin and i was ok. abotu 6 weeks ago i was hit with what seemed to be my normal monthly migraine.. after the peircing pain, it retreated to the back right side of my head and it has been there since. several times a day it will throb forward till it is about right behind my right eye and it hurts so bad. it feels like my eye will pop out. i will have this pain anywhere from 15 to 20 minutes to up to 3 hours before it receads again. but the pain in the lower right side of my head is always there. when i origanally went to my dr.. he mentioned Cluster headaches and he wanted to send me to a neurologist he also gave me Zomig and a perscrip for Lorcet plus incase the Zomig didnt work. the Zomig did nothing to help me.. i was still havign these attack headaches. i took the appt and met with the guy, he told me he had never heard of a cluster headache/cluster migraine. that it must be a "new medical term", he sent me for an MRI and a few other scans, all came back normal. when i went back to him and he wanted to try a "coctail" of meds to see what happened. if the coctail didnt work he wanted to talk abtou the injections at he bace of my skull, and if that didnt work he woudl consider it being what is called a "cluster headache" (which a week earlier didnt exist) One was Frova anf the other two i cant remember the names. wiht in an hour of hte Frova my head would be hurting sooo bad that it felt as tho it woudl split. it matter not what time i took the frova it always made it worse. the other meds had some other undesirable effects so i stop takgin them.. i reently went back to him and he wanted to try the injections. i told him i coudlnt do that just the thought of a needle going into my hear creaps me out) so we are on to the Migranal nasle spray. which i have not gotten filled yet. this Dr seems to be under the impression that i am makgin up the whole pattern/headache thing. he seems to think i am spending thousands of dollars to get attention. he wants to add an antidepressent in the mix as well.
the more i read.. the more i am convinced this man is a quack and that i may really be having these Cluster headaches. btu like the quack said.. my symptoms dont sit neatly into one catagory of headaches/migraines. I can understand that.. but.. 6 weeks with a constant headache? i cant make it go away .. when it has moved forward it is all i can do to not try to pull my hair out or push my eye back into my head. but according to him because i am not nauseus or sensitive to light it cant be a migraine.
can anyone help? has anyone else experianced this where it will sit in hideing at the back of your head on one side taunting you.. you know its there you know it will attack again .. and all you can do it cry knowing the pain that is comming?
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| « Last Edit: Nov 9th, 2005, 3:33pm by treith » |
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
 
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Re: Introduction
« Reply #1 on: Nov 9th, 2005, 4:03pm » |
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Hi Treith nice to meet you!
Congratulations on your son and your wedding, both are joyous events.
I'm no doctor but its possible you have more than one headache type going on. Alot of what you have said is typical of clusters but some isn't and you do need a reliable diagnosis from a headache specialist neurologist.
The fact that he wants to consider injections into the base of your skull BEFORE he is prepared to think of it as CH is quite incredible and my advice would be to run - not walk to another doctor asap
hopefully someone will be along shortly who can recommend a good neuro in your area.
Take care and do let us know how you are getting on
Regards
Helen X
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E-Double
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Re: Introduction
« Reply #2 on: Nov 9th, 2005, 6:16pm » |
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Find a new doctor!!!!!!!!!
Headache specialist!!!!!!
Sounds like you have multiple headache types.
Doesn't sound like CH though.However, there are a few headache types that present similar, so doctors who are not familiar enough or just have god complexes will misdiagnose.
Even with CH You would have some level of reprieve in between attacks. You would not have a constant headache.
You could ask about a trial of indomethacin......it's an NSAID that is helpful with manyother headache types.
Good luck
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| « Last Edit: Nov 9th, 2005, 6:19pm by E-Double » |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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treith
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Re: Introduction
« Reply #3 on: Nov 9th, 2005, 9:15pm » |
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the Dr i am seeing IS a neurologist/headache specialist.
I just dont think the guy knows what he is talking about.
the headache does not compleatly go away, but it does fade to where it is a constant dull headache that is quite livable. i can still function, i can live with that.. its when it moves forward that i cant. i cant seem to get thru to this guy how it moves forward and how it feels.
heck.. i cant even get my husband to understand how it feels.
Now that i am home i was able to look at the names of the other two meds he gave me with the frova. one was Indocin and the other was Neurotin. None of the 3 helped.
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| « Last Edit: Nov 9th, 2005, 9:37pm by treith » |
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E-Double
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Re: Introduction
« Reply #4 on: Nov 10th, 2005, 6:52am » |
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So you have attacks then they will decrease in severity to lower level headaches?
That sounds a bit familiar.
Location still doesn't match up though.
Regardless, keep reading all that you can and keep a journal.
Wish you the best
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Bob_Johnson
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Re: Introduction
« Reply #5 on: Nov 10th, 2005, 10:51am » |
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Your doc is several years out of date for cluster-migraine has been recognized as a headache with elements of both types appearing at the same time.
Suggest you print this material out both for your education and as a tool to guide discussion with any doctor you select.
Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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lionsound
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Re: Introduction
« Reply #6 on: Nov 10th, 2005, 12:37pm » |
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Just because a doc claims to be a headache specialist does not mean that he is. I get clusters and migraines and when they all mixed up it is very hard to tell them apart.I get funky hybrids of the two that don't fit any "classic" symptoms of either one. You need a new doc who is listening to you and not throwing meds at you.
The daily headace in the back of your head .... I hope you've had testing to rule out other neuro stuff.
Please be well and PF,
lionsound
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treith
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Re: Introduction
« Reply #7 on: Nov 10th, 2005, 2:42pm » |
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Thanks for the advice and the link. I am goign to try to describe this betterOk let’s see if I can get this down right. I am no good at describing things
6 weeks ago I got my normal monthly headache, when it went away I had a dull pain in the right side/back of my head. I took some Tylenol.. nothing happened tried Motrin… nothing.. I thought it was stress because I had been planning my son’s first birthday and a wedding.. Over the next 2 weeks the pain would occasionally move forward to be right behind my eye, it would stay that way between 15-20 minutes to 3 hours or so then go away but still the ache in the back of my head remained.. Then I started being woken at night. It would take up to 2 hours before I was able to calm down after the headache to be able to sleep again. The Friday before my son’s birthday it got to be too much and I was in the Dr’s office at 8 begging to be seen. They got me in; he did (basically) a field sobriety test on me and said I seemed neurologically ok.. But he wanted me to go see a Neurologist/headache specialist and have an MRI done. While in the Dr office he ordered blood work to be on the safe side then went to make the appt with the Neurologist. He came back to give me the paperwork I would need, mentioned the possibility of having Cluster Migraines, said the neurologist would talk to me about all that after the Scans and he would have the blood work results sent to the neurologist. In the mean time he prescribed Zomig and Loracet plus for if the Zomig didn’t work. While waiting for my appt with the Neurologist, I had to call the Dr back because the Zomig did nothing. He called in a prescription for Toradol.
A week and a half later when I had my appt with the neurologist. I sat with him told him of the constant ache on the back of my head, how it started, where the pain moved to and how it hurt, I told him I have been being woken up by the headaches and that it takes a while to calm enough to go back to bed. He asked what my GP had thought it was; I told him the General practitioner had said he thought it might be Cluster migraine. The Neurologist kinda laughed and said that “the term cluster migraine must be a new medical term because he has never heard of it” he wrote the orders for the MRI and a few other scans that the MRI machine can do. He told me to take the Toradol for 3 days every 6 hours to “see what happens” nothing of course.. toradol didn’t even come close to touching the pain. I went for my scan. At one point they had to pull me out.. My head was hurting so bad. I needed a break.
The results were sent to the Neurologist and I came back in.. By this time he had the results of the blood work as well. Both the blood work and the Scans were normal. He asked again how I had been feeling I told him again about the pain that is constant (even if dull) in the back of my head that moves up several times a day to be right behind my eye and it wakes me at night, when it is behind the eye, sometimes it feels like my eye will pop out and sometimes it feels like someone is sticking a hot knife in just behind my eye, where I often have to push on my right eye with one hand and my right temple with the other, I want to rip all my hear out, I want to scream, but none will do any good, but once that pain is gone I still have the pain in the back of my head. He prescribes the cocktail of Frova, Indocin and Neurotin, he tells me how I am to work up onto the Indocin and Neuotin and that the Frova will be a 3 day treatment, the others will be a 7 day and 10 day, And that I am to come back to see him when I finish the meds. If the Cocktail didn’t work he would talk about injections in the back of my head to deaden or numb a nerve. And if that didn’t work he would look into “what they call cluster headaches”
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| « Last Edit: Nov 10th, 2005, 2:46pm by treith » |
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treith
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Re: Introduction
« Reply #8 on: Nov 10th, 2005, 2:43pm » |
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Continued...
I went back to him Tuesday after the “cocktail” and told him it didn’t work the pain was still there. I told him that I was not comfortable with the injections, he didn’t like it simply said “well that’s your prerogative” then started talking about other things they can do with or too my spine to block this pain.. All of which I said were not an option. I then started to tell him AGAIN how this pain feels (and said in a not so polite manner… I had only told him 3 times before). And then something kinda clicked I guess hearing it for the 4th time.. He said that some of it might fit in to the migraine characteristics. Then prescribed Migranal, and started in about “every time he sees me I look sad, he feels I am a sad person” and wants to know why I look sad all the time (cant possibly be a headache????) and starts to hound my husband and I about why I may be sad. And wanting to know if the headache was the real reason I have come to see him. He then went on about his number is always there and if I need someone to talk to and want to think about an antidepressant that he is just a phone call away and that he will tell the girls in the office I am to be put thru to him immediately. He doesn’t want me to do anything rash.. I guess because I lost my temper with him, and having to repeat myself numerous times.. I am unstable. As we were walking out.. They asked when I was to come back in.. I did tell them I would not be back in.. And I would be calling to get my records transferred (was in tears at this point)
Now. At this point I have had my teeth checked to see if my bite is out of alignment, I have had my eyes checked, I have had appointments with a chiropractor, I have mad the MRI and what ever other tests were done at that point, and I have had blood work done. All have come back normal, eyes are fine, teeth and jaw is fine, blood work is fine, MIR was fine and my spine is fine. I don’t know what else they can test for.. Honestly money is running a bit short at this point because of all the tests and appointments.
I am going to be referred to a highly recommended Neurologist –headache specialist. That several people at my office have suggested. HOPFULLY she will be better than this guy. I cannot afford to keep trying medicine just to see what happens. I don’t like that he doesn’t listen to me.. I feel I am just a paycheck to him. And he will not get anymore of my money.
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Jasmyn
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Re: Introduction
« Reply #9 on: Nov 10th, 2005, 6:37pm » |
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Treith, so sorry you are going through this pain and have a quack of a doc like that! 
Quote:I am going to be referred to a highly recommended Neurologist –headache specialist. That several people at my office have suggested. HOPFULLY she will be better than this guy. I cannot afford to keep trying medicine just to see what happens. I don’t like that he doesn’t listen to me.. I feel I am just a paycheck to him. And he will not get anymore of my money.
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This is the best thing you can do, to go see another neuro.
Please let us know what she said and wishing you some pain free times, it can not be easy with a small child to care for as well.
You hang in there!
Jas
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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